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Tinnitus and Lyme Disease

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Posted 7/28/2011 7:58 PM (GMT 0)

Hello - I am new to this forum but NOT to Lyme Disease. I was dx'd in 2006 and my LLMD thinks I've had it since I was a kid, now age 59. A 'new to me' symptom has been Pulsatile Tinnitus which, from my own web research is nothing 'harmful' but rather annoying. On a FB website a fellow Lymester suggested Lipo-Flavonoid Plus from WalMart. I just started that product (2-3x/day after meals) and it seems as tho' it can take awhile to help.

 

Does anyone have any insight to this problem as it is getting VERY annoying to hear my heart beat in my ears CONSTANTLY! It, of course, is worse when it is quiet so I usually leave the radio on to distract me. It started in one ear and after a few wks. it was in BOTH. I just want to make sure it is nothing serious that should be checked out as we recently moved from WI to KY and I have not 'connected' w/a new LLMD or an Internist as of yet! I have discussed it w/my chiropractor, and two PA's at the chiropractic/rehab facility and both drew a blank except suggesting it might be sinus related and to see an ENT. I do NOT have any sinus symptems, however. Not wanting to pay a $50 copay to hear it is 'nothing' and that 'nothing can be done', I thought I'd hop on here and ask!

 

Thank You!

Posted 7/28/2011 9:52 PM (GMT 0)
Hi Musiclady,

Welcome to the forum! So glad you found us. This is a great group of supportive and knowledgeable people.

I had the symptom you mentioned as my treatment stirred up my long-held Lyme infection. It went away as I progressed.

Have you located a LLMD in your new area yet? Let us know if you need help finding one.
Posted 7/29/2011 2:01 AM (GMT 0)
WOW - thanks for the quick replies new friends! Jess1ca - I, too have the TMJ rt jaw cracking/crunching thing going on as well w/any movement of my jaw or eating any food. I do not have any pain or anything, just a crunching sound. Hmmm......always something w/Chronic Lyme Disease, huh?

AchievingGrace - no I haven't located a LLMD in or near Louisville, KY as of yet. I have two that the ILADS suggested but no PERSONAL referrals which is what I am looking for, not just a name and an address. The two gals whose names I was given are located in Mt. Orab, OH and Zionsville, IN, both are about 2.5 hours away. Do you have any personal connections to any in or nearer to Louisville? With a city this large, there SHOULD be a reputable LLMD in my thinking! Thanks for any help you can provide.

Blessings - Musiclady :-D
Posted 7/29/2011 3:25 AM (GMT 0)
 

I have tinnitus & TMJ, too.  The TMJ is being managed, although in my experience many dentists are willing to make an expensive mouth gaurd, but few actually know how to do it correctly.  My tinnitus is primarily in one ear, and I'm hoping it will clear up as I continue treatment.  I haven't tried lipo-flavanoid, but I have seen it advertised on TV.

 

Posted 7/29/2011 4:15 AM (GMT 0)
Hi again Musiclady,
You can start another thread entitled, "Looking for LLMD near Louisville" to get member suggestions.

Also you can email our long time member, Dan's Mother at:
[email protected]
If you'd like more doctor suggestions, you can email stephanie at: [email protected] You can also go to: www.turnthecorner.org/bod.htm if you want to learn a little bit more about Lyme Disease.

You can also go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link: www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74

You will want to find an ILADS(International Lyme And Associated Diseases Society) doctor. The ILADS site is a great place to read to get you started on your Lyme journey.
www.ilads.org/lyme_disease/treatment_guidelines_clearing_ilads.html
Posted 7/30/2011 4:33 AM (GMT 0)
I have tinnitus and TMJ, too. For the TMJ, I use a night guard, but nothing seems to help tinnitus. But there are definitely things that make it worse. Too much salt, MSG, prolonged loud noise. Also, many medicines are ototoxic, especially certain abx. Avoid them, if possible. If you do a google search for ototoxic meds, you'll find a list.

I do find white noise helpful for sleeping and use a noise machine.
Posted 8/4/2011 6:59 AM (GMT 0)
 

Lipo-flavanoid is supposed to help with tinnitus.  I haven't tried it, though.  Mouth guards are for different things--some are for grinding teeth at night, some are supposed to move the jaw forward to prevent the tongue from closing off the airway at night, and some are for re-aligning a bite that's off.  Mine is helping relieve the pain in my jaw joints.  I have TMJ.  I grind at night, and I need help with bite alignment.

 

Posted 8/4/2011 7:52 PM (GMT 0)
Jessica318

Yes, nightguards are for teeth-grinders and yes, it has helped the TMJ. I don't have near the amount of jaw/head pain that I had prior to getting the guard.

