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Posted 5/8/2011 6:55 PM (GMT 0)
Hi guys -- For those of you that have a Lymes Diagnosis can you please clarify for me....Is it possible to have Lymes Disease and NEVER have joint pain.  My doctors don't seem to believe that patients can have Lymes without joint pain.  I have heard of "Neuro Lyme" but even those patients have complained of some form of joint pain.  I do get muscle soreness and occasional joint pain but nothing long lasting and very subtle.  But, I also think that I cause this myself as part of anxiety/stress and thinking its Lymes.  Anyways, if you can just tell me if its possible to have Lymes (especially chronic Lymes)....Ive had symptoms for more than 5 years now.
Posted 5/8/2011 8:21 PM (GMT 0)
Hi there,

It seems to depend upon which strain of Lyme you have. I have never had much joint pain, but lots of nerve and muscle pain. Has a doctor given you a diagnosis?

Kirsty
Posted 5/8/2011 10:12 PM (GMT 0)
I had basically every symptom of Lyme EXCEPT joint pain. Mental symptoms were the worst for me... brain fog, anxiety, and fatigue.

-MysteryLyme
Posted 5/8/2011 10:57 PM (GMT 0)
yes me too. I had every symptoms except joint pain. Mostly all neuro but had muscle weakness, but never anything in the joints. That is a different strain of lyme so the two don't go hand in hand.
Posted 5/8/2011 10:58 PM (GMT 0)
What exactly is brain fog?
Posted 5/9/2011 12:27 AM (GMT 0)
Brain fog... basically... it feels hard to think straight. You can't focus your mind properly. Like something is distracting your mind but you can't figure out what. This makes us Lymies socially awkward because it can get real bad and make you forget what you're talking about mid convo... or walk into a store and totally forget why you are there. So pretty much "walking around in a fog". I have also seen people call this Alzlymers.

-MysteryLyme
Posted 5/9/2011 1:08 AM (GMT 0)
I've never had joint pain. My symptoms were mostly neurological: tingling, numbness, brain fog, fatigue, muscle weakness, vision problems. Muscle pain was a problem but my joints were fine.
Posted 5/9/2011 1:14 AM (GMT 0)
The only joint pain I had was in my elbows....nowhere else....no swelling, no redness just a tendonitis type pain.  

This elbow pain was my first symptom and it really threw me off track (thinking I did not have Lyme)  because I too was led to believe that if you didn't have swollen, painful knees then you didn't have Lyme.

So much misinformation out there!   So I attributed the elbow pain to arthritis, getting older,  etc.  So did all the (non LLMD) doctors I saw.  

It wasn't until my multitude of neuro and muscle pain symptoms reared their ugly heads that I began to suspect Lyme. 

As for brain fog:  In addition to the spaceyness, mine comes with a hot feeling in my head along with pressure-- like my brain is in a vice-- my ears will feel really stuffed up too.  Sometimes I can feel a pulse in my head-- a throbbing sensation.  Horrible! 

 

Posted 5/9/2011 1:34 AM (GMT 0)
Ok so it sounds like I do not have brain fog.  But I do get tendonitis which is odd.  Ugh, do I have Lyme or not?!?!?  This is so frustrating.......I wish the tests weren't so erroneous and also wish that there wasn't so much bad information out on the internet to confuse people!  Well, Im going to trust my doctor on this one (saw an Infectious disease dr) since he sees many Lymes patients and he said my symptoms are not in line with those that suffer with Lyme.  However, I am going to ask for a new test be done (for the 4th time) and maybe even find one of these "Lyme doctors".  Although I don't want to find a "Lymes Doctor" who just wants to get paid and treat someone for Lyme.....because I have heard ppl of being diagnosed with Lymes when they dont actually have it...

Thank you all so much for your help!

Posted 5/9/2011 6:13 PM (GMT 0)
Yes! im so glad u posted this! I have the same thing! No joint pain just that feeling of not feeling lik eurself. out of it, dizzy, pressure headaches, alot of that has cleared up for me though.. Im on the road to progression all of this definetly does get better!
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