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Decision to make. What to do ??

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Posted 7/10/2011 9:07 PM (GMT 0)

Finally--- and for the second time---  I have cleared up mild oral thrush (very mild) and IB from the (uncoated) Ceftin my LLMD put me on two months ago.

Armed with homemade kefir, prescription VLS probiotic packets (not capsules) and a new prescription for Ceftin that is COATED (easier on one's 'system).....

......I am ready to give the Ceftin another try.   My LLMD is wanting me to go one more round with this ABX because it really got me 95-100% symptom free of Lyme quite quickly.  

I am to add Mepron and Azith back in if my 'system' is doing well. 

I have been off ABX for 2 weeks now.  In the past, a 'two week hiatus' has either caused a pretty bad relapse to occur.....or a mini relapse.  

Right now I would say I am having a mini, MINI relapse.  Just some random muscle soreness (tolerable), a bit of ear ringing, and that  lovely hangover  feeling in my head which is also pretty mild. 

After a good nights sleep all of these symptoms are gone--- but do reappear by the end of the following day.  

There are two voices in my head.  One of them says: "Go back on ABX for the (hopefully) final push of 2 more months. You will get better!"

......and the other voice says, " No!  You can make it without ABX."

 

Besides the conflictiing voices, I am sooooo worried the Ceftin will just give me IB and oral yeast again (for the third time) no matter what I try and do to prevent it.  So the idea and joy of getting better will just be a tease.

Also, I am totally not up for another herx when I first start back on the Ceftin. In the past it has knocked me down for 2-3 days with migraines and an excruciating stiff neck.  Maybe that's not a bad price to pay, though. 

In any event,  I feel like I am in between a rock and a hard place.  

Can I hang on and beat these symptoms without ABX? 

Or ....if I don't take them, will I soon  relapse back to where I was several months ago: walking into walls, etc.   

Rhetorical questions--- but I think you get the gist of my dilemma.

Asking for opinions based on: "What would you do if you were me? Go back on ABX or go natural?"  puts everyone in an awkward position I know!!!  smhair

But thoughts, encouragement, down right opinionated opinions (lol),  advice ......or whatever you might be inclined to say, will be greatly appreciated.  

Go for it !   smilewinkgrin   

 

 

 

 

Posted 7/10/2011 9:14 PM (GMT 0)
Well everyone is different. I remember the first herx I had - I thought I was going to die, really. I stopped those meds as I couldn't get past and literally couldnt function. Now 2 years later, when I have a herx or flare, it is MUCH MUCH milder and I still panic about what to do. My LLMD says to keep fighting with antibiotics as if you were climbing up a mountain. Youwill fall a little back down each time but as long as youdont fall all the way back to the start, you are making progress. Does that make sense to you? It is true for me. Sometime when i think I am not getting anywhere I think of where I was 3 years ago - never ever having a good day. Now the bad days are few and far between (and I still complain about them LOL). Best of luck to you. Stay strong and FIGHT!
Posted 7/10/2011 9:28 PM (GMT 0)
Yes.....that makes perfect sense!   Thank you.   
Posted 7/10/2011 11:01 PM (GMT 0)
I am doing the Ceftin too, with Biaxin - only 4 days into a 2-week pulse of this combo. Then, it'll be 2 weeks of Ceftin/Flagyl, then alternate again 2 more times....The Ceftin has a very strong smell and the tablets are dark blue. I am also taking the natural herbs Teasel and grapefruit seed extract (was doing this before seeing the doc).

I use the Ultimate Flora 50 billion (bought refrigerated and guaranteed at that level if kept refrigerated) probiotics I got from Vitamin Shoppe and it seems to be working well.
Posted 7/10/2011 11:02 PM (GMT 0)
Well, Cat - you know what my response is!!! LOL! I would say if you are really uncomfortable with abx treatment, find a good holistic doc -but you should do this before stopping abx!!

On the other hand, plenty of people heal on abx alone! Whatever you do - please, please complete your treatment! Remember, most knowledgeable LLMD's suggest that you stay in treatment for at least 2 months after all symptoms have disappeared!

Sooo - bottom line? Finish the treatment -whether by natural or abx means!!! This really is a fight for your life!
Posted 7/11/2011 3:38 AM (GMT 0)
I'm with Traveller on this.  If you can find a good holistic or naturopathic dr. soon, do that.  I went on Epsilon and Gamme Rizols that really gave me the same benefits as abx without the nasty side effects.  But definitely don't give those bugs a chance to rally!!! 

Couple more thoughts.  I think I might rather die than take anymore uncoated Ceftin - ugh!  That stuff is THE WORST - hands down.  I did switch to the blue coated capsules.  Might be called Cefdinir vs Ceftin - but was essentially the same abx.  Only thing even remotely as bad is Mepron - which you already know.

My dr. prescribed liquid Nystatin for yeast overgrowth due to high abx use.  The first time we did it after treatment, but the next time we did it DURING treatment - and followed up with Diflucan after treatment. 

If you can get your hands on the Singleton book on Lyme Treatment - he gives an anti-inflammatory diet in there which also is similar to a Candida diet - basically eliminating wheat and dairy and tomatoes (not real fresh in my head - sorry).  The diet sucked for me - cuz I'm also vegetarian on top of all those restrictions - but it did make an AMAZING difference in my joint pain and Candida symptoms.

Like Traveller said - a super good probiotic is your BEST FRIEND.  I use Vitamin Shoppe's 50 billion probiotic.

Hope you have some good IRL support - you got people here to cheer you on and encourage you through this.  YOU CAN DO IT!  Seriously - give them buggers some hell!

-Allie

Posted 7/11/2011 11:58 AM (GMT 0)
You guys are the best !!!

I think I am going to give the Ceftin one more try since it really worked. Hope my gut holds up this time around !!
Posted 7/11/2011 8:16 PM (GMT 0)
I got good results on it as well.  Good luck, Cat - you're in my prayers!

Time to kick some Lymie butt!

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