sitting here crying..test results negative.

Of course with the flawed testing I knew they would be but hearing it from the doctors mouth makes it so much more real. I'm sitting here crying uncontrollably and can't stop. Feel like everyone thinks I'm making it up or faking or something. I'll post results here when I get a copy tomorrow.

I'm just ready to give up and go on feeling like this or order doxy from some online pharmacy and start trying to treat myself.

Thanks for listening, going to lay down now. All this has taken so much out of me.

OK did you get a copy of your tests? Did they run western blot? Were there any bands positive? Don't give up. Fight for yourself. It took everything I had in me to keep fighting but I knew there was something wrong. I kept going and going and talking and talking about it until someone (my boss' wife) listened and referred me to a wonderful dr. who was determined to find out what it was. You will get there. It just takes so much patience but it will all be worth it when you start to feel better. Really. Keep posting here and asking questions and getting answers. That way you will know so much and be ready for the fight. Hang in there. It such a bizarre illness and lucky us gets the illness the medical profession doesn't know much about YET! I tested negative over and over again. It means nothing.

I will post results tomorrow after my appointment. I will get a copy of the results, don't you worry. This was just my family doctor. Was hoping he would be more sympathetic but guess not. He worked with me a few years ago when I wanted to get off synthroid and go on Armour for my hypo. The test they did was a lyme titre or something like that. I don't know if I put this in my earlier post or not because my memory is that bad but I printed a symptom list I found with areas to check if you have the symptoms. It said if you have more then 6 to see your doctor. I have like 20. I wish I was armed with more knowledge for tomorrow but what can I do. I pretty much havent stopped crying since I got the phone call (BIG check mark b cries easily on the symptom list). I dread it because I know I'm going to start crying tomorrow. He has all my records so he knows about the constant infections, heart palpitations I had back in October 2010 that he blamed on too much decongestant. I'm hoping I can convince him to at least try me on an abx. It's just so discouraging right now because I'm not really getting much support at home or from friends who seem to get their kicks telling me it's all in my head!

Thank you all for being there and being supportive right now. Hope to someday get on chat with some of you.

Please don't feel bad, I will probably be banned from this site but I have absolutely NO faith in the tests as far as accuracy. I have even read the very very sick come out negative for some reason or another.

I think it has to be a clinical diagnosis. U know your body, u know the symptoms I would go with my gut and try to help that body repair.

As far as what other people think, hon do not give it a thought, don't give your love for yourself away on someone's ignorance. It's between u and God and hopefully a doctor, I hope u can find one, I believe they are still administering abx in the earlier weeks of diagnisis. Take care of u, and let people live in ignorance because it takes too much energy at this stage of your illness to argue, u must spend what u got on u!! Lisa

I do not have a positive test anywhere, and never did an Igenex test(can't afford it) I was lucky to (FINALLY) find a Dr who, though he is not a LLMD he based his diagnosis of Lyme on my labs, reaction to doxy, and chronic symptoms. He did not put the dx. of Lyme in my file, either, but instead listed me as having 'Autoimmune Disregulation' as he felt the insurance co. would not question anything he prescribed that way. That is what Lyme is, pretty much. I got VERY lucky in finding someone who would work with me.

Don't give up hope. I may be in the minority here in saying this but really...if you have a Dr. you LIKE, see if he/she will work with you. SOmetimes the mention of Lyme makes Dr's turn their ears off and they will not hear another thing you say. Try going in with the theory that your immune system isn't working, see if they will simply treat your 'symptoms'. I made suggestions to my Dr, like "I have heard abx sometimes works for immune stuff, could I try that and see if it works?" I said something to that effect to my Dr. and he was already thinking the same thing and was ok with me being on abx long term. Once I herxed, badly, from the doxy HE made the connection that I probably had Lyme(well, duh...) and then it was smooth sailing. I don't even have to go in most of the time, he does most of his dealing with me via his nurses over the phone.

Is the *label* of Lyme that important? Or, is it more important to get the relief. If you think you have Lyme, your symptoms fit, you have ruled out everything else, than you are probably right. Get the treatment you need to manage your symptoms and don't worry about the 'label' as honestly, you will get farther with your treatment without the label of Lyme unless you are CDC pos. and even then, there is still so much controversy with what is 'acceptable' treatment for Lyme...

I hope you can find a Dr. who will give you some relief. Would you consider alternative treatments? You can be your own Dr. that way :)