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Posted 1/4/2012 8:45 AM (GMT 0)
Hello all,
I am new to this forum....although I guess I joined years ago, I have just refound you! And I am so glad I have. My daughter has been sick for four years....extremely I'll. We have tried EVERYTHING cry With little improvement. We have recently heard about the Hansa center....so I began researching. This is how I found you again! Anyway, sorry if I am being repetitive....I have tried to find everything on here about Hansa. It sounds like many of you have been helped ther. But what I would really love to know is how you are doing a year or more down the road.....did you ever get completely well from their protocol and did you stay well? Thanks sor anything you have to share.....I really appreciate it turn I so hope this finds you all doing wonderfully. Blessings.
Posted 1/4/2012 4:54 PM (GMT 0)
To me, that's the $64,000 question as well.... I am very skeptical, but that's my nature with these types of things. Some here indeed to appear to have been helped. It worries me that the postings here tend to really put the Hansa Center as sort of a miracle cure. Imagine, curing Lyme in 2 weeks?? If it were true, why doesn't everyone do it and why hasn't it's priniciples spread far and wide? My worry is that it gets desparate people set up for false hope and maybe only a small chance of a cure (and it costs a LOT of money).

I am NOT against Hansa as an alternative, I just think that the hype far outweighs the results. The truth is, different people with TBIs must be treated differently - no one way works for everyone. That might explain the few here that it helps. If you have lots of finacial resources and a long-term conventional treatment resistance, it's probably worth a go. But, the standard treatment methodolgies are based upon Burrascano et al - real medical doctors with lots of training. Hansa's doctors are chiropractors (they are not MDs) - nothing against chiropractors, but I would not and will not trust my long-term Lyme treatment to such a limited basis of expertise.

Sorry for the cynicism, and I will not say anymore on the subject but, IMO, it's caveat emptor.
Posted 1/4/2012 5:46 PM (GMT 0)
Hi 4lanz!

I have not been to Hansa, but I have been reading Dr. Jernigan's book and implementing some of his at home suggestions - such as detox baths, methods to raise my core body temperature, etc. I think his approach at the very least has a lot of useful information to offer.

IMO lifestyle plays a huge role in determining how long you stay well once you're better/recovered/cured/whatever you want to call it. I think there are a lot of paths to healing, but also a lot of paths to illness. Personally I know stress and poor lifestyle choices had a lot to do with why I got much worse in the last year after being healed - not 1--%, but to the point of being able to function. Of course I also think how likely you are to relapse has a lot to do with how much better you actually do get, and it's my understanding that the Hansa center is pretty thorough and focuses on healing the body as a whole and restoring complete health, not just getting rid of the bacteria.

I'm sure other members with personal experience will post - but in the meantime have you read Dr. Jernigan's book, "Beating Lyme Disease"? I think it could definitely help you decide if going to the Hansa center is something you want to do.

Also, one of our members - treehousemom - has recently taken her daughter to the Hansa center, and has posted a link to her blog about her experiences there in her signature, if that would interest you.

Keep us posted - I hope you find your daughter the healing she needs! Take care.
Posted 1/4/2012 6:43 PM (GMT 0)
When your child is unexplainably sick it takes things to a whole different level and you are right to ask that exact question. Anyone one year later
who can weigh in.

Are you thinking your child has lyme?

Can you back track to when things started?

What are the possibilities of being exposed to mold in school or even
a riding stable.

Any accidents or what type dental work has your child had?

Who have you seen already?

Is anyone else in your house sick?

How extensive has the blood work been?

I just gave my younger sister a stool test for Christmas.
It cost $almost $400 from Metametrex labs but it told me
all the things my regular insurance covered stool test did not.

Going out of town and the expense of camping out in a hotel
and travel is a big part of these treatment centers.

Where do you live?

I could not imagine having a child with something like this.
I would be on every flight to every cure I hear about on these boards.
And spending the rest of my hours lighting candles, begging God for a
sign of WHAT to do.

