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Conference in KC, Fry Labs

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Posted 4/7/2009 2:43 AM (GMT 0)
I would appreciate that. Thanks. I ask because I think all the abx clear your blood of many of the bugs and thought that Fry wouldn't be able to see anything even if you were dealing with an infection. Your docs answer will be interesting to me.
Posted 4/8/2009 9:03 PM (GMT 0)

Hmmmm. I don't mean to rain on your parade snake but we've been through all this before. First it was..........

Bartonella specks on the smears.

Then Hemobart specks.

Then benign artifacts

Then i heard Betaproteo

And now it is being called a protozoa.

I think most of fry's research should be kept quiet until he has an answer because this is definitely "counting the chickens before they hatch". This may be nothing infectious or this may explain why so many have not been able to reach 100% functionality. There is still a ton of work to be done on fry's part, such as. Is it infective?, develop a test for it, what are the symptoms............and the most difficult part. How to treat it. If the latest research points towards protozoa. This may explain why combos of bactrim, roxthromycin, biaxin, artmenisin, plaquenil, mepron etc do rather well. I don't have my hopes up at this point, but we will have to see what comes out of this.

Posted 4/8/2009 10:06 PM (GMT 0)
Phsinvent: Well said, I agree.  D

Posted 4/9/2009 4:20 AM (GMT 0)
Remember it has not been the doctor making announcements to the world. This has come through patients and I am sure he shares so that the patients know why he may take one direction or another in treatment.
Posted 4/9/2009 4:50 PM (GMT 0)
Yeah. I appreciate the work fry labs has done. And despite the outcome, we must thank them for their work. Because, they are one of a few who are at least trying to get to the bottom of things. I just don't think now is the time to be excited.

Posted 4/9/2009 5:55 PM (GMT 0)
I want to thank you all for sharing information about Fry and the organism. Some of the things I was reading on our local boards had been translated with a transl. program and were more or less chunked with not much sense left.
Posted 4/10/2009 6:44 PM (GMT 0)
I disagree with a couple of the posters here. I am glad the info from Fry is leaking out. Hubby has positive bloodslides from both Fry and Clongen labs. Both labs now think it is a protozoa and not a bacteria. After 25 different antibiotics and antiparasite meds over the last 6 years I want all the new info I can find.

Hubby is allergic to Mepron so can't take Malarone which would be less toxic than the toxoplasmosis meds. The herb cryptolepis was very helpful for him, but this African herb is in very limited supply and none of the other antimalarial herbs seem to be as effective so far. Neem is somewhat helpful. Lactoferrin and lysine have both helped greatly. But without the cryptolepis he is backsliding.

Hubby is more than willing to be a guinea pig -- just have difficulty getting his docs on board.

I feel very hopeful that his ordeal will be ending soon.

Bea Seibert
Posted 4/10/2009 8:42 PM (GMT 0)
Primaquine and chlorquine plus biaxin might be an excellent experiment if your husband wants to take the mepron road.

Posted 4/10/2009 10:44 PM (GMT 0)
KeepHope -

I was talking about the german boards; not the boards were translated ..but what I found in some posts about Fry was obviously translated form English into (some kind of) German by using the tool "translate this site into German" when you google and get those lists with the different links; sometimes people do not post the original link in the German boards and then you only have a cryptic text about something somewhere somehow.
But it is at least some information and often is helpful too. That was what I was talking about.

Thanks for the link! take care, dorit
Posted 4/13/2009 12:53 AM (GMT 0)
Hi KeepHope!

The whole table of contents was very informative and interesting - and a lot of things were new. dorit.
Posted 4/13/2009 11:58 AM (GMT 0)
This is all kind of interesting. On the Rife machine, there are several frequencies used for Lyme. Some handle inflammation, fungus infection, yeast infection, immune stimulation etc. But one frequency is considered a must for the little bugger itself. 432. And it is the same frequency used for protozoa.
Posted 5/9/2009 2:56 AM (GMT 0)
seeingstars,

Sorry it has taken me so long to get back to you on the continuing or discontinuing of abx before the Fry test question you asked a month or so ago. But I did finally have the Fry test done Wednesday(05/06/09), and I wasn't able to get up with my llmd as easy and as soon as I thought I would until then, which is why the delay in answering you, lol!

He didn't make me stop abx, and he said it shouldn't have an effect on the test either way. So far, 100% of his other patients have tested positive for Bartonella on the Fry test. He showed me the pictures of the actual Bart in the cells(covering up the patients names for privacy of course, lol).

But he went ahead and started me on Rifampin 300mg/twice a day for Bartonella since it has shown up in ALL his other patients that took the test. My official results won't be back for about two weeks though.

Again, sorry for the delay! I hope you are still following this thread. ;-)
Posted 5/10/2009 9:10 PM (GMT 0)
phsinvent,

Actually hubby has already done primaquine and chloroquine. It did make the babesia rings go away in the 2nd Fry blood smear. But the dots which used to be called bartonella or mycoplasma were still there -- also Clongen later found what they thought was a bacteria and now say is a parasite/protozoa.

Waiting for hubby's LLMD to call in the scrip for the toxo meds. The P.A. wants to go for the new treatment, but the LLMD is still thinking about what to do.

Bea Seibert
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