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Fuzzy Lyme Brain

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Posted 2/17/2011 8:02 AM (GMT 0)
Any advice for lyme induced brain fog? I am only in my 20's but i feel like i have alzheimers.

Walking into a store and totally forgetting what you need to buy...

Forgetting what you're talking about mid conversation...

WICKED FUN!!!

the weird thing is i feel like ive gotten better at memorizing random facts or recalling detailed information... but when it comes to actually living life i really am walking around in a fog. different parts of the brain i guess...

any advice? would love to hear from others with fuzzy brains especially if you were able to cure it. herbs? supplements? therapy? ill do anything...

PS i dont want to hear about antibiotics thank you. been there. done that. over it.
Posted 2/17/2011 12:10 PM (GMT 0)
Can't give you any advice as I was just coming on here to ask same thing, how long have you had it for cos I've had mine for 4 months now an it's really starting to get me down, hope you get some answers an just to let you no your not alone xxxx
Posted 2/17/2011 1:14 PM (GMT 0)
079

My brain fog was so bad I would get lost in the grocery store or just wonder off for no reason cuz something

caught my eye....and then forget why I was even at the store and how I got there. You mentioned you were going

to be starting IV meds...After my second round of IV meds is when my brain fog lifted 85%. It could actually carry

on a conversation without having to stumble over words.
Posted 2/17/2011 1:34 PM (GMT 0)
Harleyrider
Thanks for that I'm just waiting for my LLMD to get in touch with my doctor then I start the meds did u feel worse before u felt better cos I've been told this, an do u feel almost normal now after treatment cos all I keep thinkin is I want my life back now I've just had enough xx
Posted 2/17/2011 1:50 PM (GMT 0)
When I said you are lucky I really mean you just dont understand how lucky you are . . . When a person with lyme can

get treatment like you are going get this early on and just finding out well hun you have a great chance you will recover

fully from this... Those of us whom never had the rash or symptoms until years later are the long term suffers of lyme.

Oh God Im praying you will come out of this with flying colors streaming out the back of your pants....WOW!! What an

analogy. I am actually on IV meds now and have been since Oct 2010, looking to finish around springtime. Then I will

try and maintain good health until I need to come back to my LLMD for maintanance treatments when needed. Thats why I

say you are lucky you have found out as soon as you have and the dr isnt dragging his feet. Not sure what normal is anymore

my normal is no longer the normal I once had...I just have to deal with the normal of living with lyme right now. Do I miss my

old self . . . YES!!! More than I want to admit.
Posted 2/17/2011 2:05 PM (GMT 0)
I am the queen of post-it notes. I have to make lists and leave myself notes or else I woud never get anything done. I have a list I make at the begining of the week telling me everything i need to do every day. If I am not near paper I will tell my oldest son, who is ocd and he will remember for me...he also is awesome with directions, as I will go to drive somewhere and suddenly not know where I am...he is able to get me where I need to go.

So, yes. Lyme Fuzz here!
Posted 2/17/2011 2:15 PM (GMT 0)
LOL!! Lost so many of those lil post-it-notes even the brightest of colors.

I now use a spiral notebook and calendar. Kids are a great help...LOVE IT!!
Posted 2/17/2011 2:48 PM (GMT 0)
LOL!! RR!!
You gave me a good giggle t his am!! I read your post, and I laughed as I looked around my house & saw all of the notes I have pasted on the walls, on cabinets & numerous other things!! I'm beyond the keeping notes thing now, because I can't remember the notes!!! LOL!!! turn


I have plenty of fuzzies stored up in my brain!! smilewinkgrin They are growing into dust bunnies as we speak!

OK, I'll be a little more serious now. I have lived with brain fog so bad I couldn't hardly function for a few years. At one point it got so bad that I would go into a store & with in a half hour I was so lost inside that store that I didn't know how to find a way out.

I have found a few little 'tricks' that work for me. Frequently, just wearing a hat in the store will help. I sometimes need to wear sunglasses into a store also. This one is directly related to the flourescent lighting that stores use & how they can mess with the eyes & brain function.

I have had to use the hat, sunglasses, and a MP3 player in order to get what I need from a busy store. I have noticed that the MP3 player helps me keep my attention in a really strange way. It's like my brain is on overdrive and in order to slow it down I have to distract it from the random thoughts.

smhair I told you it was weird!!! eyes

In order to keep the brain fog in check at least some, I have to detox regularly also. This is the only thing that I have found to be effective in reducing my brain fog.
Posted 2/17/2011 9:03 PM (GMT 0)
Trav,

That's how I was in College - had to listen to music on my walkman to be able to study in the student union building or write papers in the computer lab...

Wish I could do that now...now I get too easily distracted and get into the music too much and forget what I'm doing...and can't read if there's music or TV nearby...

Wish I had suggestions for the brain fog but I don't, other than the detox thing, and also I find doing crossword, sudoku or other types of brain exercises (puzzles...) helpful.
Posted 2/17/2011 9:17 PM (GMT 0)
I can't go into a big supermarket alone. It puts me in complete overdrive. I put stuff in the basket and then take it out. I come out with some stuff but when i get all the way home I realize I got nothing I even went there for.

I have to go with a friend, we take separate baskets, I role off my way all around the store and get maybe two irrelevant things and meet her at the check out cause she shops like a normal person. Other days I get panic attack and leave the cart and buy nothing.

Why did I even bring that up??? AND I take all the brain cocktail stuff, Q10, choline inosotol, ginko DHEA,
I guess they are more like for activities like driving.
Posted 2/17/2011 10:20 PM (GMT 0)
So weird, I just recently am forgetting names like crazy. But strangely enough it comes when I am feeling the best in years! Been on antibiotics for almost 2 years. Kinda scarey cuz I was hoping the brain was recovering and was actually thinking of trying to not take the neurotin and see if the facial neuropathy pain was still there and the forgetting stuff kicked in. Oh well, maybe a "residual" from the antibiotics. LOL!
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