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QIFT test , have been advised to have this test done, anyone else had the test?

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Posted 10/12/2010 10:26 AM (GMT 0)
Hi All

Am being treated for lyme and CFS (possibly the same thing?) at breakspear. A major symptom is fatigue.

They have advised me to have the QIFT test : Auotnomic monitering and quantitative inotropic fatigability test.

http://www.breakspearmedical.com/files/neurophysiological_assessments.html

Would be interested to hear from anyone who has had this test

Thanks

Maxi
Posted 10/13/2010 8:36 AM (GMT 0)
Hi Maxi........I hope you're well. Although I haven't had chance to read this article I've posted you a link to the page. Look down the page and find Neurophysiological Tests and you'll find the QIFT test explained. If I do get the chance I'll read it.

http://www.health-spy.com/identification.html#qift

If the members on here are not able to advise you it's probably not a common test associated with this disease, that's not to say that the test may not help you somehow. Did you ring BS? Find out what they hope to find out and how the test will help.

Mik.
Posted 10/13/2010 9:40 PM (GMT 0)
Hi Mik

Great thanks for that will have a look. Went to BS today to pick up abx and forgot to ask. think i switch from forgetting eveything to denial!! I remember dr m saying sometimes an infection can effect the brain wiring and can cause an abnormality, in my case breathing, this is why she wanted the test. She also said this was possible to reverse depending on the results. so actually i have answered the question on why . I did actually book it. Its in December. I figured they would not have suggested it unless they felt it was neccesary, they are the experts and I need to have faith in them.

Am cross with myself today as have been out most of the day and didnt take all my supplements! back to normal tomorrow.

How has your day been Mik?

Maxi
Posted 10/14/2010 8:09 AM (GMT 0)
Hi Maxi, LD does affect parts other bugs cannot reach, breathing being one of them. But treating the cause and not the symptom is the way to go in my opinion.....if it truly is a symptom of LD in your case. And if your GP can't diagnose the problem (has he sent you for any tests?) and/or all the tests come back negitive then it could be due to LD. BS wanted to have me in to do £1000.00 worth of allergy tests as I kept having sinus trouble, but I knew my sinus' only had only started to fill up as my infection got stronger.......now a year or so on after treatment they are practically clear and don't cause me problems. I've already spent around £4000.00 on treatment and simply couldn't afford the test, which to be honest, I thought that it's was the LD that needed £1000 spending on it and not my runny nose. But breathing problems are more serious and if you think the cost, the tretament and the out-come are worth while then do it. Now I'm not saying that I wouldn't have had it done if I'd have got the funds I possibly would have.

My day was good yesterday thank you, I hope yours will be good today.

Mik
Posted 10/20/2010 12:08 AM (GMT 0)
Hi Mik

Not been on for few days been having stress out. Bs wrote to say they wanted test as they think I have dysautomonia. of course i looked it up on the internet and got in a right panic! it can be triggered by lyme infection at best it can get better at worse well its degenerative. Have booked the test its december. Until then I will try and stay calm! I think you are right about treating the cause, I am sure my gps dread me coming in as its just not straight forward. i guess its frustrating for them too. Is your gp supportive?

They have also asked me to have cd57 test . I see you have had this. How much is that test? It will be interesting if i get the same abx as you, so far its just doxy. Did you also get prescribed supplements?

am glad you have had a good day, long may they stay. It must be a releif.

Maxi
Posted 10/20/2010 3:13 PM (GMT 0)
Maxi:

What other tests have you had done for your fatigue? What are your other symptoms that make them want to do this test?

I suffer from dysautonomia but LLMD thinks it will go away.

Susie

Posted 10/21/2010 8:31 PM (GMT 0)
Hi Suzie

Really you have it too. How does it effect you ?, its been freaking me out. I get a sort or gasp every now and then and other times I feel like I am not breathing properly like its hard work and I cant get the air in. This is worse lying down. Sometime I wake finding it difficult to breath and dropping off to sleep. I have found sleeping propped up a bit has helped!

I had alot of tests a couple of years ago before they diagnosed cfs. I had alot of blood tests. I know my Iron was low a couple of yrs ago when I took the Iron I improved but cant tolerate Iron tablets. My Thyroid is normal but on the lower side.

The reasons for the test is the breathing and the fatigue and at what levels they are at. She said that they could then see what appropriate action could be taken.

Does anything help or make your dysautonomia worse?

How is your recovery going?

Best wishes Maxi
Posted 10/21/2010 9:17 PM (GMT 0)
Hi Maxi

I suffer from really bad fatigue, anxiety attacks for no reason with palpitations, hypotension like 90/45 with fast pulse, dizziness and disequilibrium, probably other stuff I have is related to this too.

Everything gets worse with lack of sleep (does not help that I have insomnia) not drinking enough water and any kind of exertion.

I have not been tested but I think my Dr is well versed enough to know and I also trust him when he says it will get better, many people with Lyme get these symptoms and it would be extremely rare for you to have the progressive type.

Please don't stress out too much about it as it will make you worse, have you tried anything for anxiety?

Susie

Posted 10/21/2010 11:18 PM (GMT 0)
Hi Susie

Yours symptoms are very similar to mine. I think the insomnia is part of it. It seems a lot of people have sleeping probs. Thank you for your reassurance I keep saying to myself dont flap! the doctor has tried me on several things for anxiety. I always seem to get severe side effects and increased anxiety. The only thing that helps is diazepam but I only have one if I am really bad as they dont give these out much as they are addictive and I dont want to go down that road.

I try camomile tea which calms me a bit. Any advice on this welcomed. Not sure what medication is used in USA.

Did your sort out supplements you need?

Maxi
Posted 10/22/2010 1:48 PM (GMT 0)
Hi Maxi:

I'm taking that supplements its a wonder I don't rattle.

I was taking sleeping pills and Xanax to help me sleep but my insomnia was getting worse. I decided to wean myself off the mind altering drugs due to all my CNS problems. I have been much better in the sleep dept since like 5-6 hours.

I find Valerian root relaxes my racing mind so much, I take 4 capsules at night and now I go to bed not worrying about sleep. Any sleep I get is better than the drug induced kind I was getting.

http://socialanxietydisorder.about.com/od/treatmentoptions/p/valerianroot.htm

3 months ago I bought the book from fatigue to fantastic and I follow Drs T's protocol and I use his recommended supplements and NT factor (I use his suggestions for my fatigue not the Lyme). I just bought his sleep formula (which has Valerian in it), will let you know if it works for me. Plus I have been on antibiotics now for a month (took 4 years to get the correct diagnosis, don't want to go there)

I do not feel anything benefits from all this as yet but would hate to think what I would be like without them.

My immune system is shot and I have 4 co-infections going on which they are in the throws of treating, so I am keeping my fingers crossed.

Try the Valerian and read the book, it might help you.

Susie

 

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