Children with LYme....and does it cause OCD??????

Is anyone suffering from OCD along with all of their other symtoms? It keep coming up from the Dr.s and my 13 year old.

And what about cutting oneself? I have read of others on the forum who are hurting themselfs....

We too have that problem in our family.

What the hell.........??????

Hi Marie: I recently saw a documentary about self mutilation and they say it is normally done when the people doing it are unable to express emotions (normally fear of something). Your daughter was possibly afraid for you when you were so ill and did not have an outlet for her feelings. The treatment was "talk" therapy. Good luck- D

My daughter was diagnosed with OCD when she was 4 years old.  I realize now that it was probably Lyme that caused it.  It took a lot of talking about how things would go in regard to whatever it was that she was obsessing on.  Since she started her Lyme treatment about 2 1/2 weeks ago it has gotten worse.  She has a number of tics and repetitive things that she has to do or she gets freaked out.  Germs are particularly hard for her, and yesterday her stepsister (who lives with us) was diagnosed with a staph infection on her leg.  That has made for some stressful moments, we are trying to keep them as apart as possible.  So far, no major meltodwns.  We try hard as a family not to make too big of a deal out of it, it seems to get worse when her stress level is up or she gets very emotional - PMS week is particularly hard, too.  She can't help it, though, it's not like she wants to feel this way.  I am hoping that after she gets through this bout of herxing that she will get back to a more normal state. 

My son, also Lyme positive, was a severe cutter for a few years.  (He has managed to stop in the last year).  It is terrifying, the first time I saw him cut I nearly passed out.   He cut arms, legs, stomach, back.  He cut lines, pictures, words, you name it.  There are studies that show that when they cut themselves the serotonin in their brains increases by up to 600%.  One of the diagnostic tests we had done on my son about a year ago was a seronin level test and his was 40ng/ml.  Normal range is 101-283.  No wonder he was cutting, he could have taken SSRI's until the cows came home but it wouldn't have helped since he wasn't manufacturing enough of it.  It also explains why they feel better or more normal afterwards.  Cutting is a coping mechanism that they learned to deal with they way they feel.  If you can remember that, it might help you stay calm about it.  Maybe you guys can brainstorm some other coping mechanisms together.  Supposedly holding an ice cube until it hurts can do the same thing as far as brain chemicals go, snapping a rubberband on your wrist can, too.  Sometimes they can't think of anything else to do and they just do what they have learned works. 

Good luck, I hope you guys can find some peace.

 

Wow......
Misery loves company. I whole heartedly agree with all of the comments above.
She attempted suicide twice while I was in Az. And she cannot get past it now. She asked for help.
She washes her hands over and over. And has routines that drive her crazy. Sort of going into corners of the room..and counting and humming.
Her insomnia is so bad...going on 6 years now.
Her moods swings are frightening. And her violent outburst.
She has dumped all of her friends. Does not trust anyone anymore.
She felt abandened by me while I left to the clinic.
I got home to hell.
One is only as well as their sickest child.
Her father checked her into the columbia pschisctric intitiute in NYC. I am now having to move up with my little lilly to a hotel in NY.
Luckily I am able to coop with all of this now.
I am clear headed and honestly.....pissed off.
The best thing is that her father...finally is at the end of his rope. And he spoke to Dr. Korn at the envita clinic and he is now...hoping that she does have lyme and bart...because he has seen from me...that I was healed from this at the clinic.
But in the mean time. We cannot even trust her in her own room. She wanted to jump out of her windwo...hang herself in her closest...and told me that if I only knew what she wanted to do......
I told her....I understand more than she thinks...but cannot share what "my plans were"
I must say that I am very impressed with the help and long talks with the Dr.s at Columbia and they have a specialist who deals only with the nurological aspects and kids with lyme. That was a shock to me.
I was also very pleased that the Dr.s were very interested in my treatment that was alterntive..because for the only reason...that it worked for me.
It is nice not to be having to fight with anyone about it.
But...as they have said...they are limited as to their treatment. Yet we are not on our own.
Why Ozone is not covered by insurance in order to help these children, it is cheap compared to the other long and non working treatments available.
I am doing what I can to change this.
Her father is a very powerful man...and I hope to bring the light to this problem by showing him the results asap.
I am so saddened by all of the stories and for your children.
If for not only for my child...I am going to carry the torch for all the kids and raise as much hell as I can...
We did finally send her blood work off to Fry labs in Az to see what else he can find...besides the lyme. Since the CDC and Lab cor and Quest..does not seem to think that anything is wrong with her. What does it take for them to update and revise there primitive test? how many dead children must they have at their feet.
It is no wonder that suicide is off the charts in teens in the North East. She was covered in ticks in the vineyard. I lost count how many of the things were on her. Like....covered.
No telling how many bacteria she has in her system.