I had one made by an orthodonist years ago and that was much the nicer one, but very $$. Now I have an OTC one called "The Doctor's Nightguard" that was recommended by my dental hygienist.
Posted 8/4/2011 9:03 PM (GMT 0)
A little tidbit that goes with this topic~

If a person is having issues with jaw clenching, most likely the muscles where the two jaw bones meet are spasming - I have used peppermint oil, rubbed right on the skin in front of the ear - where the jaw bones meet- helps to alleviate this.
Posted 8/5/2011 3:35 AM (GMT 0)
weighing in here on the tinittus.

me too. also hearing loss in my right ear which is the big ringer. wen I sleep at night I lay on my good ear so I don't hear outside noises. but theinide ringing can get s bad as it sounds like I have a refrigerator IN my ear. which I know is impossible since I keep my refrigerator out on the back porch and not even in the kitchen, never mind my EAR.

the funny thing is when I'm feeling a little better and able to actually do things during the day the ringing thing is way better but then when I start feeling run down that ringing thing comes back. then i drive myself NUTS trying to figure out what was the RIGHT thing I did to stop this ringing that I am not doing now?? I run down the list of 50 million things I take and get exhausted in the middle of the whole investigation.

does anyone tke DHEA? or ever have it checked. mine was almost zero but i'm not sure if that was what helped? Is it the thick blood that coursed that heart beat or blood thumping noise in my head??
Maybe the heparin helped with that but i slack off on it sometimes because I can't afford it.
Posted 8/5/2011 5:23 PM (GMT 0)
Hey Bucci!!!
Have you settled in after your move? I've been thinking of you! How are you doing? So glad to see you back here - if your infections haven't been resolved that is! Of course I would love it even more if I knew you were healed and that was why you weren't on here any more!!!
Posted 8/7/2011 5:35 AM (GMT 0)
hey Trav, i moved to upstate NY. and am still very sick and even sicker of being sick.
not getting any treatment . don't know what else to do other than my long time job of doing or not doing what ever it takes to keep me from completely going over the edge and giving up.

other than that life is good. being closer to my family and old friends.

winning lotto would give me a great well needed manic up swing.

some days adderal or mex provigil and pain meds gets me up on my feet and other day nothing works,

never sleep right. like zombie. if i could afford I would move into assisted living. I'm 56.

too tired to type.

you sound good. keep on sending those jokes xxxxx
Posted 8/8/2011 5:01 AM (GMT 0)
 

I'm on DHEA.  If the body needs DHEA it's typically due to mitochondrial dysfunction. 

Posted 8/8/2011 2:52 PM (GMT 0)
Hey Bucci,
I am sure glad to hear that you are closer to your family and friends!!

Have you checked into any of the docs up there?
Posted 8/10/2011 3:02 AM (GMT 0)

RE: Pulsatile Tinnitus

Well, someone on here or on FB recommended taking LipoFlavinoids Plus from WalMart and I have noticed an improvement taking 2 after meals 3x/day. It basically STOPPED it in my right ear which had started rather recently and has reduced it somewhat in my left ear. The other night, however, while laying on my side in bed w/my 'Tinny Ear' on the pillow, it seemed like my breathing was 'amplified' through my ear. Very weird. When I switched to my other side - the non-tinny ear - I couldn't hear it anymore. I know this is 'minor' w/all of the other Lyme symptoms out there but it is VERY bothersome and always present in the left ear. It is suggested to take the above product, which btw is 'guaranteed', for 2-4 months so I guess that is what I have to do. I just feel it in my gut that if I go to an ENT, he would say that I had pulsatile tinnitus and say "Live w/it." I don't need to pay $50 to hear that if I know it is a 'common' Lyme thing. 

Posted 8/12/2011 2:20 AM (GMT 0)
Musiclady,

what meds are you on? most lyme meds cause tinnitus to some degree. Some are really bad.

If your not on meds, why not and how long was your previous treatment regime?
It sounds like you need to have regular check up visits with an LLMD. Your Lyme is never gone. It's just controlled by your immune system after medication got the numbers down low enough.

Keep us updated with how the Lipo flavinoids helping. We love to hear about cheap remedies that work!
Posted 8/13/2011 6:29 PM (GMT 0)
Hi MusicLady!! I have something that may help.. Tinnitus sort of runs in our family and I unfortunately got it this year, age 26.. and I realize how devastating and debilitating it is.. My dad takes the vitamins from this website, http://www.tinnitusformula.com/default.aspx Arches Relief... To be honest, taking anything takes awhile, scars need time to heal,, not just overnight. I took the combination pack and noticed a difference after about 2-3 months. Be strong, you will find some relief, it won't heal completely, but should bring it down a bit. Hope this helps you.

Best Wishes
Posted 8/20/2011 8:28 AM (GMT 0)
One treatment reduced my tinnitus for 6 hours afterwards. I held a white coil connected to a PEMF machine - stands for pulsed electromagnetic frequency machine - the machine emits electromagnetic pulses and boosts our body's electromagnetic energy. The strength was 500-700 gauss.

I mentioned this to a top LLMD and he said it may have quieted down the nerves to the ears.

PEMF machines are used for tissue healing. They were first used to return injured race horses more quickly to the track.
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