If anyone wants to Moderate this forum...

Hi CG,

If you want me, I will help...   You have much on your plate and I honestly don't mind helping.

Denise

Sorry OneWearyChick,

Censoring is fair when a member brings up a topic yet doesn't listen to the facts and evidence that was posted.   And when that member keeps bashing and bashing and putting down others.

That's when it's time to delete all the negativity. 

Again, this is a support forum to help others, not bash and insult others.  Just my humble opinion.

There are rules in this forum and those rules are meant to be followed.  If a member doesn't want to follow the forum rules, then action must be taken.

Denise

CajunGrl


I think you are a great moderator too

I only got upset, because I really dont think you clearly read my posts, thats all.

motox,

I aprreciate that. It's very hard making a decision especially when I am dealing with pain, sickness and barely being able to walk most days. I really try my best to be fair. I really didn't mean to offend or hurt anyone here.

 Sorry OneWearyChick,

 

Censoring is fair when a member brings up a topic yet doesn't listen to the facts and evidence that was posted.   And when that member keeps bashing and bashing and putting down others.

 

That's when it's time to delete all the negativity. 

 

Again, this is a support forum to help others, not bash and insult others.  Just my humble opinion.

 

There are rules in this forum and those rules are meant to be followed.  If a member doesn't want to follow the forum rules, then action must be taken.

 

Denise

Denise, I'm not sure if you are talking about the recent incident (the labs post) or another. No one wants to bash anyone or put someone here down, it is just that there should be a more open allowance of information. Personally, I disagree about the censorship, just because you or I may not agree with what Motox's or another's theories or questions  doesn't mean we should "censor" , does it? Where is the honesty in that?  What you may deem as negativity others may see differently and to those people by sharing what they know is meant to be supportive, not meant as bashing or "going against the grain".

You are right, we should be supportive, but we should also be open and honest in the hopes of helping fellow members not shutting them down or turning them down because they don't share the same beliefs, right?

 

Denise "Censoring is fair when a member brings up a topic yet doesn't listen to the facts and evidence that was posted. And when that member keeps bashing and bashing and putting down others."

Denise, please just lets stop this, I already agreed to stop with that post.

Look, you are bashing right there. And there are no facts and evidence, that was the whole point of the thread if you read it.

The sad thing about this is....... The people who posted on that thread.... Not one of the orginal people in the thread had an issue with anyone. It was other nubbing in, which is fine, but realize that no one said anything to you guys. And did anyone from that thread complain that they were being bashed on? no...... The people that were complain about being bashed on were people who didnt even post to the subject, they just posted because they disagreed with it.


Also Denise

CajunGrl can say whatever she wants, shes the moderator, its her job, so I am not reffering to her.


See, even OneWearyChick is agreeing with me.

If you dont like a post, just ignore it and read another. Now if a post is directed to you, that is different situation and apporpoate action should be taken.

Does this make sense.

Also OneWearyChick is right in a way "You are right, we should be supportive, but we should also be open and honest in the hopes of helping fellow members not shutting them down or turning them down because they don't share the same beliefs, right? "

Thats how I felt....

Just because you guys didnt like what I had to say.... its like you tried to shut me and others down.. But look at all the posts about how good Lyme labs are...... They are not getting shut down

end, thanks for hearing me

Hey CG, I'm always happy to see you on here and I support you as a fellow Lyme sufferer and in your role as forum moderator. You know what the forum boundaries are and you are entrusted to use your judgment to ensure they are respected.

I am glad to know there are other Lyme forums that have broader (or maybe no) boundaries for the members. People should have a place to go to discuss things to the extreme that they need. I'm also glad that this forum is as it is because I also think it is important for people to have a place where they know they can participate in a peaceful, uncontentious environment. The culture here is supportive and positive. Thank you for all you do to keep it that way.

Rose

OneWearyChick said...
 Sorry OneWearyChick,

 

Censoring is fair when a member brings up a topic yet doesn't listen to the facts and evidence that was posted.   And when that member keeps bashing and bashing and putting down others.

 

That's when it's time to delete all the negativity. 

 

Again, this is a support forum to help others, not bash and insult others.  Just my humble opinion.

 

There are rules in this forum and those rules are meant to be followed.  If a member doesn't want to follow the forum rules, then action must be taken.

 

Denise

Denise, I'm not sure if you are talking about the recent incident (the labs post) or another. No one wants to bash anyone or put someone here down, it is just that there should be a more open allowance of information. Personally, I disagree about the censorship, just because you or I may not agree with what Motox's or another's theories or questions  doesn't mean we should "censor" , does it? Where is the honesty in that?  What you may deem as negativity others may see differently and to those people by sharing what they know is meant to be supportive, not meant as bashing or "going against the grain".