Her father did not believe me for the last 8 mos that she had the same problems as me. He actually yelled at me and said that she was only saying that she had all of my symptoms.
It has been more than frusterating fighting with him and fighting to get my daughter treated.
Which of course I tried to get her out there while I was living out there the whole darn time.
But his Dr....my old internest...you know the one that said I was fine....and no lyme.
He would only listen to him this whole time. He of course took her to the best Pediatirc infectous disease Dr. in the state of Florida and of course they sent her blood to Lab cor. and it came back negative.
So...he has had to go down the long stupid road that I went down...to have to prove that she has in fact these diseases.
He knew that I was out of my mind and was also going to be put into a institition. So I guess I was not the best person that he wanted to listen to about his very sick daughter. Our very sick daughter. He was scared to have these alternative treatments done to her. He is a very strong believer of the New England Journal of medicine.
But she already did all the regualr offered treatments of drugging a kid our of their mind....with tons of pills...and on that she overdosed on her fathers pills....
So................................her I am...trying not to totally...lose it..
Well actually I have. I have never cried so hard. And I did threaten his life...lol
So.....
So I will do what I have to do to get her the treatment. All I can say...it that is has gotten ugly. And this is a battle for sure.
Hopefully I will have her at enivta this summer. Geee...how lovely is AZ in July and August.
God I hate him.....
Nothing like 120 heat to help and heal.

He is a stubborn old, rich, fart.
He did not mind sending me off to AZ. for alternative treatment. I am his X....but his baby girl....hmmmm
different story.
He was going to take her to see Shapiro in NY...need I say more..
Whom next Alan Steer? Or whatever his name is..
I mean this is what I am up against...
It might as well be the senate and the USDA and the CDC.
Oh.....and the FDA

I guess I am going to be living in a hotel again this year.
How are you feeling scorpian?
Long time no speak. Almost called you today...
But too worked up right now.
How is Fry working for you now?
We sent her blood work to him.
No telling what she has.
Poor thing. She dropped out of school......I have had enough of this...really.

Hey Marie, I forgot to add that I'm so glad her doctors are willing to listen to you. Maybe you can teach those doctors at Columbia a thing or two while you're there. Have a safe trip and good luck.

Oh sorry veronica...was getting my scopion's confused...lol
Can you get Ozone and perioxide in NYC? The only reason that they have been interested in what I keep going on and on about...lol..till I am green in the face. Is because I am not suggesting that she take huge amounts of abx. which we all know..it just not allowed..lol
But they are curious what my treatment is all about. And not familiar with it I guess. But I will be meeting with all of them next week. With a big smile on my face...and ready to drag her out of there and take her to envita.
I don't think therapy is going to rid her of the harmful bacteria that she is harvesting.
so...I will try to be nice....and funny...and most importantly I am someone who was very ill and have all of the Dr.s, big names....who could not cure me.
And envita did. So the fact that I can fly up there to NYC with a small child and even be able to walk into a mental ward with out needed an EKG....and a wheel chair...lol...I am better and they should listen to me.
I may stop over and see Shapiro and Steer while I am there. Since I can get in to see them. Easily.
And have a nice chat with them about my happy story.
I am out to try to make some changes. And if I have to go to the top...and smile....etc...I am.
I can get into these Dr.s no problem. I think that they deserve to know that something worked. I think that they will listen. Well they will have to listen. I will sit on their chest and make them...lol..:>)

veromia333, its not evil at all, i think it each time i hear someone else saying there Dr. says there is no lyme here.i wouldnt wish it on anyone,but if someone has to have it then it should be the mean Dr. who make us suffer more by denining us treatment and dignade

That had to be awful, finally feeling better and coming home to this! With all you have been through to get to where you are, and to have to watch you daughter continue to suffer. It sounds like she is also trying to take it out on not only herself, but you. Well, it sounds like your ex is at least willing to listen finally and she can get treatment and relief!

Go get those Docs!

I haven't looked into the ozone and peroxide therapy yet. I don't think it's too popular here in NY but I could be wrong. Right now I'm doing the typical antibiotic protocol with many supplements and plan on adding either Zhang or Cowden within the next week or two. After that I will decide what to do next. I really wanted to go to Envita but there was just no way I could afford it. Maybe when and if I can I sell my apartment, I'll go there.

I'll keep your duaghter in my prayers. It's tough enough being a teenager without Lyme wreaking havoc on top of it. She's very lucky to have you.

I think it sucks that you all are not able to get the Ozone therapy that you need to get well. And that it is not legal in most states.
I wonder if they do Ozone in Mexico?
Bet they do.