I would love to hear the cure stories of one year later from anyone who
has been to Jernigan or any of these lyme treatment centers with antibiotics or without antibiotics.
Posted 1/4/2012 10:42 PM (GMT 0)
Hi 4lanz and welcome!

Very sorry to hear about your daughter...

I followed Dr. Jernigan's "Healing at Home" protocol from his first book and I have been symptom-free for 6 years now (no relapses).  I never went to Hansa yet I keep up with Dr. J's articles, new information that he discovers, etc. 

I am signed up to receive Hansa's e-mails which teach me much.

To anyone interested in his protocol, I suggest reading his book first called "Beating Lyme Disease and Living the Good Life in Spite of Lyme" (2nd edition).

If you don't know where to buy it, the only place I know is here (less money for the soft cover):

www.hansacenter.com

http://www.hansacenter.com/shop.php#books


Yazzer,

You bring a smile to my face... Why?  Because in your own way you are already doing Dr. Jernigan's protocol by building your immune system, detoxing, etc.

Hansa Center is NOT a 2 week cure, it's a starting point and when a patient goes home they continue detoxing, taking supplements that are tailored for them by the good doctors at Hansa, etc.

Yazzer, I really suggest you buy his book, you may be surprised in more ways than one.  Last but not least, chiropractors must complete more college years compared to a medical doctor, did you know that?

Here is one link, there are more:

http://www.yourmedicaldetective.com/drgrisanti/mddc.htm

Google it and you will find out for yourself.  Dr. J. is just NOT a chiropractor, he is an inventor, a researcher, a scientist. 

Denise

Posted 1/4/2012 11:09 PM (GMT 0)
Yazzer, I have not been to Hansa, but the people I have heard from who have gone do not expect to be healed in two weeks, rather get on the right track ny heavy detoxing and addressing the specific needs of their body. This makes a lot of sense to me since everyone with Lyme presents differently and has different issues. After the two weeks, I think some go back for another week and most have phone follow ups. Most importantly, they continue the protocol for a while. I've heard dr. J says it will take 3 months for every one year you have been sick before you are well.

Bucci, I'm sorry I didn't really explain our situation....yes, we have done every test imagine able. We have been to over 40 specialist and 4 different hospitals. A year into my daughters illness I finally heard about Igenex and the Lyme controversy. We had an Igenex test and it came back CDC positive with babs and ehrlichia. She also has signs of bartonella, mainly the rash. We have tried oral antibiotics, bodihealth (it's the only thing we've seen significant improvement from), acupuncture, bio-feedback, chiropractic, craniosacral, and tons of supplements, herbals and homeopathy. We are currently going on 4 months of iv and mepron.

Her story is a typical worse case Lyme scenario.....got so sick that ata ge 11 she had to be carried most places, used a bed pan and ended up in the ER screaming with migraines ( and she is very mild majored!). She had lots of physical symptoms.....her hands and feet were purple, her blood pressure was dangerously low, she grew 6 inches over the year but couldn't gain weight because her food was not digested or absorbed.....she was very sick, yet every dr., except one, said it was psychological!!!!! We actually had the drs. At a well known children's hospital try to kick us out for 2 days while they did a 48 hour observation on her because they thought we were the cause! Crazy.

Anyway....she is better, but still far from well. This is why we are looking at the Hansa center.....

Thanks all for your help. I'm definitely ordering dr. Us book!
Posted 1/4/2012 11:44 PM (GMT 0)
Hi,

How much is Hansa? I have been very sick with Lyme for the last five years, but my LLMD has said I need to have oral surgery to remove root canals before he is going to put me on IV antibiotics. I have a lot of neurological symptoms, extreme fatigue and pain in my legs. What is bodihealth? You said it helped?
Posted 1/5/2012 12:04 AM (GMT 0)
Bodihealth is an electrical treatment that is supposed to help your immune system in such a way to help it naturally attack the Lyme....it is not like rife...it doesn't target the bacteria in the same way. I know several people who have gotten completely well on bodihealth, who were very sick. It took my daughter from her worst bedridden state to about 60-70 percent well....it took about 9 months to get to this point. But then she started going backwards....we rode it out, thinking it was targeting another infection, but after 7 more months we stopped. I know it got her better, just not well. It is expensive and I think you can only get the machine from the company. I think Hansa is about 700 a day?
Posted 1/5/2012 12:07 AM (GMT 0)
At the end of the day, we're all here to share information and support each other. We are all of course very different people, with different experiences, different courses of illness, and differences of opinions on how to treat our illnesses. There are so many paths from point A to B, and the best we can do in dealing with this thing is get as much information as we can about all of our options.

