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How do you get through the really bad days?

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Posted 6/2/2011 4:38 PM (GMT 0)
How do you get through the days that you literally feel like you're dying... How do you talk yourself down from that horrible feeling of despair? My anxiety has skyrocketed and I need reassurance that I won't die from this disease! Then my mind tells me but SOME people have died from this and I wonder will I be the next victim. It's so horrible. I need relief!!

sad
Posted 6/2/2011 4:41 PM (GMT 0)
I used to just take a prescribed painkiller on days like that. These days, however, I try not to. When I take a painkiller these days I will get relief for that day but then feel like absolute crap the next four days. Its like a sick joke. They give you these meds for "comfort" but then you feel like even worse after they wear off.

Now I try to just go out in nature and read, meditate, and have some herbs...
Posted 6/2/2011 8:04 PM (GMT 0)
I don't know how I get through it. It sucks when you have air hunger and chest pains for days on end. I always thought I was gonna die of a heart attack or something and at times I still do. I still doubt my longevity on Earth from having lyme running through my veins for most of my life. I do the same exact thing as All-seeing Eye does. Go for short walks and listen to nature. I feel like being in the woods must help my constant feeling of not having enough oxygen. Herbs are extremely helpful too for me at least. Since I can't tolerate drugs like valium and xanax. I prefer natural anti anxiety meds.
Posted 6/2/2011 10:21 PM (GMT 0)
So sorry to hear you having one of those days. I had one of those days myself today but this is first one in a long, long time and it was from extreme stress buildup. I've been on the mend really well and therefore know I will not let myself backslide. You will get there but you must be vigilant in your efforts. It takes hard work but you are worth it. My doctor told me it takes prayer, positive thinking and patience. The most important thing is acceptance of the disease and slowing down. Rest when you can, your body as well as your mind. This has helped me tremendously. I don't beat myself up anymore with feeling angry. Instead I direct my energy towards helping others and keeping myself busy whether it be crocheting, reading, music or just plain watching some TV. I have resorted to an antidepressant which has made a world of difference in getting to this point. Hope you feel better soon.
Posted 6/3/2011 12:14 AM (GMT 0)
I like silence as far as anxiety. A nice cup of natural tea usually gets my mind quieted. I have terrible days where all I do is cry, but it feels good to let it all out. I just get sick of people knowing about me and thinking they understand is all. Sometimes I'll go to a random place where no one knows me so that I can just 'be' in a sense. It's nice to be anonymous. I think nature really helps..walking, running, and such. At the type, exercise leaves me exhausted and hurting, but afterwards..my mind seems to be calmer and the anxiety not there anymore.

Just know, you're not alone.

Posted 6/3/2011 11:53 AM (GMT 0)
Hi SI,

On my very bad days I do what everyone else has mentioned in the way of medication and relaxation techniques. Pain relief is very important. I often find I am panicky and anxious but it turns out I'm actually in pain.

But there is one more thing that really works. I make a particular point to do something for someone else. Sounds ridiculous because I'm the one who can do with the help!

Really, something as simple as sending a card or making that phone call to someone who can do with a lift can really help you feel better. Or you can log onto this forum and say something encouraging to someone who is having a worse day than you! Hard to imagine at the time but there is always someone in a worse fix.

And another thing that is really helpful is to have someone close to you hold your hand and say "We will get through this".

Feel better!
Posted 6/3/2011 12:37 PM (GMT 0)
On the bad days---which now are far and few between (whew !!!) I did what my body told me to do. REST.

I gave myself permission to vegg out on the couch, go to bed early, take a relaxing detox bath.....and be grouchy, cry and scream if I needed to.

I would remind myself that I had a disease and that I would eventually get better. I knew it was going to be a long haul and tried to stay positive: always appreciating the good days.... and considering the bad days as part of the process, as awful and debilitating as they were.

Having supportive family members helped a lot with the mental, physical strain of it all. They TOTALLY understood the seriousness of Lyme and that it takes its toll.
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