Hi Tricia,
Welcome to our community. I'm so glad you found us.
As Girlie said, your son has not had enough treatment. Not only is 2 months of treatments not enough for the amount of time he was infected, but those months were not consecutive (separated by at least a few weeks, if I'm understanding correctly), but it's quite possible the dosing was wrong since the doctors he's seen so far don't understand the treatments that are necessary.
It's so common for Lyme patients to be told they are imagining their symptoms. I'm so sorry you and your son had to endure that insult.
Please do take the time to read through our "New to Lyme?" thread as Girlie suggested, as it's packed with helpful information.
Also, here are some more places you can use to help you find a LLMD for your son so he can get the treatments he needs:
For information on finding an ILADS (International Lyme and Associated Diseases Society) trained Lyme Literate Medical Doctor(LLMD) in your area, you will need to enable your email option in your profile in order to receive any recommendations, as we don't allow doctor's names and contact info to be posted on the forum for several reasons. You can enable your email option in your profile, under 'edit profile'. Be sure to click the submit button to actually save your preference.
You can send me an email by clicking on my screen name or the small blue envelope under my screen name. I may have contact information for some LLMD's in your area as well. Please include your state (or province) and area that you would like to find a LLMD in and I will be happy to share the names I have.
You can email the Tick-Borne Disease Alliance at
[email protected] for LLMD referrals.
You can go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link:
www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74ILADS has their own referral system as well:
ilads.org/ilads_media/physician-referral/And
www.LymeDoc.org You will want to find a well trained doctor, not one that has self proclaimed themselves as a LLMD or an ID Doc (Infectious Disease Doctor), as ID docs believe Lyme is hard to catch and easy to treat, and don't believe in the reality of chronic Lyme. Go to the ILADS site to read the new (2014) Treatment guidelines to get you started on your healing journey:
www.lymenet.org/BurrGuide200810.pdf