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Posted 7/16/2011 1:16 PM (GMT 0)
okay, I jnow I think all the pros/cons of ibuprofen - I have never had a problem with it in the past when I used it very rarely for muscle or joint aches (not Lyme-related, more running related). Yesterday, I had a Board meeting at the University - I am Chairman of the Board for the History Libraries - so I had to lead a meeting of VIPs and the like. Note, I am only saying this because I was SCARED as HECK having to "perform" in front of such an audience when I have all these crazy Lyme symptoms. This is something I could noramlly do blind-folded but, this Lyme as rattled me to the core of my confidence at times.

Anyway, somehow I get through it okay (lasted at 2.5 hours) but by the time I was finished, it was like my brain was worn to a frazzle and and dthe dizzy, spaced-out feelings were up in full-force. I came home, laid on the couch and put a cool rag on my head and it helped somewhat. But - and here's the subject of this comment - I decided to take two ibuprofen capsules. I think it was the cool rag on my head that correlated to a headached (which I did NOT have) that had me do this. Anyway, within about 45 minutes, my extreme level of symptoms had calmed down a LOT - noticeably and effectively.

Has anyone else use ibuprofen to any success for neuro-Lyme symptoms? It seemed too connected to have been a coincidence of taking the ibuprofen and the symptom level drop-off...

Posted 7/16/2011 1:23 PM (GMT 0)
yes, I work for NASA. But I am a Board member for the local University as well! I am big into history - especially local stuff so that's the connection. See, you weren't mixed up at all!

Posted 7/16/2011 1:26 PM (GMT 0)
I thought exactly as you about the inflammation. My doc warned me that I would get severe headaches for a while as my treatment commenced - I don't get headaches though - never have! So, perhaps, my dizzy, spaciness is just what is considered a "headache" for me - caused by inflammation. The ibuprofen helped because it reduced the latter.
Posted 7/16/2011 1:30 PM (GMT 0)
Thx Jess - public speaking was always a phobia of mine as well. However, the best treatment for a phobia is to do the very thing you're afraid of! LOL. Seriously though, I knew I would have to do this in my career so I trained myself to be rid of the social speaking phobia. The thing that cured me? I volunteered to teach a class at the US Pentagon for high-level Defense people. Talking about diving into the deep end! But, I think the Lyme may actually cause me to bring back that core fear and re-apply it for a while...odd stuff, this Lyme.
Posted 7/16/2011 3:52 PM (GMT 0)
Something else that has worked for many is taking an antihistamine.
Posted 7/20/2011 2:59 AM (GMT 0)
Hi everyone,
I began reading your forum several months ago . I have had all of
the symptoms that others have reported having. Mine started approx.
Six years ago during a horse show that I was attending .My
granddaughter was showing. As the afternoon wore on I suddenly
started having flu like symptoms. By the time I got home I had what
I thought was full fledged flu symptoms. I was sick for a week and in
bed. I have had a multitude of symptoms since. Your forum has
kept me sane. It has helped me tremendously. Just knowing that
there are others fighting the same symptoms makes me know I am
not crazy! I just wanted to say that during the first year I had tremendous headaches pressure in the back of my head and
pressure in my ears I went to a ENT who said it was my bloodpressure
I went to my MD who said it was my ears. I began taking Sudifed thinking that it was fluid in my ears and guess what the pressure and
headache would go away. Also if I used heat on the back of my head
and neck it would help. Later heat would no longer work. Now only ice
on the back of the neck works or even stranger. If I walk outside when
its cold within minutes of breathing the cold air in the headache begins
to go a way. For two days I will then have a stiff sore neck. This has
got to be some kind of inflammation. Anyone else have this happen?
Posted 7/20/2011 9:55 AM (GMT 0)
Hi Yaz,

Ibuprofen has helped me too-- but only on occasion. Sometimes it does nothing. I get better results with good ole aspirin.  I take three. 

Hi Bri,

Welcome!  Though I haven't had your specific experience with headache and breathing cold air as a remedy.....or Sudifed....I will say that stiff neck, ear and head pressure and the flu were Lyme symptoms for me.   

Hope you don't have Lyme !!   ......but it should be considered as a possibility. 

  

Posted 7/20/2011 12:16 PM (GMT 0)
I have just recently found ibuprophen to help, especially with joint pain. I was always afraid to take it, taking so many other pills and worrying about my liver. It never did help with my severe headaches, when they were there. (they are gone YAY). But recently when I have a joint act up, I take and it really helps to calm it down. Until the next one flares up. LOL.
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