You are right, we should be supportive, but we should also be open and honest in the hopes of helping fellow members not shutting them down or turning them down because they don't share the same beliefs, right?

 Hi OneWearyChick,

I just posted this on another thread as there is a huge difference between people expressing their opinions and views and Facts.

The problem I see is that people are not looking at the facts which is: Fact: IgeneX does 3 things that enable them to get better tests. 1.  They used Human specimens from early, middle and late stage lyme to make their probes. 2.  They used specimens from 3 different locations to get a good sampling of all lyme strains. 3.  They use a stronger solution to separate the bands so they get better results. IgeneX has been under so much scrutiny by the FDA, state of California, and state of New York and they passed all the audits. They are a good lab trying to help people. Fact: When Quest, Labcorp, etc. make their lyme probes they used Rabbit antigens from 2 strains of Lyme compared to IgeneX who uses samples from Human lyme patients from all over the United States and Europe and from patients who had early, middle and late stage lyme. Also, when a western blot is done there is an acidic gel that is used to separate out the bands. Most labs use a 10% gel. IgeneX uses a 12.5% gel so they get better separation of the bands. More information: http://www.prohealth.com/me-cfs/blog/boardDetail.cfm?id=1157982 Thus this is not about opinions, this is about why IgeneX is more accurate in their testing.   Why do people have a problem with this?   This is what I don't understand.  When I was given the choice to have my blood sent to IgeneX by my doctor back in 2000, I said yes.  I'm happy I did because I didn't want Rabbit antigens being used. Thus, I feel there is a difference between opinions and facts.  I would rather have the facts, but that's me. Denise It's all about the Immune System mixed with a large dose of Positive Thinking and Detoxing Daily!   This song is about my years with chronic lyme since 1995 and being symptom free for over 4 years:  http://www.youtube.com/watch?v=ds81S61UvPA

Cajun Girl,

You have done a wonderful job here.  I well remember the discussion to close this board due to overly political posts, arguing and rule breaking.  You got this forum back on track as a place of support.  That seems to be what has been lost here.  This is not a place to argue treatments or which lab is better.  It is a place where people experiencing similiar issues support one another.  That it!!

This is considered a private board.  That means there are rules to be applied.  The focus of this board is support.  It is not to dissect treatments, labs, doctors, politics or anything else.  If someone can't be supportive then indeed, they need to find another board to post to. 

CG, you have done just that.  You have helped this to be a place of support.  I have seen so many here get support.  That is so important!!  I have watched you fight your disease, add a disease to your plate, deal with the death of a loved one and still you find time to be here for others.  You are an angel!!!  Moderating this board can really take it out of you.  You have people challenging your decisions and worse!!  Please don't take anything here personally except the positive!!  You are very loved!  Please always remember that whatever your decision will be. 

Cajun Girl, Please don't quit. I agree with you in having people follow the rules. If they don't want to comply, they can go to another board. You do a great job. I know you've been very sick and it must be hard to be an administrator. I haven't seen any posts that you've shut down that I didn't agree with. We're here to support each other and learn from one another - not bash and argue.

Hang in there - you're doing a fantastic job. I'm here to support you 100%.

Victoria

"Fact:

 

When Quest, Labcorp, etc. make their lyme probes they used Rabbit antigens from 2 strains of Lyme compared to IgeneX who uses samples from Human lyme patients from all over the United States and Europe and from patients who had early, middle and late stage lyme.

 

Also, when a western blot is done there is an acidic gel that is used to separate out the bands. Most labs use a 10% gel. IgeneX uses a 12.5% gel so they get better separation of the bands.:

 

 

 this is what I mean... Someone reads this from a site that supports Igenex. But you know nothing about lab testing.

The gel is 10% for a reason, you cant just read this and think that it sounds good. I bet no one even knows anything about how they really do these lab tests. Well I do, and Im telling you.................

And the rabbit to human thing is not that easy either. There is a reason for it.

CG,
I know that you are doing one heck of a job here!!!
It seems to me that we, as 'Lymmies', face enough argumentative, negative and down right nasty people in our road to recovery. Often enough, I don't agree with others that post here on HW, & have even 'popped off' with something I shouldn't have - but I don't have to keep trying to make others see things my way.

We are very individual creatures, why is it so hard to understand that other's see things in a different light? It's not like we are all infected with the exact same strain of any one of the possible combos of tick born illnesses. We also vary greatly with the other conditions that we must live with.

I don't read the Lyme Labs thread - I sure don't need the extra aggravation in my life.

I guess I just don't understand why we can't play nicely with others...