The main idea - as far as I can see - behind the Hansa treatment protocol is to restore the body's health all around. I think the key difference is that his remedies aim to support the body in treating itself, whereas in a more traditional approach (antibiotics - prescription and natural) the remedies we take aim to directly treat the illness. Both ways make a lot of sense - both have their pros and cons. Comes down to a matter of choice and what resonates with you.

I also remember reading that one should expect 3 months for every year's worth of symptoms (although I'd personally prefer it if this weren't true!). I think it's important to note this here for anyone getting the impression that the Hansa center offers a 2-week miracle cure. The meaning of doctor is really teacher. And it sounds like that's what they do at the Hansa center - teach you how to heal. It's not too much different than my monthly appointments with my LLMD - she doesn't actually heal me (if only!) - she teaches me what I need to do every day to get myself better.

I wish those who go to the Hansa center nothing but the best - there's good reason to expect a lot of benefit from it. And for those who are skeptical - that's okay too! Dealing with Lyme & co involves a lot of trial and error. It's a shame that it's such an expensive guessing game, but unforunately that's just how it is for now. Just like us patients have different perspectives, so do our doctors. I don't think it matters so much what kind of treatment you choose - I think the most important thing in predicting success is choosing a treatment plan that resonates with you, your perspective, and your beliefs about healing.
Posted 1/5/2012 12:36 AM (GMT 0)
Well said, Border - very well stated. Deejavu - thanks for the compliment abt how I am already doing the things Dr. J. suggests - and I didn't even have to buy a book or spend $700/day for treatment! That is exactly my point! I'll leave this subject at that and promise not to comment any more regarding my opinions on the Hansa center....
Posted 1/5/2012 4:15 AM (GMT 0)
4lanz,
I also did Dr. Jernigan's at-home protocol. Actually, I am still doing follow-up to use up the rest of the bottles of drops - I'm in month 10. I spent about $700 total, including the book. I may keep taking the one detox drop for longer. I was TOTALLY skeptical about the Hansa Center and at-home protocol. I simply do not have enough money to go to the Hansa Center and it seemed too "weird" for me anyway. I tried 9 months of multiple antibiotics and then many more months of various alternative treatments. I had plateauted while on the antibiotics and then maybe got a little better on the other things. Kind of out of desperation I decided to try the at-home protocol, but thought about it for many, many months before diving in. I had an appointment set up with an LLMD over 3 hours from my home, because the LLMD that had prescribed the antibiotics left her practice so I was without a doctor after 9 monts of treatment. I didn't notice any improvement on Dr. J's at-home protocol for a while and then very slowly I started to feel better and right now I feel normal. I have some pain once in a great while, but NOTHING like I had for 4 years with no diagnosis, having seen 10 doctors and having been tested for absolutely everything. Am I cured? I have no idea, but I was a train wreck by the time I was diagnosed and my mind was alzheimer's bad - I was seriously thinking I may not be able to do my job much longer and there is no possible way I'd ever quit my job unless I HAD to. So although I feel everything that I did had some impact on my getting better, I do believe that the at-home protocol definitely did help me. I had NO side effects from the drops - I just followed the guidelines in the book and didn't buy any of the products except the main drops (3 kinds plus the detox drops, all explained in the book). I also am a firm believer in detoxing. I experimented with stopping the epsom salt/hydrogen peroxide soaks because I thought I was probably wasting my money. I'm a VERY skeptical person! I don't do the baths though. What I do is stop the drain when I shower and put in 3 handfuls of epsom salt (1/5 of the bag) and 1/5 of a large bottle of hydrogen peroxide and swish the water around. I'm in the shower about 10 minutes and I take a shower every day. I still continue to do this and probably won't stop for a long time, if ever. When I was still feeling pretty bad or on worse days, I'd do an extra foot soak for about 20 minutes. I did the dry brushing for a while and started forgetting to do it...not sure when the last time I did that was.

