My weirdest symptom yet - anyone ever had this?!?!?!

Okay so I was diagnosed with neuro LD back in 06' - never have I had anything like last night. I woke up (so of course was half asleep - but woke me up quickly once it started happening). I started trying to walk to the bathroom and was very lightheaded (not new) and no matter how straight I tried to walk my body literally turned sharply left into the bed, dresser, wall, etc. My husband had to guide me to the bathroom so I wouldn't "turn" and as soon I stood up off the toilet and started to walk I walked left into the walk (have a bruise on my wrist where I slammed my arm into the doorway). He had to guide me back into bed. I was lightheaded and a little nauseated for most of the night. The next time I got up a few hours later it was still there but not to bad I couldn't control enough to go to the bathroom on my own. By morning I was just really lightheaded but the "urge" to go left was gone.

This is the strangest symptom (and I like you all have had plenty) have ever had. Any thoughts?!?! I recently had an MRI and it didn't show any abnormalities - except a possible pseudo tumor (which they ruled out because the opthomologist said my eye exam was normal). So the neurologist said it was "clean".

Anyone had this happen to them or anything like this?

Thanks everyone! Blessings to all,
Leah

Ashley:

I have had this happen to me for a couple of days. It wasn't at night, it was during the day and I smashed my left sholder in the door frame probably 10 times. My husband was not home, so I had to do what I could by myself. Fortuately I realized this soon and I started to hold the baby on my right arm. I was afraid I was going to smash her into the door frame. I was really really dizzy. THis happened a few weeks ago, I don't remember if I was on abx or if it happened right before I started treatement.

Post Edited (Simela) : 9/12/2010 5:32:42 AM (GMT-6)

Hi Leah,

I had this problem last summer when I was very sick with Lyme. I would veere to the left and found it nearly impossible to walk straight. It did resolve after several weeks on antibiotics. I now seem to have neuro damage where my brain doesn't seem to communicate with my legs very well and I have difficulty especially when I stand up to begin walking. Once I get going, I seem to be okay but can tell that something is not right. My neuro has been recommending IVIG and I hope to begin treatment in October.

I hope that this issue resolves for you quickly.

Gary

Trav, please tell us (me) what NMH is? 

Cajun Girl is quite right, of course. Do talk to your doctor. However, to put your mind at ease, I had the same symptom. I've had it happen to me several times. It passes, and goes away completely with treatment. My doctor was not alarmed by it ... come to think of it, he has never been alarmed by anything. I guess I find that comforting!!! Yes, there is something going on in your brain, most likely some swelling, but it should resolve with further treatment. Stay away from the stairs, is my best advice to you!

Oh yes, I have had this many, many times.

Traveler is talking about Neurally Mediated Hypotension - basically a drop in blood pressure. I thought of that when I first read your post - either that or something else similar I have also experienced such as vaso-vagal response, or postural hypotension.

I believe it is common with Lyme - I was told by my previous LLMD that it is caused by dysfunction in the autonomic nervous system, one of the systems Lyme likes to mess with.

I have experienced bad bouts of this problem from time to time, to the point that I dreaded getting up from sitting down. And most always, I hate to squat to look for something near the bottom shelves in stores because getting back up again is always a problem - it can be embarrassing too but I try to remember that most everyone is absorbed in what they are doing and not what discomfort I am experiencing.

The worst episodes of what a doctor called "vaso-vagal response" I have experienced a few times: waking up in the middle of the night, in a sweat, feeling dizzy, ears ringing, nausea, and feeling faint - all while still laying down - the episodes would last maybe 20 minutes.

I would definitely tell your doctor about your experience. My previous GP and current GP never expressed any real concern about it - just that my BP at times tended to be "a little low" and that we should "watch it."

But I too don't believe you should automatically attribute everything to Lyme disease.

Post Edited (spaztick) : 9/14/2010 1:45:50 AM (GMT-6)

My blood pressure has been very low for years, so that would make sense. I am also afraid of hights--which I was never before and I feel dizzy when I get up on a step latter which I did not experience prior to lyme.