Has Anyone's Brain Fog Become Worse with Treatment?

Has anyone's brain fog become much worse with treatment before becoming better and how long did it last?  I'm definitely not referring to a herx.  I started treatment in February and although other symptoms have gotten better the brain fog remained the same until about 3-4 weeks ago.  Then all of a sudden I started to feel that the brain issues were becoming even worse and on a more constant basis.  My llmd told me to stop the IV Rocephin for two weeks and come in for an appointment which is scheduled for Tuesday. 

Just wondering what the heck is going on.  I was prepared for the herxes and for any sort of recovery to be a long process but I wasn't prepared for this!  I was hoping to see even slight improvements in the brain issues by now and not have it get so much worse.   

I have to admit that I'm not detoxing the way I probably should be.  Most of the time it's difficult for me to get out of bed or off the couch no less get in the tub.  I do drink a lot of water but my eating habits have also slipped lately - due to severe cravings and a bit of emotional eating.  lol

Hi Judy, I'm so glad the Rocephin worked for you. Was it a gradual improvement or did you find one day that you suddenly felt much better? How long were you sick before starting the IV's?

I recently finished my third month and now my doc thinks I will need to continue with the IV's for a year more because of how long I've been sick and how severe my symptoms are. If only this was diagnosed and treated appropriately in the beginning, I probably would have only needed one month of IV's, if even that.

For all those with neuro lyme, please consider starting IV Rocephin right away. It can and often does make the difference in whether someone recovers or not. I realize that everyone's situation is different but I don't want my "if only" to become anyone else's.

Thanks CajunGrl. I did force myself to get in the tub last night and will try again today. How long do you soak? I find it so hard to just lay in the tub doing nothing although I have no problem doing it on the couch or anywhere else for that matter. LOL

I also realize I have to be more careful about what I eat.

Scorpio,

I usually stay in about 20 minutes or longer but if you're just starting, I'd say 10-15 minutes. You do want to make yourself sweat. That's the only way the toxins come out. Don't forget to use a dry brush on your skin before you get in and rinse off after. I know it's a pain in the rear but it does help. I usually take an empty cup and fill it up with the water in the tub and pour it all over me.

scorpio, just think i live in a trailer and you they have the worlds smallest tubs. and i am thnkfull to have it, as when i was married we lived in a 30 foot RV, no tub at all. just a little shower. i couldnt even shave in. your butt would hit 1 wall and you head would nit the door and it would pop open..lol

like CG said use a cup to pour it over you.

i hope your feeling better soon

i'm not sure but i think i am getting worse. today i felt as tho my eye was swollen. i asked my b/f if it looked swollen and he said my hole face was, then right after that i felt like i was burning up in my face only then the creepy crawlys started in my face. and everything was blurry for awhile.

its all stoped for now, but it sure is scary then it happens. and to make matters worse is knowing i wont get any help for it. i hate this disease and Dr.s more and more each day. the only thing good i can come up with in all this. is that i have made some great new friends.

i hope you better soon.

RD, I'm sorry you're feeling so horrible and hope you feel better.

CG, RD always makes me laugh. lol I hope you're feeling a little better and adjusting to your meds.

I really don't feel too well today. Flu-like symptoms are back along with the usual fatigue and brain fog. I'm so tired of trying to figure it all out. Not sure if it's because I'm on a two-week break from the IV Rocephin, if it's because of the rainy wheather we've had or if it just is what it is and has been for years.

CG, I wonder if the toxins are also causing the flu-like symptoms again too.

I've been taking orals (Mepron, Zithro, Mino, Zithro, Art) since February and the doc wants me back on the IV's again for another year. I'll find out more when I go in for my appt. on Tuesday.

scorpio i was talking to another friend of mine last night who just whent thro cancer and she told me that tomoatoe was good to help remove toxins in your body, that you should eat 1 a day kinda like the saying a apple a day keeps the doctor away. i am going to try it and see what happens.

what do i have to lose, but the creepy crawley :)