Questioning...AGAIN!!

It's really no wonder there's such controversy surrounding this disease if even people who have it question whether they actually have it. I've seen so many doctors who have all had such different explanations for my symptoms. They've all had good evidence for their theories and beliefs. The lack of black and white proof that we have active infections is really what's driving me nuts! I doubt if anyone being treated for chronic Lyme is doing nothing but taking antibiotics. How do I know if it's all the supplements, dietary changes, lifestyle changes, and detoxing that's making me better? I know I feel different taking all these antibiotics, but how do I know it's not just my body's reaction to these foreign chemicals...I mean, I don't even know what antibiotics are!!

Granted, no one recovering from cancer from chemotherapy would really stop and question whether they really have cancer. I'm pretty sure it's society and this controversy making me/us question everything. But still...I just don't know. When I think about where I've been, everything I've tried...there's so much overlap between all the different protocols I've tried.

Now I'm focusing a lot on biotoxins. I went down this road years ago and hardly even knew what I was doing. Part of me wonders if the real cause of my symptoms is only biotoxins, and not an active infection. A positive western blot just means that I have antibodies. My cd57 just means my body at least thinks it's still fighting Lyme, but maybe it's not. Obviously no one can answer me and hand me solid proof one way or the other...but I just hate not knowing almost more than I hate this disease. All I want are answers. It makes me want to go to med school just to figure this thing out! Of course...it needs to get figured out before I can do that.

Sorry that was a bit of a vent.

"You might have just hit your head on the silver lining of this particular cloud. "


I do like that Achievinggrace!!!

about the only hard proof you have is your symptoms - if you have symptoms of a TBI - especially if you have had a positive WB - you still have an active infection. That's what all of the research points to.

I have been researching tick-borne infections as hard as I can for the last 3 years. The first two I had a lot of cognitive issues, so my learning was slow. I had to 'travel by faith' that my issues really were caused by TBI's as I couldn't test positive until I had been on really high doses of Minocycline for a full year - and it

caused me to be bed bound afterwards. That alone was almost enough to convince me that TBI's weren't what was wrong! Although after that I became obsessed with researching what was wrong with me, but the more I tried to prove to myself that I wasn't infected with TBI's the more evident it became to me that I was. Nothing else fit - as you can see in my sig line, I have had all but 20 of the items listed on the "Master Symptom List" found in the "new to Lyme?" thread.

I just don't believe that I could have all of these symptoms for so long - appearing and disappearing with no known trigger, or that I could have about 5 or more different autoimmune, arthritic, and cognitive issues descend on me without the aid of something like tick-borne infections. Any other explanation is actually harder for me to believe than having contracted several tick-borne infections.

Although that's just my experience and 2 cents!

Here's a problem with your business plan, Cylce - Although I don't treat mine 'humanely' - giggle! - I already have enough free range anxiety of my own! I'm afraid you might need something we all need rather than something we all have! LOL!

Maybe we all could gather and with all of our anxiety combined, we could power the earth for 2 days or something?? snicker, snicker