New here - Can this be Lyme? help interprete please.

Hi, I'm new here and found this site through google. Very helpful...
My tests results states this (below) and i'm wondering if i do have lyme. Please help interprete if you have the same results or know what this means. I did this test on my own through Lab Corp (privately), when i had described some symptoms to my doctor and she said I had MS. I don't believe i have MS since no one in my family has it. MRI results are pending. I just want to rule out Lyme before I go on for years with no solution. She's currently on vacation so I can't ask her thought on the results.

IgG P41 - Present Abnormal
IgG P23 - Present Abnormal
IgM P41 - Present Abnormal
IgM P23 - Present Abnormal
Lyme IgM WB Interp Positive Abnormal

IgM 39 is absent, IgG P93, 66,58,45,39,30,28, and 18 were also absent. Lyme IgG WB Interp was also absent.

Anyone here to tell me what this means? is it Lyme or MS. I'm going out of my mind worrying. I need to be prepared. Thanks.

Hi Ariel,

Welcome to the forum!

Have you found a good Lyme Literate Medical Doctor yet? You should post your email so that members can tell you the contact info privately. You can email: [email protected] to find a Lyme Literate Doctor in your area. You can also go to: www.turnthecorner.org/bod.htm and ask for further sugestions.  

For more info, please read the topic at the top of the first page of this forum tittled "The Basics, Newbies check this out". It will help you get started learning about lyme.

P.S.- Just a FYI, we don't post doctors full names out of respect for them and all the complications they have been through. Initials are okay to use though.

Wow- unless I'm reading it wrong, you have a positive Western Blot by even CDC standards.(Western blots are considered positive if either IgG or IgM are positive). As screwed up as it might sound, I'm slightly jealous... lol. Those seem to be very rare.

That does indicate Lyme disease. As Cajungirl has already said, finding a LLMD is very important. With a postive test, you might be able to get your PCP to agree to treat you, but you still need the expertise on an LLMD. I have a list of doctors in the Washington/Montana/Idaho area, from when I was trying to find an LLMD. If you live near there, let me know.

Good for you for being so on top of things! And good luck.

minerals said...
Ariel, Please don't waste your time going to any other than a Lyme literate doctor. If you find one, he/she probably won't be on your insurance plan but it is worth every penny to get well and not let the bacteria get out of hand and the right treatment for the right amount of time. Most doctors are uneducated as far as Lyme diseasae goes--especially infectious disease MDs. Ticker will probably post the symptoms and other info. you need to get started meanwhile read and learn as much as you can because you will have to be your own advocate with this illness. Ticker also has a list of doctors in many states.

This site has members with a wealth of information about Lyme and other infections that go with it. You will learn much here.
Blessings

hi -

What is ticker? where do i find it?

Ariel,

Ticker is one of our veteran members here. She is very knowledgeable and will help you as best she can.

Hi - Thank you all so much for your help and information, I'm truly grateful for the support. I'm awaiting replies from the two people i emailed for doctors in my area. If you know any in North NJ, please send it my way - [email protected].

My symptoms for the past 2 to 3 years were tingling in feet and hands, sometimes pain in knees. My doc thought i was getting diabetic, but i ignored her and never went back (school and stuff). Last year, it turned into ticking hands and muscles, but that disappeared after a while. This year it went to numbness in my left leg, it felt heavy.

This past month - mid June / July, i felt worse. Heaviness and weekness in both legs, pain in knees, ticking muscles in legs, thighs, and arm. I couldn't hold a pen much due to hand shaking sometimes, short term memory and confusion problems, had burning sensations on the skin of my left leg, both arms and back, walking and balance problems, stiff neck and stuffy head, had high temperature for about 3 days which felt better with cold showers (like i was menopausal - which i'm not, still too young for that), fever & headaches, sometimes unexplainable sweats. These signs prompted me to go see my doctor and take it seriously.

Last week to this week, all symptoms disappeared except for a little numbness in both feet. I've learnt to live with that. But i feel so much better.

Very wierd things happening but I'm glad I know. I think I'm getting worse and would like to attack it now before i start missing work. Not good.

People are jelouse that you have a positive test because it is so hard sometimes for people to believe you that you have Lyme, so they wish they had a positive test to confirm what they know they have.
the Lyme bacteria borrelia burgdorferi causes immune system supression, also the bacteria can hide inside cells to avoid detection and other ways of avoiding detection or production of immune reaction and successful antibodies.
considering that tests are looking for your antibodies to give a result of positive and not the actual bacteria itself, you can see how current testing is unreliable.
Even a test which looks for the actual bacteria and that is blood based is not reliable if the bacteria is in your tissues and not in that particular sample.
So someone can be very sick with Lyme and give a negative test result.
But the IDSA does not seem to believe those truths. Just because they just dont feel like believing it . Well after tomorrow we wont have to care what they feel like believeing. What we feel like is crap, and it isnt stress.
If you have come this far you are prob on the right track. there are so many people out there with this who do not know.