Painful burning neuropathy

For anyone else who experiences this....why is it so much worse from about 4pm and increasing through the evening, on through the night, and then almost gone in the morning.....only to return again at 4pm the next day?

Have you found ANYTHING that helps?? Or is this just part of the whole Lyme deal?

 I too have found this to be true. My feet bother me alot. I think it has something to do with getting tired. I never nap. I have far to much Lyme anxiety for that. 4 pm is when your body starts to wind down for the day.........no rest for the weary it seems. Lis

 When you say *Burning Neuropathy*, do you mean burning & stinging sensations? I have this in my legs(lower part) that start when I get up and diminish slightly during the day....sometimes, not always, but return in the late afternoon/early evening with a vengeance. And of course at night...accompanied by severe leg/calve cramping.

But for me, this could be spinal stenosis, DDD, bulging disc-related and not Bartonella at all. Who knows????

I also have the electrical-like, sharp pain know as L'hermitte's Symptom which is indicative of MS, but I think it is ALL Lyme related.

Anyone else have this and the stinging/burning legs?

 

L.P.

 

 

Anyone with neuropathy should be checked for Vitamin B12 deficiency, as well as other B-vitamin deficiencies. Yes, Lyme can cause neuropathy, but so can vitamin deficiencies, and no amount of Lyme treatment will correct a vitamin deficiency.

Also, yes, I think the pain being worse in the evening is common with neuropathy. I'm not sure why. When I had RSD (severe chronic nerve pain), I found that antihistamines (Benadryl) helped more with the pain than anything else. Some find Neurontin helps, but it didn't work for me.

If it is from Lyme, epsom salt bath soaks may help also because the magnesium helps to relax the muscles and is good for the nerves. Also, the detoxing from the epsom salt bath can help reduce nerve toxins from the Lyme.

I have the burning in legs and knees, that's is my major symptom and it's very debilitating. It has confounded non-LLMDs from the start, because I have absolutely no muscle/joint pain above the waist.

And I have had all my vitamins and minerals worked up, I am perfectly fine on all counts, though my ND still has me on a regular multivitamin, a B complex, and magnesium. I'm sure for some people vitamin or mineral deficiencies play a role, but I think in some cases this possibility may be overemphasized. (Yet I do as I'm told and pop 'em.)

I know what you mean about being a supplement junkie. I finally told my ND that 40+ pills a day (2 antibiotics, pain meds, and ass sorts of ND-prescribed stuff) was too much, and we cut back. I just couldn't swallow it all!

I know it doesn't work for everyone, but Neurontin (gabapentin) saved my life. I take 400mg three times a day, and it keeps the muscle pain at a tolerable level (as long as I don't get up too much). I think I'm one of the lucky ones in that it seems to have no side effects for me. My GP thinks Nortriptyline can work for helping sleep through pain, he explained it once but I don't remember the rationale. It didn't do anything for me, but it may be a possibility for you.

I think rather than spend all the money on gadgets and whatnot, save the money for treating the Lyme itself, whether through antibiotics or herbals. The only thing that will make the pain go away permanently is to make the bugs go away. Easier said than done, of course....

Good luck!

Ready for this one??!!! Well, I was reading about Restless leg syndrome and new studies say that ********** works to ease the pain. It works for neuropathy too. Whether you have a partner or not, try it out. Kind of embarassing but it works. Good luck!

Last time I did the *Wild Thing* was in 2001....and that ain't happenin' again anytime soon....self pleasure or with someone. I have arthritis in my left hip...supposedly need a hip replacement according to this doc I saw back in March, and THAT ain't happenin' either!!! And to think....I was such a wild woman most of my life, but when you can't even get your legs apart due to pain and arthritis, that's when your wild days are over!!

I too start fading by 3 or 4 pm. My pain worsens throughout my body and my nerve pain in my legs gets worse. In the morning though I wake up to electrical sensations going down the bacj if my legs. I have been on abx for 7 months and feel worse on abx. It worsens my pain and depression so much, I have to go off to give my body a break. Don't know what to do.

I agree with Lyme14 that the best thing is detoxing. If you are feeling worse on the abx it means you are getting die off. Detoxing is the best help for that.

Another thing about the Lyme and the nerves is that when the Borrelia bacteria form a cyst they actually gather some of the nerve sheath material to form their covering. The body, in going to attack the bacteria, then starts to recognize nerve sheath material as part of the "enemy" (Enemy insurgents dress as civilians, the soldiers start shooting civilians).

This will pass as you become well. Hope you feel better soon.

You guys are scaring me :)...I'm going in to get a dx.next week or start the process..i have all of the things y'all are describing, but I was so.in hopes that the treatment would do away with this!..oh d ear

Whenever I have the numb tingling one complete side of the body, I know it's time to get me on B12 again - it works so well in getting rid of this.

Hi thank you, no just doing blood work tomorrow..have dx.myself only..ha..I'm quite certain though..yes I ordered the Neuropathy treatment formula..I may not be taking enough..it's getting worse..I have a naturopath that has had lyme himself so I will have great care..but I want this to go away with treatment!..ha

May 30,2012 I think..I just put 2+2 together though..started irritable bladder within the week..then knee went crazy, now full blown Neuropathy all over..