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Possible European Lyme or Other Tick-Borne Illness

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Posted 6/23/2010 8:00 PM (GMT 0)
edited to remove

Post Edited (RitaA) : 4/5/2011 11:02:58 PM (GMT-6)

Posted 6/24/2010 4:27 AM (GMT 0)
Hi RitaA. (From Mississauga...first appointment with probably same Dr (since there aren't many Lyme Drs around!) in July). While I'm no expert in the field, my IgG protein test from IGenX came out ++ in 3 bands, 31, 34 and 58. Only first two from my results are "diagnostic" in Canada. I learned however from my MP Dr in BC that band 58 is a legal diagnosis for Lyme in Scotland.

I too don't know where I was infected or when. However I worked in northern England in 1998 - makes me wonder!

I was interested too in the comment about the rash. My rashes come out like clockwork before the pain hits fully again. Never thought I could set my watch on a rash. No Dr has ever equated them with my myriad of symptoms. I had it biopsied once. Came out highly inflammatory with unknown cause.

Best of luck
BJ
Posted 6/24/2010 5:44 AM (GMT 0)
OK .... so I'm going from memory and you know how that can be ...

I think there are 3 strains of Lyme in Europe - not sure if Finland is included in that.  They do have a little different "band signature".  The German equivalent of the CDC thinks that - for one of the strains - band 58 is indicative of neuro lyme.  I can't remember where to find it, but Germany submitted an addendum to the IDSA hearings and urged that they reconsider the guidelines.

There are European Lyme boards.  Couldn't find the French site I found a while back, but I did find this

http://www.lymeneteurope.org/forum/viewtopic.php?f=6&t=491

It'd probably be good to ask these same questions on one of the European boards.  It's bad enough to have "regular" Lyme - trying to treat an exotic version is even worse.  Hope that soon you'll find effective treatment and start to improve.  I'm tired and out of energy tonite, but I'll try to do a little more research tomorrow.

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