Anyone Else Have A Short Fuse With Lyme?

I really did!  I'm only 7 weeks into diagnosis/treatment so I hope someone with longer experience posts too.  My espisodes were 3-4 weeks in to my first antibiotic (minocin) when everything felt like it was going haywire.  Not understanding what was happening, I switched from minocin to doxy.  The worst of the rage etc stopped almost immediately.

Now that I'm on a stronger abx I felt similar symptoms returning.  I started detox baths (and added the additional ingredients from post here) and an additional supplement L-Lysine.  Who knows what specifically is helping, but I do feel better.  Good luck!

 

I know what you mean. Lyme makes you feel out of control... but for me it's the negative thoughts that set me off the most. Thoughts like... why me... and nobody understands... These might be justified thoughts but they aren't good to carry around with you. They will make you crazy.

Every day is a new day offering the chance to improve and move away from this negative phase of life.

Just try to avoid stressful situations for now. Also exercise mellows me out. And sunshine.

-MysteryLyme

Like Mstery said, negative thinking sends me into a spiral of even more negativity. So this may sound like avoidance, but basically that's what I find keeps me level, avoiding thinking too much about much of anything. I play games, do puzzles, listen to the radio, anything to distract. Sometimes I still feel like I am just wasting time, but it's better than feeling on edge at everyone, and I just think to myself I will make up for it by living life more fully when I'm healed. :)

Wow! Hate to say it! Today I got a little short in the car when hubby was driving. This rain is causing severe pain all over and I shouldn't of gone out but he wanted the company.

Glad to know I am not alone. What's sad is, I'm easy going and generally very nice to everyone I meet. Lyme, on some days is turning me into a MONSTER!

hh

LOL, ofcourse, it is the rainy weather! It's depressing too.

We've had massive rain, my poor petunia is getting droopy!

HH

I fly off the handle at every little thing, but I also think that PAIN plays a huge part in lyme rage. I am so angry I got this, and I got it from my cat, who had a flea allergy, but back then (10 years ago) I was ignorant to her having fleas (I am SO clean....HOW is that possible...obviously NO knowledge of the flea cycle) and all the scabs that I would pick off her back were actually flea & tick bites that sucked the life out of her ;(

Like I said...TOTAL, SHEER, IGNORANCE on my part, and this was BEFORE I had a computer where I could've gone online to look *whatever* up.

I thought she had a food allergy even when the vet said it was fleas & that she needs flea treatment. Still STUPID, I didn't apply anything on her, and at that time I was SOOOO poor and the Advantage Flea Meds the vets suggested were very expensive, and I was going through a horrific, stressful time in my life, but....THAT is when my arms started itching and I would scratch down layers to the point of bleeding, then I'd have bandaids all over my arms. So, RAGE is BIG in my life. Often times I scream & yell at my sweet cat Simon-Love, which is IMHO...abusive, so I TRY not to yell at him...and NOT to get so angry over little, tiny issues a normal person would simply just blow off, however....I don't know HOW to NOT be enraged every day of my life. And expletives??? Oh....some you've never heard of.[/color]



My my aches & pains & rage & burning/stinging legs, my severe muscle cramping and my overall horrific pain in general to anyone.....anymore.

So,I also have: severe Spinal Stenosis, Degenerative Disc & Joint Disease, and an Abdominal Aortic Calcification with huge bone spurs all up and down my spine...and a Buldging Disc. And every night I PRAY for death because I don't know IF this pain is from the Lyme...OR the other diseases I have.

Thanks for reading this.....I know it was long.

Post Edited By Moderator (Traveler) : 5/19/2015 3:26:15 PM (GMT-6)

I too have experienced this uncontrollable feeling of rage and I really feel like smashing my whole flat up and then going out and smashing the whole world too bits.

Mine may be more to do with frustrating of not getting diagnosed and not been taken seriously.

I'm now at the point where my symptoms are getting worse day by day, and I'm just been left to suffer.

I recon once this thing gets into your brain, it changes ur mood.

It doesn't help that everything that I do seems just like a blur, all my experiences in the last 5yrs since I fell ill have just come and gone. I feel like I'm not part of my own life. It's as if im viewing everything from the outside.

Thanks I think my poor liver is so stressed over ALL these supplements. That's probably why my LLMD has said my liver, gallbladder, pancreas, & small intestine NEED HELP. I also have a heavy metal toxic overload, so I got a lot going on physically. It's no wonder I am angry!! Also: Has anyone heard of Pyrroluria?? Well THIS also causes RAGE....ANGER...so I joined the Pyrroluria group @ yahoo and have learned SO much. I would suggest anyone with this going on or any autoimmune issue to do your own research on Pyrroluria.

And Razzle....I will definitely get some Nux V, and Denise....wow...great info in general. Has anyone done any flushes? Like Liver/Gallbladder Flush, Kidney Flush, etc.? I'm sure I'm loaded with ammonia, and I have tons of parasites and I was put on 2 days of Biltricide last week to get rid of liver Flukes, which I had NEVER heard of. So I think you have to rid yourself of the parasites , then do the flushes so your organs are in better shape, then anything else your doing I would imagine will go much smoother.