I would definitely try the at-home protocol before going to the Hansa Center if it was me or my child. I have to say I honestly didn't think it was going to help me any more than anything else I tried, but it did. If I would have gone to the out of state LLMD, it would have cost me more for the appointment ($350) and tests they said they had to do for a new patient (at least $300), plus gas/meals for the trip and any new meds they wanted me to try and then follow-up appointments (required one month follow-up, plus who knows how many more).

I also wanted to say that I have not changed my diet one bit. I eat sweet things all the time, gluten, drink alcohol once in a while, and anything else I want to eat. I also have had no problems with exercising and do so every day. Everyone is so different! I hope you find something that helps your daughter.
Posted 1/5/2012 3:38 PM (GMT 0)
Hi Tala 3 and anyone else who has done Hansa/dr.js protocol on their own....how did you know which tinctures to take? I read an article from their site, the ammonia on the brain one, and really want to try this with my daughter(it really sounds like this could help her). However, the article says to take a neuroantitox and I see there are several. I'm thinking I will go for the basic one, but was wondering how to choose...she has all the issues for all of. Them!!! Same questions about the borrelogen vs. the micrologen....they both sound good for her??? She does have Lyme and Bart, babs and ehrlichia. I'm guessing the borrelogen would be better? Also, is it possible to take these while on antibiotics. I'm worried this may be double duty and be too much, but I really want to detox the ammonia in her brain. I would greatly appreciate any wisdom and experience in this area. Thanks,
Posted 1/5/2012 3:53 PM (GMT 0)
My God, 4lanz, you have really been going thru nightmare lyme.

I always wonder when children are this sick what are chances of the
Mom having lyme.

Is your daughter growing up on Long Island (Wrong Island)?

you mentioned Stoneybrook lab. I think years ago it was controlled by
the government to stere everyone away from lyme.

That whole area is infested. I wonder how many times your daughter has
been infected.

I grew up on Wrong Island and have been sick my whole life and spent the second half of my life investigating every possible thing that could be going on before just finding out in 2009 the whole story.

Do you, your husband and daughter have the HLA gene? The one in four that can not detox mold and lyme fast enough. Back track on this mold thing and any possibility of being exposed.

It sound like she has been bitten by the really wicked ticks. Some are worse than others and the island is full of them.

What is your own health like and everyone else?

I think Jernigan is good for detoxing and realigning the whole crystal matrix but if you go there he probably will make you feel like the abx was a mistake and some how especially in a case this severe I can't see how abx could be avoided.

No matter what the test shows it is obvious this is deep in the brain.
I'm really curious who your LLMD is or was ?

can you email me? I want to ask you about 2 specific docs in NY but can't because of the rules we have.

I am surprised they didn't put her on IV abx sooner? who knows the why of anything?
Posted 1/5/2012 4:27 PM (GMT 0)
Hi Bucci....sorry if I said something to make you think we were East coast. We are in CA. We never used Stoneybrook...it was IGENEX. That is an interesting thought about the gov. Controlling Stoney.....wouldn't surprise me! have you read LAB 257(not sure that is the right name?!)? It's very interesting....I think there just may be something to all that craziness.

We do not know how my daughter got Lyme...never saw a bit, bug or rash. She was a very healthy, athletic ten year old....one day came home from school with a headache and never went back. It went from a week of feeling like she had a cold to being in the ER thinking she was having an anorisim or something....she was screaming in pain. Within 2 months of the original headache she could hardly walk. Within 4 months she was being spoon feed and couldn't even turn herself over in bed. And they thought it was psychological! That is the part that makes me so angry! We had top doctors telling me that my well adjusted, healthy, smart, happy 10 year old went crazy over night. They even tried convincing me that maybe she had been abused. I'm not kidding....we felt like we were living in some freak nightmare.

