Here is the message I am trying to say with my following response( based on my experience and the experiences of those in the office where I am currently receiving treatment):
I do not think Lyme's effects the teeth as much as the teeth effects Lyme's. Whew - I know that statement will bother some people. But I have spent a year in treatment (my case was very severe) and have seen many people go thru this office and I have seen many miracles. But the truth is, some people have Lyme's and never have any symptoms (like my husband). And others (like me) are almost in done by it. What is the difference? A large part of it, I now believe, has to do with the autonomic system and how well it is functioning. Which has to do with tongue, jaw, teeth and oral function.
So, my dental history.
When I was six, I had my front tooth pulled (bottom of my mouth). This is, I have now learned, the absolute worst tooth to have pulled in your mouth as it is the cornerstone off all dental foundations. The dentist decided to pull that tooth because my mouth was small and later in life i I might have a problem with teeth coming in. With this decision he changed my life. Horribly. (I know he did not mean to to this - I have forgiven him!).
Because of losing that tooth all my teeth had to change position. Top and bottom. The left side of my mouth slowly begin caving in.
By high school I had braces to try and correct this - making it much worse because the orthodontist had no idea of relationship of teeth and tongue.
In my late teens I had my wisdom teeth pulled. They all were impacted and I got dry sockets in all off them. It took 2 months to recover from each tooth being pulled.
In my early 20's it was decided I had low blood sugar (glucose tolerance test). And severe allergies. And no energy. So I went on a strict diet, no sugar, white flour, etc. I greatly improved and my allergies went away.
But gradually I started getting sick again. Way too many aches and pains (I was only 30 for heaven sake). Disabilitating headaches/migraines. They were officially called cluster headaches because once you got one they would hit in clusters and last for weeks. Ironically one treatment for cluster headaches was to use oxygen. No one was sure why it was effective. With what I know now about
OSB it is obvious that the problem was that I was not getting enough oxygen - how simple. By now the the teeth had started their caving in - which meant the tongue could not take its normal path forward in my jaw, so had to go back in my throat. Which meant not enough air was being allowed to pass. But at the time using oxygen seemed like a weird way to treat a headache so I didn't choose to try that. So I used pain killers and caffeine to treat them. I have now learned that caffeine tightens tongue muscles, allowing easier breathing, helping the headaches. Some people need caffeine to help them sleep - again same reason. Caffeine tightens the tongue muscles, pulling it up out of the throat and allows for better sleep. Anyway, I was then diagnosed with fibromialga.
I took very good care of myself with diet and exercise and was able to manage my symptoms for another 10 years. Then literally I fell apart. in 2004 I missed more days of work than I worked (where as before I would never miss more than 2/3 days a year and always with a migraine). I felt like I was losing my mind with mental stuff. Started having seizures (actually they only got worse, looking back I realized I had been having mild ones for years), hormones went crazy, I went crazy. I was finally diagnosed with Lyme's. .Yippee I thought, now that I have a name of what is wrong, I will start to get better. I turned in my resignation at work and figured I would take the year off to get better. On the dental side: I had a cavity in every tooth in my mouth - and I had been having regular 6 month checkups. But my dentist was having physical problem and he let a lot of things go in his patients' mouth go untreated, so when he retired and I got a new dentist I was told how bad things were in my mouth and that I would probably need gum surgery. As well as many many fillings. On top of the lymes. It was a devastating year.
I met with a ND for 6 months (using Samento) and continued getter worse. So traveled to the Hansa Center. I knew when I left our house for the airplane to Kansas that there was a possibility I would not return - I was under no illusions about
how ill I was. Turns out my liver was shutting down from all the ammonia and Dr. J was not sure I would pull thru either (although he obviously did not tell me that at the time). I returned 3 times to Hansa Center over a period of 2 years, getting better each time. But could never 'stay better' (as Heathersdad states) and always continued to have these weird seizures (at that time Dr. J did not know about
OSB.) I returned to Hansa in 2009. Was determined to get these seizures taken care of. I was only there for a few days when Dr. J said I needed to have my jaw looked at. I was horrified. I did not want one more form of treatment, I certainly didn't want stuff in my mouth - I had been having dental treatment for the last couple of years getting all the fillings caught up and my teeth hurt and NO I didn't want an appliance.
But God and I talked and He said "Go" so I went. Turns out because of the caving in of my mouth and where my tongue ended up, my uvula (thingy in the back of the mouth) stretched 2ce its normal size and was catching on the epiglottis (base of tongue) and would wrap around it and I would quit breathing, sending me into seizures. Again, there were several times (when I went into seizure) the staff was afraid I would not make it. I was hooked up to several pieces of equipment, but it was the EKG reading that scared the doctor the most. Dr. R (the Dr. in Tacoma) treated me for several months with the appliances, trying to avoid surgery, but my poor body had had enough. So I had the uvula removed (snipped actually so it was an in office procedure). And the seizures stopped. I still had convulsions for several months, I am now down to only mind tremors on occasion - I am still a work in progress, like I said I had a severe case. (I am now so much better - was hiking 10 miles this summer, working in my yard, my brothers yard and my sister-in-laws yard - it was wonderful).
But I think many people who have cronic Lyme's are severe cases. I had been telling Dr.'s for years I was not getting enough oxygen. No one thought to look in my mouth to find out why I was saying this.
I rarely get headaches anymore. As I posted elsewhere, my once seriously ill mouth is now in great shape. The gums have regrown (unheard of in the dental world). I have seen people come into this clinic where I am now being treated and be treated for MS, ALS, fibro, migraines, heart problems (severe),high blood pressure, and with the wearing of the appliance be symptom free. Notice I didn't say cured. They will, at this point anyway(new research is coming out all the time), always wear an appliance part of the time. But who cares if your MS symptoms go away that you have to wear an appliance?
Mamyou - you mentioned crossing the mid-line. Absolutely essential. And you can begin to see why with my story - you change the whole autonomic system.
ok, this is a lot to type and a lot to read. I am sure I have left some things outs out, (and maybe included to many!). Please feel free to ask questions - I will try and answer them to the best of my ability.
Be Well,
Wacko Woman
Post Edited (wacko woman) : 1/7/2011 5:17:50 PM (GMT-7)