OK so now it's the eyes!

This sounds crazy but do you do liver detox stuff?

springsjean, I ask about the liver detox because toxic liver is connected to so many things. coffee enema take pain away
and clears my brain fog. I remember reading long time ago that eye stuff can be liver stuff , even tears.

Are you on medication? The more I learn about lyme the more I see how our livers are taking a slamming from it just as much as Hep C does. ( I have hep c so I been doing stuff for years for my liver)

My doc wants me doing coffee enema every nite. They're a pain in the butt BUT they always help. I see the difference just looking in the mirror.

Also shot of wheat grass , for me , I feel instantly.

maybe google stuff like eyes and liver? do you know how to do coffee enema?

how long have you had this eye thing going on.?

YES!! I am fortunate that the 2 eye specialists that I have seen are both lyme literate. What a blessing. I have the same symptoms that you talked about. This morning I saw a retina specialist who wants me to have a new titer run since it has been about 3 years since the initial lyme showed up. I have a cyst on the back of the vitrus that makes it seem like I am looking thru an old window pane. So his suggestion is to do steroid drops to try to bring the inflammation down and find out what the little lyme buggers are up to in the rest of my body.
Lyme, the gift that keeps on giving...

If I can remember all that he said!!! And if I can see to type ;-)
He did say uveitis is consistant with lyme but he wasn't diagnosing me as such. Thus his reason for the up dated testing. But it was similar He did a ton of tests - most centered on the macula and retina. He did an OCT ( optical coherence tomography test ) This is a photo of the back of the eye.( Ask for this ) Found a cystoid macular edema - fluid leaking from the lining due to this cyst. Can be caused by trauma, surgery, injury diabetes but I have none of those.
They cad do a dye test later if it doesn't get better.
Paperwork said reddening of the eye is common - sounds like what you describe.
Good luck - wish you were seeing a LL doc tho ;-)

Left eye, blurred vision. Dull ache off and on. Very irritating!!!

OK thank you so much. It will be a great help when I go today to know what questions to ask etc. Best of luck to you. Thanks again.

Yeah tend to close the eye alot when too much light or it gets really aggravating with using computer or watching TV. The vision is not really that bad in it though, just feels like a cloud or film over it. Gets a little discharge in corner in the morning.

just saw your post! Not what you hoped for but don't despair - there will be an answer. How long before the next step in the process?

Ugh...do you know about
http://www.ilads.org/ or http://www.lymediseaseaudio.com/ The second has a live chat as well

When I first showed signs it was July 07 and I had what I thought was the worst flu of my life. Ended up in the ER 2x's in a week. Worst pain & dehydration/light sensitivity
ELISA test was positive so that was how I found out. Memory was affected - thought i had alzheimer's as well. A friend whose teenage daughter has late stage Lyme gave me these two sites plus there is a Lyme Log that lets you keep track of symptoms & meds.

Hang in there - sorry I was off but we had a powerful storm and power was out for 2 days.

This vision question is very intriguing to me. When I first developed symptoms of Lyme and was diagnosed instead with fibromyalgia (ugh -- something like 20 years ago, it seems), I kept telling my fibro. friends that it felt like whatever it is that is wrong with me is coming a whole lot from my eyes. My fibro. friends had very similar complaints.

Eye symptoms have dominated for me. Over the years I have watched my eyes go from vibrant looking to glazed over or dull. I have had LOTS of floaters for at least the last eight years that every eye specialist has blown off. I have pretty severe eye pain, blurry vision, swollen eyelids (told it was just allergies), extreme light sensitivity, vision that seems to change daily and get worse with brain fog, cloudiness, etc. I could go on and on.

Then, a couple of months ago, I got what I thought might be a type of Bell's palsy from Lyme. I had an extremely irritating twitch above my eyelid (right eye). It seemed like a facial or cranial nerve irritation. It lasted for several weeks. Saw an eye specialist who was supposed to know about Lyme. He blewn my symptoms off and the more I mentioned Lyme the less he engaged. Told me my eyes were dry. That's all. I got some GenTeal lubricating eye gel and used that. After about a week the twitching finally stopped, but I am not sure that the GenTeal was really what made it go away.

I have always had 20/20 vision, but in the last couple of years I have had to get reading glasses and they barely help. Everyone chalks it up to aging (I am 46). But I know there is more to it than that. The eyes are so much a part of Lyme and co-infections. Pamela Weintraub talks a lot about it in her book (I've been reading that recently).

I have late stage Lyme that was never acknowledged or treated, so I feel a bit screwed on all accounts! Sorry that I don't have any answers, but I can at least validate your symptoms, I hope? Oh, and I am pretty sure that I have taken the visual field test online a couple of times. No doctor needed. You just need a credit card to pay for it. It is actually available on the site of the guy who invented it, if we are talking about the same thing. I failed (slightly) both times I took it. I can look up the site if you are interested.

Cre, have you ever had an MRI? I will surely let you know how mine goes. I think it could possibly be a herx of some type of flare but since some of my worst symptoms have been psychiatric, I have always been curious about my brain involvement anyway. Thanks so much for your input.

I have had an MRI in the past year, but not of my head, unfortunately (long, Lyme-related story)! Please keep us posted about what you find out from yours. I have always been freaked out about the tracers/dyes/radioactive isotopes that are used with CT scans and MRIs. I have pretty severe multiple chemical sensitivities at this point and worry about how my Lyme-laden body would react. When I had the MRI last year I had to fight like a dog to not have any IV tracers used.

I would love to see a SPECT or PET scan study of Lyme brains/heads? Is anyone doing this? I know that the fibro/CFS research world, and even the IC researchers, are hot on this trail. BUT . . . they are not connecting the dots to Lyme and/or co-infections, of course. They are connecting the changes that they are seeing on these scans to abnormalities in the central nervous system (duh). That IS Lyme, right?! Ugh.