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I think I might be better?..anyone?

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Posted 6/30/2009 3:30 AM (GMT 0)

Hey, new to the forum, but have read much before.  It's great to hear about everyone going through the same thing as me!!! Ok... wells here's the short low down on me..

Grew up in New Jersey, around 15yrs old, got mono, got hypothyroidism, and never recovered. Tested positive for Lyme, given 2 weeks oral antibiotics, re-tested and supposively fine.  Never got energy back, glands swelled, always felt like junk!  Docs put me on Adderall (don't ever go on it if docs try.. please)  and dismissed it as CFS.  Moved out to az in 2002, and still felt horrible, and still on Adderall to stay awake. (I'm 23 now)  Finally last Oct, went to see an arthritis doc because I hurt all the time, and told them to retest me for Lyme, and sure enough, it turned up again years later. 

Found Long Life Medical in Mesa, Az, the doctor Dr. Korn from Envita in Scottsdale.  I've gone through the 9 week protocol of EDTA, Zithromax, and mineral IVs and Collodial Siver.  I also take Dribose, Coq and numerous other homeopahtic stuff to try to stay feeling better.  The treatments were long, and herxed after them, and felt pretty bad.  My treatments ended in April of this year.

So now.... I've kept up with eating well, trying to work out a bit more, taking lots of vitamins, and 2 months of oral zithromax/edta compound.  I am still on the stupid Adderall because it's almost imposible to get off of it, and I am trying to slowly ween myself off of it.  I have felt a little bit better, haven't gotten sick, glands don't swell, and an ongoing skin infection has finally stopped rearing it's ugly head after 2 years. (doc said it was from the lyme bacterial dying and releasing through my skin)

So I have some good days now, but just in the last 3 weeks, my joints in my hand and feet are killing me again.  It's not the same almost electric shocks I was getting during Lyme, but a annoying dull ache.  I don't know if I just have fibro or something now, or if the lyme is coming back.

SO that's my story! Thought I would share! There obviously is a lot more to it, so if anyone has questions about there treatment or anything, please ask! And any feed back from anyone who had the same treament would be awesome!

Posted 6/30/2009 4:42 AM (GMT 0)
Yes I still go to Dr. Korn. But I almost don't want to know anymore from a blood test if it's there or not because I can't afford and do not want to go through the treatment again!! I just hope that I'm partly better if that's even possible? Dr. Korn is the doctor from Envita also in Scottsdale who is awesome, very understanding because he had Lyme himelf and it almost killed him. He wa a dentist before he even thought about getting into treating diseases and now wants to do as much as he can since he went through it. He's great, will talk to you for an hour, give you books, and a ton of info, and really cheers you up. I am just in a good ammount of debt with this already!! Thank God I work for Whole Foods and get a discount on my vitamins and stuff and actually have run into customers with Lyme which is pretty informational. I just want the aches to go away! I just got married 2 weeks ago (yes, i worked full time, and planned my wedding by myself during the 9 week treatment.. how.. I don't know.. ) so i've been realy over doing it I think, not sleeping enough, eating righ, etc, so I think it brought it on. I hope its not for good!
Posted 6/30/2009 4:54 PM (GMT 0)
Gizmo: Could you tell me a little about your skin infection. I have chronic skin problems and I would like to know more about what the doc said about the Lyme coming through your skin. Did you have like open sores on your scalp? Thanks  D
Posted 7/1/2009 4:06 AM (GMT 0)
Yea!!! I used to get almost like boils on my scalp, hairline and forehead. They wouldn't come to a head, they would jut be a boil and hurt a lot. My lymph nodes on my head and down the back of my neck would swell also, and the boils come back in the SAME spot everytime. I went to a dermatologist when it started and was put on 2 months of doxy antibiotics, and it nothing (obviously nothing for the lyme at the time either) Try detoxing a lot. It could be from the lyme, or my other doc told me I might just have a reaccuring skin infection such as staph or something that comes back when my immune system is depressed. And my lyme doc told me it was from your body killing off the bacteria and it coming out of your pores. So it probably can be caused from a bunch of stuff, but I'm sure Lyme has to do with it. Try getting Bactroban cream. Its an antibiotic cream and works wonders for it. I had another cream, something like Tri...something Tri, (sorry don't have it and forget the name) but it didn't work. The bactroban works well. Both drs said that it basically wouldn't be gone until it was completely flushed out of my system, so I've detoxed, and done everything to flush it out.. and I haven't had it back for about 3 months!!!
Posted 7/1/2009 7:08 AM (GMT 0)
I find that when I am feeling 'fairly normal' - my eating healthy etc; - gradually goes back to not being priority - sometimes I feel so 'well' - it's like - of course I haven't got lyme - I was just a bit off. - does anyone else get these symptom free periods?

my symptoms have mostly always been in a 4/5 weekly pattern - except for - after short course of 'doxy' - where I had a whole month of 'feeling good' !!

I understand that some lymies need a 'maintenance' dose of abx. from time to time - maybe it is that most of the bacteria has been destroyed and what is left can be handled by our own immune system - unless we let our bodies get a bit 'run-down' or stressed - this is just a theory.
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