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Maryland LLMD Pls???

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Lyme Disease
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Posted 8/5/2010 6:27 PM (GMT 0)
I had been following the Germantown doc and thought I'd go to him, but he's not excepting newbies... neither is Dr S. Who else could be a good candidate to cover chronic lyme plus co-infects.???? I'm willing to drive or fly, but it can't be way too expensive.

Thanks so much to whoever can help me out.
Posted 8/5/2010 7:13 PM (GMT 0)
Too bad about the Germantown doc not taking new patients. He has a good reputation and is good at solving lyme and coinfections issues.

Are you at all interested in natural medicine or do you prefer conventional medicine?

Gary
Posted 8/5/2010 9:38 PM (GMT 0)
I was lucky in that I got symptoms in the winter when his client load is a little lighter and had no problem getting an appt.
I know of two other docs in the area that have treated lyme patients long term and have used IV in some cases. They are not LLMDs (not members of ILADS) one is an internist and the other a rheumatologist. It may be worth it to call and see what kind of testing they do. I have their information, if you're interested just email me :)

It is "high season" over here in MD for lyme. I would suggest getting in to see someone knowledgeable about lyme for now and then in the winter calling Dr.J's office.
Posted 8/5/2010 11:18 PM (GMT 0)
Gary, I'm interested in natural medicine, but I also want IV meds. I've gone on them in the past and they helped my symptoms enough overall to let me know that's what I need. Then I'd like to add natural remedies. I also want someone knowledgeable about co-infects for I imagine that's a big reason I never got well and stayed so fatigued.

And thanks lylaso for your remarks. Maybe I'll just slide for now like I've been doing w/ some oral meds and just wait for dr J.
Posted 8/6/2010 11:45 AM (GMT 0)
Just to let you know, Dr. J has publicly stated that he usually reserves IV for those who are having cognitive difficulties (like not remembering their kids names). I'm not sure of your symptoms and he may very well suggest IV, but I wouldn't want you to be disappointed if you went to him and he placed you on oral meds. LLMD's, especially, have their hands tied because if they offer IV too many times it puts up a red flag.

He is pretty good at sorting out co-infections. He orders a variety of testing for those and may clinically diagnose others. He's one of the few LLMDs to use Clongen and they perform wet mounts for bacteria (like Bartonella).

Are you local?
Posted 8/6/2010 2:45 PM (GMT 0)
thanks again for the advice, you're right... I'd be very disappointed if I couldn't go back on Rocephin. I used to have meningitis and encephalopathy for a decade, to the point of becoming suicidal and Rocephin cured me of those. My lyme is much more neuro than ortho. I have many cognitive issues and neuropathies. The only reason I got off Rocephin last time was that I went to a diff doctor that overdosed me and then I had gallbladder issues so I had to stop. The plan had been to stay on longer until that happened. That's been close to 3 yrs ago now and the headaches are coming back.

I'm not local, but will be. I live in Fl and there just aren't any real good docs here and I'm sick of being so sick and know that my options here aren't good enough... so I'm going to move. It's a big undertaking, but I feel as if my life depends on it. I've been out of work for 3 yrs, have 0 social life, 0 stamina on most days and just lie around like a lazy bum that I never was before and hate being. Can't live this way... so I plan to move in hopes of improvement.. Thanks so much for the advice.
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