Tala3 said...
I agree with ALL of this 100%. I have told my story here many times over the past 2+ years and have been to the very bottom myself. I also used to post here a lot more, but just haven't been on as much over the past year because I'm feeling so much better and I've had the worst year of my life in other areas. I do pop in once in a while to let those still suffering know that some of us do get and stay better. Are we cured? None of us know, but new people keep asking does anyone get better? Will I get better? And when those of us who have gotten better post what has worked for us, you have to accept what we say, not get upset about what we tell you is WORKING FOR US. Some of us have been "attacked" by what we say, but yet those who are still ill keep asking, and we keep coming back to tell you, even though we are able to move on and don't have to. We do it to HELP those of you who are still in a place we were, right here on this HW forum, before getting better ourselves.
letgo, most people want to hear what works for other people and we are sharing what works for us. No one is saying that a good attitude is a cure in any way, shape, or form, but it will HELP immensely. Those of us who have ADOPTED a changed positive attitude did not start at that point on this Lyme journey, nor even go through most of our illness will that changed attitude. We found it and worked our tails off to keep a good positive attitude and it paid off with getting and staying better. This IS reality. I am very much a realist and have lived my entire life observing and wanting the absolute truth in every situation, and unfortunately there is a lot of negativity that goes along with that line of thinking. I "fell into" the positive attitude way of thinking and thought it was bull initially. I fought it tooth and nail and kept going back to what had alway worked for me -- seeing the "truth" and thinking it to death only to have the worst negative attitude and not even realizing it.
I actually got better before I changed my attitude. Then I got sick again and my attitude plummeted even deeper because I was much sicker and my regular GP told me not to come back to him with these problems because he doesn't know what is wrong with me and he already referred me to anyone he thought may be able to help me. I had NO ONE to talk to about it because everyone in my life figured if there was something really wrong with me one of these doctors would have figured it out. I could tell you several stories of situations I had to endure by people in my life during this time...not one of them a positive story. Besides horrible pain and many other weird symptoms, my mind was in such bad shape it was like I had alzheimer's (I'm in my 40's), and I KNEW this was something they were just missing because it had all come on so suddenly 4 years earlier.
A short summary what I did to get better was antibiotics for 9 months (my doctor quit her practice so then I no longer had/have an LLMD), many different types/combinations of supplements/herbs, including several rounds of teasel root; then I decided to try Dr. Jernigan's at-home protocol. His theory strongly urges the mind-body-spirit connection. I thought he was kind of a kook, but began his protocol. His protocol was not an overnight instant cure by any means. But slowly, I started getting better. Of course I started out thinking "I doubt this will work either," just like I did for any of the other things I tried to treat Lyme Disease. Then my life changed in a very unexpected way, and really to save my own sanity I turned inward and upward.
I've had a very bad year with the deaths of 3 family members, the first one being my sister in her 30's, completely unexpectedly (the other two were expected, but you are never ready with one being my father). After my sister's death, I was absolutely distraught, but I don't show it on the outside very much. I turned inward and began a journey that has turned my life around. The point of my story is that you can fight the idea that a positive attitude will HELP you, but it is life changing to make the choice. It's a struggle every single day to choose a positive attitude over observing the negative "truth," but the pay off is amazing.
Remember, those of us coming back to this forum to share what has worked or is working for us, are doing it to HELP those you who are still struggling. If you get upset or make comments like this:
"and there is nothing worse than a person with lyme disease who was cured in a month or a year or 6 years making the rest who remain ill, too tired to figt and broke feel bad for deciding to accept what we cant change no matter how we smile and say it will"
we may just keep it to ourselves and then the whole point of this forum is down the drain. You don't have to accept what we say, but maybe someone else will and it will help that one person. I don't care if YOU don't want a good positive attitude, but maybe I can reach one other struggling person who will benefit immensely.
You can bash me all you want for my opinion, but it works for ME and obviously works for some others here too.
Hi Tala3,
Good to see your feeling better, thanks for spending the time to post this I couldn't agree with you more.
So sorry to hear about
your sister
Best wishes