Anyone with bladder symptoms?

I have frequent urination. I go almost every hour or two. It's not so much that I have to "go" that much, I just get this awful feeling that I can't hold it much longer and the feeling comes out of nowhere. I have some pain sometimes if I don't go at that moment as well. A few years ago I used to be able to hold it all day long in high school.

I've had Lyme for maybe 12 years and I am fairly fully functional. I'm 24 and work a full-time job. I do have chronic fatigue and a lot of joint pain (especially in the winter when it's cold, or when it rains and it's damp out). I have chest pain and back pain that comes and goes. I have neurological symptoms including some memory impairment (oddly I am excellent with numbers and book facts, but my memory for everyday things is noticeably worse than a few years ago). I slur and mix up some of my words when I talk even though I never had a speech problem when I was younger. I also have depression and used to have severe anxiety, but that one isn't as bad as it used to be. I'm sure I'm forgetting some symptoms at the moment (yeah, my memory can be that bad at times. Last night I debated for a while whether I had actually taken my pill while eating dinner since the pill container was sitting right in front of me. I honestly couldn't remember if I did, and I had just gotten done eating. I was also reading while eating, so maybe I can blame it on my lack of attention to what I was actually doing. *Sigh*).

I was diagnosed with Lyme and mycoplasma pneumonia. I've just started oral antibiotics and supplements. I was only diagnosed about two weeks ago but my symptoms started when I was about 12 so that's the estimated time of infection.

No, another person cannot pass Lyme on to you. I was told never to donate blood because there is a slight possibility of passing some bacteria, however, for those of us with chronic Lyme it is very hard to find in blood tests and usually goes to the brain and joints. It cannot be passed through sex or other close contact.

You can also have tick bites and never know it. They can detach themselves from you and you'd never know.

Post Edited (Alaskah) : 10/28/2011 8:09:06 AM (GMT-6)

My LLMD said it was not possible and I've never read anywhere that it was, but I suppose anything is a possibility. But if your husband has no symptoms, I really doubt he has Lyme. To have it for that long (you said he was getting bit a lot as a kid) and to have no symptoms at all would seem strange. But again, anything is possible.

Personally, although many Lyme cases are misdiagnosed as other problems, I also believe that some of the more "mysterious" cases can also be misdiagnosed as Lyme. However, changing your diet and going through treatment might clear up the other problem as well. It's tough when you have something that doesn't have a highly accurate test, or that doesn't respond to a common treatment.

Twinkl,
I don't think I would be much help with your information gathering, although I have all kind of bladder symptoms. It is believed that I have most of the TBI's, plus a couple of different viruses, and a ton of other symptoms that I could never sort out to know what is causing what!

I hope that you will get the info you are searching for! Please do keep us up to date on what you learn!

Well Alaskah, let's hope that you don't need an IV for treatment!!

I really like using "Google Scholar" when I am searching for the scientific side of something, although I didn't bother to do that with that link I just posted!

I did just use Goggle Scholar to look that up and found quite a bit of entries, as long as I didn't put it into quotes. Not sure why that happens - I didn't follow any of the links!

If you are having a lot of doubts about your doc, maybe you should look into the possibility of changing LLMD's? Not something I would encourage for the most part, but if a person doesn't have confidence in their practitioner, then I believe that we just won't heal as well -even if the doc is completely competent! But that is just my opinion!

LOL! Alaskah!
"I think the problem is that I have a general mistrust of doctors from how I've been treated over the years. I need to start getting over that now that I found ones who actually listen. My family doc said he is fascinated with my case and wants to keep up to date on everything, so I guess that's a good sign. Although no one really wants to be a "fascinating" case when it comes to health problems."

I think the majority of us have that general mistrust issue by the time we get a diagnosis!!!

I was the 'fascinating' case for way too many docs over the years!! Although I was called 'strange', unique, unusual, peculiar, one doc told me that I kept him on his toes, another one told me I was his education - always sending him back to his books to learn more! Those were all before we knew what was going on with me though.

I do hope that what you said is the case is with your LLMD! Changing docs for any reason is never fun in my estimation - I don't like starting over!

I really think you'll like Google Scholar! Here is a link to get started for anyone who may be interested! scholar.google.com/

Sorry Whenallelse,
What is "DI"?

Wow! Just read up on that a bit! I sure hope that's not what you have!! Most of those symptoms can be caused by TBI's - that's bad enough to have!

Just remember, just because you are CDC negative, doesn't mean that you don't have it.

Having a positive test result would have made things a lot better for a lot of us! Are you seeing a LLMD yet? Starting treatment will stop a lot of your symptoms.

Wow, brain surgery? I think I would rather travel to see a LLMD (like a lot of us have to do) first!

OH! Sorry I misunderstood! Whew! I can certainly understand the surgery for an ovarian cyst. I have my not-so-fair share of those and they can be terribly painful!

Another thing, I have met several others on here that have gone through periods of blacking out (me included) that have been because of Lyme &/or co-infections. Please be as sure as you can be that these aren't just symptoms of a TBI. That is why I am kind of pushing you to get in to be evaluated by a LLMD. No need to put your body through more stress for things that are being caused because of a TBI!

I understand that it's no small task, Whenall, but it's what really needs to be done next. You aren't doing yourself any favors by waiting.

I think we would all like to think that your issues will all be only because of TBI's, at least those can be controlled and/or gotten rid of!