Treatment finally working!?!?

need some zs

Regular Member

Joined : Nov 2006

Posts : 143

Posted 3/2/2010 6:19 PM (GMT 0)

I just came back from my LLMD. I've been on my (6th???) treatment protocol since being diagnosed 3 years ago. He says my antibody levels are rising, which is a sign the treatment is working! I feel like crap at the moment, but I haven't felt this hopeful for being cured in a long time.

Bartonella
Azithromycin 600 mg/day
Mycobutin 500 md/day

achievinggrace

Veteran Member

Joined : Nov 2009

Posts : 3266

Posted 3/2/2010 7:46 PM (GMT 0)

Good news, hope you start to feel better, though. Hope really gives you a boost

kitty9309

Regular Member

Joined : Oct 2008

Posts : 163

Posted 3/3/2010 1:36 AM (GMT 0)

Which antibodies are rising?

I have also seen good results w/ Zith/Rif, though it took a while.

Traveler

Elite Member

Joined : May 2007

Posts : 36573

Posted 3/3/2010 10:09 PM (GMT 0)

CONGRATS!!!!! I do hope you feel some relief soon!! Great news!! Thanks for sharing!! :)

need some zs

Regular Member

Joined : Nov 2006

Posts : 143

Posted 3/4/2010 4:09 PM (GMT 0)

Re: antibodies: my LLMD uses a new test that measures bartonella antibodies. They also culture the blood. My antibodies rose after treatment started. These tests are not approved yet, of course.

Here is the list of antibodies tested. Have no idea what this means!
Bvb 1, Bvb II, BvB III, B henselae, B koehlerai, B volans

kitty9309

Regular Member

Joined : Oct 2008

Posts : 163

Posted 3/4/2010 9:13 PM (GMT 0)

We see the same doc!

Bvb= Bartonella vinsonii berkhoffii (types I,II,III)

I have not been retested since testing positive, but I have BvB I and II.

need some zs

Regular Member

Joined : Nov 2006

Posts : 143

Posted 3/5/2010 4:33 PM (GMT 0)

Kitty: Dr M in Rockville?

kitty9309

Regular Member

Joined : Oct 2008

Posts : 163

Posted 3/5/2010 4:39 PM (GMT 0)

Yes

need some zs

Regular Member

Joined : Nov 2006

Posts : 143

Posted 3/6/2010 1:55 PM (GMT 0)

Would love to correspond offline about your treatment/experience there. If you want to, e-mail me at
[email protected]

bucci

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Joined : May 2006

Posts : 1477

Posted 3/7/2010 11:45 PM (GMT 0)

what lab does those antibody tests?

bucci

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Joined : May 2006

Posts : 1477

Posted 3/7/2010 11:46 PM (GMT 0)

need some z... is the zythromax for the bartonella?

bucci

Veteran Member

Joined : May 2006

Posts : 1477

Posted 3/8/2010 12:24 AM (GMT 0)

need some z...if this is your 6th treatment protocol what do you mean by that? Are you with the same doctor all this time? are they treating 6 diferent coinfections? Is this how they treat lyme with one protocol after another? or do they change because one is not working? or because of side effects. How long have you been being treated?

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