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Do you have Fibromyalgia with Lyme Disease?

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Posted 2/26/2010 6:07 PM (GMT 0)
Everything I have ever read or heard talks about how important Magnesium is. Read Dr. B's guidlines.

Also, there is NO reason for Lyme (only) that you would need to be on pain meds for the rest of your life.
Posted 2/26/2010 6:23 PM (GMT 0)
bucci, Lyme loves a lot of things that we take, but that's no reason to not take it. Magnesium Citrate can be very beneficial in helping your with your bowels, among other things. There are numerous benefits to taking magnesium.

My doctor would rather I not be on it, but he recognizes that sometimes our bodies has to have supplements that might feed lyme, but can also benefit your body in good ways. It's not always easy to know what to do, but for me, I'm taking it for a brief time so that I can have regular bowel movements, also because it helps me with my neck and foot cramps.

If your doctor says no, then you either follow his advice, or if your inner gut is telling you to take it them try it for awhile and see how it does. Just my 2 cents.

Gary
Posted 2/26/2010 6:39 PM (GMT 0)
agree with what the other have said. If oral magnesium gives you troubles you can get IV or give yourself IM injections.

I have been on various pain meds for quite a while, but I am hopeful it wont be forever. but you have to try other thing like physical therapy, etc to try to make your body better. DO everything in your power to feel better!

melissa
Posted 2/26/2010 7:17 PM (GMT 0)
bucci,

Hey hun. What reason did your doctor give for saying that you will hurt for the rest of your life? I also agree with the others on magnesium. Everything I have read has stated that magnesium was important to take. Of course, I am no doctor and can only say this from experience but it has been helping my pain a little.
Posted 2/27/2010 1:39 AM (GMT 0)
A lot of people with fibro have found some relief with magnesium/malic acid. You need to take about 4 pills per day. If you try it, start slowly and build up to four/day.
Posted 2/27/2010 2:13 PM (GMT 0)
My comments re: magnesium can be found here:
https://www.healingwell.com/community/default.aspx?m=1717268&f=30&p=1

Take care,
Posted 2/27/2010 7:01 PM (GMT 0)
 Razzle, If magnesium dialates blood vessels, then may it also lower blood pressure?

kill 3 birds with one stone? pain constipation and high BP?

Posted 2/27/2010 10:08 PM (GMT 0)
Dagger,

That's what I take....four pills a day. I've been taking it with my pain medication and it seems to work better for some reason.


Mother natures child,

That would be nice if it does do that huh? I have a slightly elevated blood pressure and it would be nice if it helped. I do know that fish oil helps to lower it a little.
Posted 2/27/2010 11:36 PM (GMT 0)
Yes, Magnesium can help lower bp. So can garlic and cayenne pepper.
Posted 2/28/2010 12:04 AM (GMT 0)

mother natures child said...
Razzle, If magnesium dialates blood vessels, then may it also lower blood pressure?
kill 3 birds with one stone? pain constipation and high BP?

Yes, magnesium does help to lower blood pressure slightly. Another often overlooked supplement that's excellent for the heart, and helps to lower blood pressure too, is CoQ10.

Two good articles on this:

http://www.preventive-health-guide.com/coq10.html

http://abcnews.go.com/Health/story?id=117649&page=1

Everyone with Lyme disease should be taking this. I take 200 mg daily but some take less and some take more. Depends on what your doctor feels is best. When I don't take this I have heart palpitations and feel sluggish, but with it I don't have any heart palpitations.

Gary
Posted 2/28/2010 1:16 PM (GMT 0)
GWB,

Do you get nauseated from the CoQ10? I do if I take even the low-dose versions (10mg). I've heard this is a known side-effect, but geez, one would think I could get away with a low dose...

Thanks,
Posted 2/28/2010 2:03 PM (GMT 0)

Razzle said...
GWB,

Do you get nauseated from the CoQ10? I do if I take even the low-dose versions (10mg). I've heard this is a known side-effect, but geez, one would think I could get away with a low dose...

Thanks,

Razzle, no, I don't have any side effects to taking CoQ10 at all. I take it with food so maybe that makes a difference. I stopped taking it last week just thinking I would try to eliminate a few supplements and see how I feel. Three days later that heart palpitations came back. As soon as I went back on them they went away and I felt better.

Everyone's body is different and reacts differently to different supplements, etc. Can you take fish oil without any difficulty? That too is great for the heart.

Gary
Posted 2/28/2010 5:32 PM (GMT 0)
Nope, I'm allergic to fish. When I did take the CoQ10, it was with food...I always tolerate supplements better with meals.
There are other supplements I can't take because of side-effects also, so I guess the CoQ10 is just one of those...

