knees collapsing

HI Bucci!!
I'm really sorry, but I had to giggle a little at your post- I just got past a bunch of this just 2 months ago!! My knees give me grief, but it was my back/neck/arm that was really hard for me to live with! So I guess it went from my house to yours! Sorry!

I used a whole lot of ice, heat, massage, pressure point pressure, gentle stretching, etc. to get past it. Just don't give up! Go get physical therapy - if you can. Make sure you ask about exercises you can do at home & concentrate on learning to do them properly.

So far I have had p.t. for my arms, back, hips and have been careful to learn the exercises that I can do at home. Using them is how I got rid of the last batch of muscle seizing/cramping - oh and it takes time....

I do hope this helps at least a little! I am so sorry for the pain you are in!!

(((((Hugs)))))

Hi Bucci, I've had similar problems and nerve pains that start in my right shoulder then quickly rush down my right arm into my hand, for a second or two it renders my arm useless then is gone as quickly as it came. The way I have discribed it is like eating the hottest chilli pepper ever and having the burning/tingling in just a few concentrated seconds, but sadly without the taste. I also, for a period of about 2 weeks, used to have problems with my knees buckling but mine always used to feel like they wanted to bend backwards, then because they obviously couldn't they'd give way in the right direction. A very odd feeling!!

My point is........is it possible that there are a group of/single nerve(s) that is linked in some way as to cause the same.......right arm pain and buckling knee problems or is it a coincidence, LD is just affecting the same nerves in me as in you at the same time??

After months (17) of ABX the knee problems have long disappeared and the right arm pain had gotten lots better, it still reminds me every day it's not gone away though.

Hope you feel good soon.

Miki.

Hi Bucci....

I'd be happy to share the protocols and treatments I've had over the last 4 years. Yeap I've kept logs and written things down but some of it take some deciphering now as the "fog" has lifted and I'm looking at it with new eyes.

I'll try to keep it as short as poss.......promise.

Bitten Sept 2006 Hungary..................3 weeks later EM rash (no other symptoms)..........very smart brother who told me to see Dr for ABX as could be LD related.........Dr gave me 3 months of Doxy 1 x 100mg tab 2 x per day. Great......all sorted, forgot about it.

7 months later, around july 2007 - flu like symptoms, started to lose the ability to add together numbers, joint and nerve pain, depression, cognitive problems, stiff neck, numbness + tingling, fatigue plus others.............. but at the time never thought about LD.

Very slowly the mental effects creeped in, LD started to destroy my life and my soul. Big anxeity/apathy, getting lost while driving and walking, doing and saying things I should really not have done all with the added pains of all the above and problems that intermittantly would call just to take part in the party. I started, or had, become another person who believed they had MS and an on coming development dementia.

After the usual story of seeing numerous Dr's with no joy I decided to do my own research (which would have been a struggle without my wife), sure enough LD smacked us in the face. I then found an LLMD who dx me with LD clinically, started me on treatment straight away and put me on a detox diet. That was in August 2009. My WB was strongly positive.

Right sorry to babble on, here's the ABX protocols.

AUGUST 2009 started 100mg Doxy 2 x a day then doubled it around 1st Oct 2009.

Then added.

METRONIDAZOLE – 1 TABLET THREE TIMES A DAY (400mg) with the Doxy.

1st FEB 2010 - Tablet change.
AMOXICILLIN – 1 TABLET 3 TIMES A DAY (500mg) (6 weeks)
AZITHROMYCIN – 1 TABLET A DAY (500mg) (6 weeks)
TINIDAZOLE – 1 TABLET A DAY (500mg) (6 weeks)
Doubled dose of Tinidozole from 15th March 2010.

28th August 2010 - Tablet change.
ARTESUNATE 20mg – 1 x FOUR TIMES A DAY FOR 3 MONTHS.
AMOXICILLIIN 500mg – 1 X THREE TIMES A DAY FOR 4 DAYS FOR 3 MONTHS.
CLARITHROMYCIN – 500mg 1 X TWICE A DAY FOR 4 DAYS FOR 3 MONTHS.

I was given the same tablets as above for another 3 months until the end of Feb 2011 when I will be visiting my LLMD again. Progress has been painfully slow but now with the progress I have made I hope I will be given the all clear and be able to stop the ABX. I now have been mostly symptom free for around 2 months, apart from some that could be perminant nerve and joint damage ie.....I've alway got a mild stiff neck, sore right thumb joint, some left cranial tingling and the right arm/shoulder tingling. Apart from the right arm tingling all the others have been with me from the start of this illness, the right arm started about 7 months ago. Of course I'm only hoping the Dr will stop the ABX, if she says not I will do as I'm told.

Suppliments......

CHLORELLA – 6 TABLETS AT BEDTIME (500mg)
MILK THISTLE – 2 TABLETS TWICE DAILY (175mg)
EPA/DHA - 2 TABLETS AT DINNER TIME (1000mg)
B6 – 2 TABLETS TWICE A DAY (10mg)
FOLINIC ACID – 1 TABLET TWICE A DAY (800mcg)
PROBIOTIC – 1 TABLET TWICE A DAY
ZINC – 2 TABLETS TWICE A DAY (15mg)
B COMPLEX – 1 TABLET TWICE A DAY
MAGNESIUM – 1 TABLET TWICE A DAY (300mg)
FLAXSEED POWDER – 2 TABLESPOONS ON FOOD.
VITAMIN D – 1 TABLET TWICE A DAY (400iu)

I have an IR sauna I use most days and am on a gluten free, dairy free, alcohol free (emm!! Mostly), caffine free and sugar free. I haven't always stuck to this like glue but haven't strayed off the path that much. I also like to exercise if and when poss.

I hope this is of some use to you Bucci or anyone else who reads it - I know I was lucky enough to catch it early (with respect to some sufferers) which could mean it hasn't taken too long for me to feel the benefits. I feel good now and just thank my LLMD for saving, what I believe, would have been my life.

Take care

Miki.

mikazmat,

this is a great post and thankyou again for sharing all of this info and I see even more recently you are
on your way closer to the other end of the tunnel here.

this is very encouraging. I don't have the insurance for a full on treatment but also had so much doubt
anymore of which direction to go.

Your story is again proof to me that this is a combination of abx and the right supplements and detox and support and huge patience.

I am certianly not getting any better. The non functional days are way out weighing the functional ones and
as a result aside from all the pain and depression my life is completely unmanageable.

I am copying what you posted just to keep all the valuable info.

Please keep posting in when you can and even next few years just drop in a note so we know how you
are and keep the hope afloat.

So, did I read that right...none of the abx was IV ???

also I see you take magnesium. This has been controversy here in US that it causes relapse because of biofilms and magnesium. Fry labs in Scottsdale has done a lot of research on that and my Tick borne specialist who originally diagnosed me goes along with no mag. and my other lyme doctor completely took it out of his protocols and tells me even no epson salt bath.

Other doctors especially the natural protocol with no abx always use magnesium.

I read that Healing Centers of America. Dr Ryser thinks calcium is more of a problem than magnesium
supplements.

For me I think it flared up my whole health condition before I discovered finally that it was lyme. I was supplementing with it way too much for sleep and joint pain and constipation and migraine.
And I was still having all the symptoms but kept taking it because everything you read is how much we need magnesium.

Now I haven't taken any in over a year and in my blood work I have OK amount of magnesium but that may not mean anything either.

anyway Mikazmat , you are like a breath of fresh air with your success.

lots of love
Bucci