Anyway, we have wondered if I gave it to her....I'm healthy but I also have a younger child who has been sick since birth.....never as sick as her sister. We thought for nine years that she had a metabolic condition, but at age 9 she was diagnosed with Lyme and the genetic/metabolic dx was retested and not found! The dr. Thinks Lyme had shut the pathway down and mimicked the metabolic condition! Strange....so maybe I passed it to them. I have not been tested....too much to take care of with my kids. Since I'm not symptomatic I figure I'm not stirring the pot.

As far as the antibiotics....we did try oral abx when my daughter was first dx, after being very ill for a yr. it was too much....she ended up in the hospital for a month on major iv pain meds (which did nothing to help) trying to control the pain. I kept telling the doctors I thought her pain was from the toxins caused by the die off from the abx....they thought I was crazy! I weaned her off of the pain meds, got her out of the hospital, took her off the abx and found bodihealth......since then we have tried everything and came back around to abx.....going very slow and cautiously, until we built her up to where she is now.....iv rocephin, Zithromax, mepron and tindamax...a lot. And, I don't feel like it is doing anything. We are in month 4 and NO improvement. So, I may agree with dr. J that abx aren't the way to go for her....I think there is something wrong somewhere in her body....maybe the detox pathways? I think we may have the best bet at figuring out the missing link with dr. J....we will see.

I am going to look at her records again...I feel like we had that HLA test, but not sure what that is. I will look into it. Thanks.

Best to you. I am so sorry you have been sick so long....I pray ou will find healing.

Post Edited (4lanz) : 1/6/2012 12:32:29 AM (GMT-7)

Posted 1/6/2012 1:10 AM (GMT 0)
Hey bucci...whats the HLA gene?.....something about your body not being able to detox itself...THATS THE EXACT PROBLEM I AM HAVING.....i have to "snail" dosages...*slow* because my herxes r unbelieveable and im still swollen from my lymphs....so i dont think my body is being effecient on working on its own at all....
Posted 1/6/2012 1:39 AM (GMT 0)
4lanz,
Sorry I just now checked on here and saw your question. You really need to read the book for what, why and how to take the drops. From what I understand, you can now download an e-book version which is much cheaper than the paperback copy and you'd have it immediately. I would think you could download it to an e-reader, if you have one?? You would order either directly from the website.

It is a hard decision to make on which neuroantitox to start with - I waivered back and forth before deciding on one and then later switching to a different one. In the book it explains that she would actually take all three of the main drops - Borrelogen, Lymogen and Microbojen. I would not start this without reading it first. I didn't have any side effects, but this is your child and you don't want her to take it willy-nilly; there is a set protocol to follow.

I was not on antibiotics or anything else when I did this protocol. I'm not a medical person in any way, but I don't think I'd do both at the same time if it was me - at least not without consulting with an LLMD. Since you have a doctor (I did not), take the book in to him/her and explain that you want to try this and see what they think, or maybe you could call the Hansa Center and ask them?? I know before I ordered any drops I sent a detailed email asking lots of questions.

He really pushes the mind-body-spirit aspect of healing, so if that is foreign to you, you'll have to read it with a very open mind :)

Good luck and keep us posted on what you decide!
Posted 1/6/2012 1:52 AM (GMT 0)
Also wanted to say...although I have no problems with any foods, a lot of people here on HW that have LD also have gluten intolerance. I have a relative with this condition (no Lyme) and it is nothing to take lightly. If you haven't already, you may be wise to seriously consider having both of your girls tested or at least do research on it in earnest. There are so many various symptoms that they are not always what you'd think they'd be, and every speck of gluten causes permanent damage to those affected. Also, serious detoxing with epsom salt/hydrogen peroxide baths/soaks will do wonders for the amonia build up.
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