Thanks,
Posted 3/14/2010 3:52 AM (GMT 0)
You may find this blog on fibromyalgia written by Dr. J in KS interesting and helpful. http://www.davidjernigan.blogspot.com/
Posted 5/17/2010 2:39 AM (GMT 0)

1bitten2xshy said...
I believe in Fibro, but I also believe is is caused by "something". I do not personally think it is a "disease" all by itself.

I have had the extreme muscle pain as you describe. In fact, it was my very worst symptom.

Since finally treating for EBV, CMV and very high HHV6a & 7, I have almost ZERO pain.  That makes life wonderful!

I also take Mag Tab SR, Fish Oil and D3.

Hello 1bitten2xshy,

I was treated for late stage Lyme/Bart after suffering from Fibro/Chronic Fatigue for over 15 years.  I am a healthy lady with great diet, nutrition, exercise, but when they finally discovered the root cause, EBV HPV, and Parvo in my blood tests, HELLO, no wonder I hurt so badly.

That all transpired back in 2007, one year of Doxycycline/Mycobutin and then some Azithro/Mepron for what they suspected was Babesia.  I am 85% but I had to stop the meds due to hives from the Mepron, and earlier had severe ankle, wrist and joint pain from the Mycobutin.  I continue to have the stiff lower back, hip flexors that lock up, and that myalgia from the achy muscles and soreness that hardly escapes me except for brief moments after a detox bath.

What was your treatment protocol that cured the Fibro pain?  Was the antibiotic treatment the turning point for you?  Did you do any special detox besides the epsom salts, hydrogen peroxide or the Jernigan CNS antitox formulary?

I'd sure appreciate your feedback.

Thanks and keep up your good health!

Kay of KC

Stuey 06 my pug

Posted 5/17/2010 2:59 AM (GMT 0)
bucci - I'd like to find out more about the magnesium/lyme connection. I've never heard that. Don't know if you are taking probiotics, but they have eradicated my chronic constipation. I take a multi-bacteria probiotic twice a day, a friendly yeast probiotic once a day, a prebiotic to make my intestines a more favorable environment, and just recently added what I'm now thinking is the best thing yet - Bio-k. It's like a little concentrated yogurt shot and it's really full of live bacteria. It is making a huge difference re. the overgrowth of uck on my tongue, and as I said, no more constipation. I'd sure rather do that than an enema if I have a choice.

CG, so sorry to hear you are still struggling with pain and side effects. I've been gone for a few months and was sad to read your posts. I hope your new test reveals something easy-to-deal-with and that you find pain meds that work.

Rose
Posted 5/17/2010 3:01 AM (GMT 0)
Nobody will take my magnesium I never knew it helped chest pain I want mi daughter to take it now. I agree with natures child i too am labeled fibromylagia but "it" came after some pretty red em's!!! I am to the point i do not care what they call it.
Posted 5/17/2010 3:06 AM (GMT 0)
Question: If magnesium lowers BP, will it be a problem for someone who already has BP that is too low? Maybe I should be taking less.

Rose
Posted 5/17/2010 3:40 AM (GMT 0)
Yes, magnesium supplements taken by those with already too low bp can cause vertigo/dizziness, so be careful. Take only what you can tolerate without negative side-effects. Also it can be helpful to offset some of the magnesium effects if you take it with calcium (they balance each other out). The usual recommended ratio is 2:1 calcium to magnesium (for example, 1000mg calcium and 500mg magnesium). I'm one of those who needs 1:1 calcium to magnesium ratio, but that's probably because of my messed up gi tract.
Posted 5/17/2010 9:12 PM (GMT 0)
I have Fibro and I take Tramadol for pain. I'm still working on whether I have been bitten by wrong Tick.

Veronica
Posted 5/17/2010 10:23 PM (GMT 0)

Interestingly, I have found that there are several causes for my pain.  Lyme and Bart are one for sure, but also adrenal insufficiency and hypothyroid.

At first I thought ALL the pain was lyme, but with abx the pain did not get better. many of the other lyme symptoms improved but not the pain.  When I received proper treatment for the adrenal failure I suddenly was Way less achy, less joint pain, skin was no longer as sensitive to the touch, etc. 

Then I finally was able to treat the thyroid and have once again realized that some of the pain that I thought I would just have to 'live with' has gone away.  The hypothyroid caused achiness in muscles, some joint pain, fatigue (especially in afternoon) nausea. 

I am still on pain meds, but no longer hurt to the degree that I did before. 

Paulette

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