And yes....WEATHER has everything to do with....well............... everything...if that makes sense. I live in the Seattle, Washington area, and we have had nothing BUT rain and cold and wind for the last 8 months. (Suicide anyone???)

And Lymster....I am relating SO with the impending doom. Infact I can relate to what ALL of you said SOOOOOO much.

The problem with me is....I THINK too much, and it sometimes (not always) gets me into trouble with rage/anger. I have time on my hands and so thinking is what I do the most of...and reading.

I was diagnosed clinically with Bartonella/Ehrlichia in December/2010. I have not done the tests for Lyme. I absolutely KNOW I have it and I've come to the conclusion that I don't have to prove to anyone that I do have Lyme. If someone wants to pay for the tests, I say, Go for it....then you'll believe me. Haven't had any offers.........
This is a GREAT group, and I thank you kindly for your input on the Anger/Rage issue.

Oh...Friday
This is another reason I'm back on an antidepressant.....Not liking the *real me* much.

Sheesh....................
Thanks


Blessings

Post Edited By Moderator (Traveler) : 5/19/2015 3:30:11 PM (GMT-6)

Hey There Deaconfrost.....We ALL seem to have SO much in common with this disease. Being a perfectionist enrages me as well, because I will never BE perfect, but I continue to try(sigh).........It is totally insane...and just another *illness* to add to the long list of other issues/diseases.

I try to read as much as my foggy brain can handle on Lyme, but I sure don't retain a whole lot. And...I have completely given up on trying to educate other people or TRY to explain what Lyme Disease is....and then the politics OF Lyme....and then I get enraged because *People* in general don't CARE about Lyme, and I think, Hmmmmmm....what if they get it.....then they WILL GET IT!!!!! (rolling my eyes)

For me, the PAIN and NERVE stuff ARE the worst. Every movement of my body creates pain, so I am NEVER comfortable....ever. It is being stuck in your own HELL with NO WAY OUT and no one to physically talk to about it. I mean what can anyone do anyway??

I had planned on getting some things done today in my yard, but the pain got the better of me, and as a result....didn't get a bloody thing done. THIS ANGERS me!!!(Is there NO end to this ANGER business???)

Take care~L.P.

wow I am so glad this post was started.

pearl one you are saying exactly what I am experiencing. I wish we could all have a local group but we may kill one another lol.

I am a so angry over being misdiagnosed for over 15 years. I was doped up told I had a mental illness and fibromyalgia. as a result, my family and some friends I lost think I am crazy. now, they do not believe I have lyme disease. at one time, I did think I was mentally ill because my mother was a paranoid schizophrenic who had a frontal lobotomy in the fifties.

I ended up suffering and suffering, several psychiatric admissions later on had hashimontos' this was only diagnoses as a low thyroid, treated with synthyroid which did not help. of course hashis disease goes alone with lyme and I kept on descending down the rabbit hole until I got to where I could not work, filed for disability. got awarded it on a diagnosis of bipolar, which I now know I am not bipolar after spending one year weaning off of benzodiazepines. I am taking ambein now because since starting my treatment iz cannot sleep.

the rage I have had over the last year has pushed everyone away from me, and I have felt like now I know I am nuts. something is really wrong. I am so angry because of not only my misdiagnosis, but at myself for missing it, I am a health professional, not being able to work which I enjoyed, I have lost so much of my self respect and dignity. I used to show horses, and I no longer do that. My husband says he is going to leave me if I dont stop being enraged all the time and what little association i had with my family is gone because of the uncontrolled rage. I didn't have this problem until the last 2 years, and am not sure if the lyme started then or early years ago, suspicious because of the deteriotion in my health.

so I understand completely about rage. lately I have said just try to accept and and not get angry every minute of the day. now it is worse since I started rifampin.

i appreciate all ideas on how to help. jackie

Traveler has a very effective strategy to deal with this....paging....TRAVELER.

LOL! Thank you for paging me, Barngurl!!!

I found a way to vent my anger in a totally non-offensive form. I would either go split firewood or, once that was all done, I would grab a large branch from one of the trees in our yard and start beating the daylights out of a tree! Either one was pretty darned effective for me....even if it did raise my husband's eyebrows - but, once I did one of those things until I no longer felt such rage, I was able to walk back inside, give my husband a kiss and go one with life as if nothing happened!

My hubby got to where he wasn't so surprised - or leery when I walked back in - when I did something like that after I explained what was going on inside me and how that helped release all of it ...outside away from all others.

It is these diseases - mainly Lyme and Bartonella - that brings this on in even the most mild tempered people. I'm not a big person at 5' 1", so it worried my hubby at first - but then he saw the benefit - no splitting wood for him!!! and I was calmed and ready to deal with whatever came my way once again.

According to James Schaller (LLMD & researcher), anyone with more severe psychiatric issues, it's due to Bartonella combined with Lyme. I would encourage anyone with these issues to check out his site: www.personalconsult.com/