confused....

In July I became really sick for about 3 days with a high fever, chills, body aches, and swollen glands. After about 3 days the body aches and the high fever pretty much went away. However since then I had been completely exhausted and had glands that continued to be swollen. I chose not to go to the dr because I thought I may just have had the flu. But in late august I had an appointment to see my gynocologist and explained to her what had been going on. She did some tests and found out I had mono and also found out that my test for lymes disease came back positive. She prescribed me doxycycline but a couple of weeks later she called me again explaining that the western blot test for the lymes disease came back negative but chose to keep me the antibiotice because I was feeling better. This is where the first part of my confusion was. I had no idea if I had lymes disease or not. So I continued to take the antibiotice for awhile but stopped with about one week left because it was making me nauseous and I was experiencing bad acid reflux with it. I had actually started feeling much better when I stopped taking the doxy. So at the end of september I had a follow up appointment with a family practioner. At this time I asked him if I had lymes disease. He told me no because the western blot was negative. He did another set of labs and sent me on my way because I was feeling better. Again the preliminary test for lymes came back positive but the western blot was negative again. But I was feeling better so I didn't worry about it.

Well, after about a month I started feeling horrible again. I had extreme exhaustion and was experiencing a lot of joint pain in my hands, wrists, elbows, and shoulders. Instead of going back to the same dr. I chose to make an appointment with my family dr I had growing up in my hometown which is 4 hours away. When I explained to him my diagnosis and test results he said it doesn't matter that the one test was negative because the first one was positive. He prescribed me amoxocillan for one month and to follow up with him in a month. Well again this med  made me so sick I could not take it. So we tried Biaxin. At this time I had my follow with him. The biaxin was not helping my symptoms so he took me off it. Since my symptoms are getting worse, including more joint pain, extreme fatigue, heat rash, another type of rash on my stomach, headaches, constant fever, trouble concentrating, and some forgetfulness he told me he wanted to start me on a 6 week course of IV antibiotic. Unfortunately because I am 4 hours away he cannot do it from his clinic. So he instructed me to go see the dr I had seen in september again to get this plan started. I made the appt, my dr faxed a letter to this dr which I did not get see so I have no idea what it said and I just went for the appt this last wednesday. Again this dr told me I do not have lymes disease but I do have symptoms of it. He referred me to a infectious disease dr which I have to wait another week to see him and feel horrible for another week without a plan in place in helping me feel better. :( This is why I am confused. I have no idea if I have lymes disease or what to think. I'm wondering if anybody has had this same experience or has any info on this at all. Any information is helpful!!! Thanks!

She reviewed my results with me from the tests taken last wednesday and told me that my preliminary test was positive again, my IGM was positive but my IGG was negative. So she pulled up a website and showed me where it said that the IGG needs to be positive for her to give me a diagnosis of lyme. She then went onto to explain that there are two types of doctors out there. One type who will treat even if the IGG is negative and the type who won't. She is not the type who will.   I explained to her about me seeing my doctor in my hometown and about the letter he had faxed to this clinic before my previous appointment which she did read. And she also asked for my permission to speak with my doctor there which is good I guess. However, she ordered another set of different lab work including auto immune testing and a chest xray and referred me to a rheumatologist. Because she is saying that I do not have lymes disease and I must have something else going on. So after the appointment I called my hometown doctor, who still thinks I have it but directed me to go see the rheumatologist, saying that I may be able to get somewhere with that doctor. But if I don't....to contact him again and he will figure out a way to help me. So I have another couple of weeks to feel horrible again.