LLMD in Florida

I have heard there are 2 LLMDs in Florida. Can anyone give me feedback on either of them?

I suspect Lymes but have not been to anyone yet.

Thanks

Hi achieving grace,

I did read the "New to Lyme" sticky, it had so much information that I feel I need to read it a few more times just to absorb it.

I don't remember a rash after a tick bite. My ex-husband deer hunted all over the country. I pulled numerous ticks off myself over the 12 years we were married. I had some tremors and extreme headaches for a year that were never fully explained. Then they went away. I had other symptoms; but, it was difficult to tell whether they were from the "seizures" or the meds.

Advance several years to April 2010. I had surgery to repair a prolapsed uterus. I lost a lot of blood and was given transfusions. After the surgery i began to develop systems. I saw an optometrist, GP, psychiatrist, ob/gyn, and 2 neurologists. I was diagnosed as having potential seizures, possible MS, and psychiatric disorders. Every specialist said it was not a dx that fell under there specialty (ie, the psychiatrist said it was neurological, the ob/gyn said it was neurological).

I feel like a hypochondriac when I list my symptoms:

fatigue
nerve pain and weakness in legs
anemia
waking multiple times a night
hearing comes/goes
blurred and double vision
smelling things that aren't there
not being able to differentiate sounds (thinking the dishwasher was the phone ringing)
getting lost
nausea
can't remember something I said or did 5 minutes ago
can't remember how to do simple things like turning on the washing machine
unexplained stopping of menses
heart palpitations
hot flashes/chills (not menopausal)
brainfog
dizziness
can't find words
can't process what someone says
hypersensitive to noise
slurred speech
walk sideways/bump into everything
feels like a bug crawling along my face and hand
family states I'm irritated and moody
waking up a lot at night

Looks crazy when I see it written down. Some of these come and go periodically. Some came and then haven't come back. Some of them are it the exact same series. They only last a total of two minutes, but the happen about once an hour day and night. (This is why the neurologist thought it might be seizures even though the EEG was normal. The seizure meds have helped some of the symptoms diminish. But they have not gone away.)

I read that the Red Cross thinks Lyme's might be transmitted through blood. I don't know. Part of me is hopes this is it so I can finally find out what is going on and get some treatment.

Do you know anything about the docs in Orlando and Tampa? The one in Tampa is on my insurance plan- which would be a big plus.

What do you think?

Thanks for responding

Thanks for letting me know that. I am new and don't know how to do it.

I made my email available. Please send me info on the Florida docs.

Thanks for your patience.

Blessings

There is a closed group on Facebook called "Florida Lyme League". If you are on Facebook, go on there and ask to join. It is nothing but a group of us that have Lyme in Florida and I have found more info here than from any other source. Me, my wife and four year old son all have Lyme and live in the Orlando area. Let me know what area you are in and I can also ask for a recommendation. Good luck to you, based on you symptom list, you have a very valid concern.

Jeff

Hi,
Thanks for the response. 1bitten2xshy was kind enough to send me 4 names in an email. I have called one of them and was told the office would mail me paperwork. After filling it out the doctor will let me know if he is willing to accept me as a patient. (He takes my insurance, which would be a big plus.)

Another office I contacted and have not heard back. Two more I am investigating more and going to contact them today. I tried looking on FB. I aw 3 things for lymes in Florida. None of them were private groups so I assumed I did not find the right one.

I live in Georgia. My husband is in sales. He has customers in Florida and around the Raleigh, NC area. If we found a good doc in one of these areas we could tie his appointment in with my appointment. This would help cover some of the travel expense. Insurance coverage would be great. Being able to cover the travel through his job would be great. But, above all, I want a good doctor who can help me. We are prepared to do what we need. But, money and time (and energy) are facts of life so I am trying to be prudent when it doesn't impact appropriate care.

I would love to get the info on the FB group so I can join. I would also love to get feedback on the docs in Florida. I am worried that the doc will say that I don't have lymes (if I do) or that I do have lymes (if I don't) or that they have no idea what is going on with me (which is what I keep hearing).

Sorry for the frustration. My husband is very supportive; but, I hate venting to him all the times. My friends are telling me nothing is wrong with me, I am just in my 40's and this is part of aging. And I need to just accept it, and get on with my life. I have always lead a very healthy life...the things that people say on this board to do...clean diet, good vitamins, periodic detox, regular chiropractic and massage, homeopathics, happy life, etc. It make no sense to me that a normal part of aging involves all my symptoms. Grrr

Thanks for listening. Please send me more info.

Lisa

ps, it is normally difficult to get in to see someone? I don't mean waiting for an appointment, I expect that.

InfectedinFl - you did just fine!!!

Your local doc might also be able to work with the LLMD in NY. We have links in the "New to Lyme?" thread for doc that are wanting to learn about treating those with TBI's that you are more than welcome to share with your local doc.

Wow!!! That is great news!! I'm sure that you have helped many patients with Lyme that will see this doc in the future!!! Thanks!!!