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Posted 5/5/2011 6:56 PM (GMT 0)
So I finally had my first LLMD appt. Just a quick question. I know the ELISA is a worthless test, but the doctor seemed to think that the 'equivocal' result I got  on it when tested by my PCP was significant. Why if it's useless test would she find this so valulable.
Posted 5/5/2011 10:13 PM (GMT 0)
Lyme tests are mostly inaccurate. However, a negative test does not rule out Lyme, but a positive or equivocal result is more meaningful than a negative test. The only way to get an equivocal or positive result is if the test did detect "something" - and usually that "something" is Lyme.
Posted 5/6/2011 12:23 PM (GMT 0)
Hi bbcoach,

My first test (over 7 months ago) came back 'indeterminate'....or equivocal.

The doctor I saw at the time (who I thought was Lyme Literate-- not the case as it turned out!) told me this was a negative test result and only showed that I had Lyme at some point in the past. 

 He was convinced I did not have a current infection even with all my symptoms! 

This is what most non-LLMD's will say about this kind of test result and often will not treat.  Or if they do, it will be low dose ABX for CDC standard 28-30 days.   Not enough IMO !  

True in that I did have Lyme--- way back in in the 1980's.  I was treated immediately and never got a single symptom until last year.  New infection according to my (now) LLMD. 

It was really a shame that I got this initial test result and had a doctor that blew it off.......because I had a long road ahead of me due to lack of agressive treatment by non LLMD's who did not believe I had Lyme. Next test came back Negative.   

Point being:  as Razzle said.....the something is Lyme!  Your doctor is smart in taking your equivocal result seriously!  

 

Posted 5/6/2011 6:19 PM (GMT 0)
Thanks Razzle and Cat111,

I am very pleased with my first vistit with my LLMD. She was extremely thorough(my examination lasted 2 1/2 hrs). She sent blood samples to Igenex and seems extremely confident that I do suffer from Lyme Disease. I guess now it's just wait and see what the results are.

I actually called my doctor and asked her about the test, and she said that with as insensitive as the ELISA is,  for it to register as high as it did was 'impressive'. Especially considering that she suspects I've had it since childhood (I'm 45 now).

Posted 5/8/2011 1:20 PM (GMT 0)
Hi bbcoach,

I hope you don't mind me asking, but what takes place in an LLMD examination, for it to take 2 1/2 hours?  I thought it would be merely asking a few questions, past history, short medical and blood tests.

Sorry to sound ignorant - I'm new to all of this, but am considering seeing an LLMD due to my symptoms.

Thanks.

Posted 1/15/2013 7:37 AM (GMT 0)
So bbcoach, what were the results of the test and of any treatment? We are all here to help and learn from each other - bad results and good. Thanks
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