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JT65
Regular Member
Joined : Jun 2011
Posts : 53
Posted 7/14/2011 8:45 PM (GMT 0)
Folks,
was hurt and offended when my honesty was being called into question. I apologize for any of the forum rules I broke and if I offended anyone I am sorry for that as well. Please understand I have the same disease as you all and to have gone from such a dark place to such a good space I felt compelled to share what got me there. I think achievinggrace (aptly named) put it in perspective well. For me I hadn't thought of all of the people out there trying to take advantage of us. I was hurt when I got the response that I did when I thought I was sharing something very positive, then having my integrity called into question. I am sorry we are all sick, I am sorry if I hurt anyone, I am sorry that I broke the forum rules. If you want to know more about
the regimen that worked for me, send an email. I have nothing to gain but the hope of helping a fellow sufferer. Nuf said, take care. JT
CajunGrl
Veteran Member
Joined : Mar 2009
Posts : 4717
Posted 7/15/2011 5:10 AM (GMT 0)
Hi JT,
I'm really sorry that your feelings were hurt. It's really hard sifting through these posts and deciding what is right and what is wrong. Im sure you are trying to help, but even then, not one remedy will work for everyone. Some people have co-infections along with viruses AND Lyme Disease. What you are specifically on is tailored for YOU. I hope that everyone here remembers that. We also have a duty as Moderater's, to protect our members. Even though something is natural, does not mean it cannot harm you or interact with your medications. I'll give you an example, you cannot take Tryptophan or 5HTP with anti-depressants or Tramadol. It can cause serotonin syndrome which is very serious. One treatment that works for one, may not work for another and you should always tell your doctor what supplements/Herbs you are on.
JT65
Regular Member
Joined : Jun 2011
Posts : 53
Posted 7/15/2011 4:12 PM (GMT 0)
Hi I will post the medications I am taking as well as the dosages in my profile. That is all I can do within the forum context. In terms of what I learned in regard to environmental causes and contributors. Stay away from Bounce, Downy and Tide, go with a natural soap. This is particularly important for bed clothes. Try to stay away from molds as much as you can. Petroleum product fumes can also have a major negative impact I worked with my chiropractor/ kiniseologist to find out what I reacted to. His name is Doctor Leaf, in Plymouth MA. He makes no claims but myself and several friends have found him to be a true healer most of all he teaches you to heal yourself. I have found that true healers can come in many forms from MD's to accupuncturists.
Be strong and thanks to achievinggrace for her kindness and level headed approach throughout the past few days. It it were not for her managing to bring kindness to a dispute I probably wouldn't be going on the forum. Grace has been achieved Peace all
JT65
Regular Member
Joined : Jun 2011
Posts : 53
Posted 7/15/2011 4:13 PM (GMT 0)
And thank you Cajungirl too!
CajunGrl
Veteran Member
Joined : Mar 2009
Posts : 4717
Posted 7/15/2011 9:50 PM (GMT 0)
JT,
Why don't you set up your email account so that you and others can exchange information. Go to "My Profile" on the top, left hand side and you can add your email there.
JT65
Regular Member
Joined : Jun 2011
Posts : 53
Posted 7/15/2011 10:31 PM (GMT 0)
My email is showing and I will enterthe supplements I am taking
LupnerRN
Regular Member
Joined : Sep 2008
Posts : 350
Posted 7/15/2011 11:38 PM (GMT 0)
JT, your emails not posted yet.
I, as one in the medical profession, would love to be able to post what meds we use. Hearing detailed treatment info from others is what helps and interests me the most. I take all the info I read here and compile it to make a statistical opinion.
Although, I completely understand the rationale behind not posting that kind of info for protection. And agree.
I'm so happy to hear how well your doing and so pray for continued healing! A reminder for you though to research all the infections life cycles you have so that you are not devastated when you do have flare ups. These are pretty much a sure thing within the last few years of recovery. The time in between flare ups should grow until flare ups are gone. This does not put you in the "cured" category. It puts you in the remission category.
I look forward to reading your continued posts.
Lisa
Traveler
Elite Member
Joined : May 2007
Posts : 36573
Posted 7/19/2011 3:40 PM (GMT 0)
Here is the reason why I sometimes jump the gun and am so protective of the members here:
www.healingwell.com/community/default.aspx?f=30&m=2165211&p=1
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