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Off antibiotics! Yay!

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Posted 1/22/2012 1:56 AM (GMT 0)
After over 2 1/2 years, I am now off antibiotics.  I weaned myself off slowly with the permission of my LLMD and so far so good.  I am so so hopeful at this time.  I realize I don't think I will ever be completely free of lyme but I know now how well I can feel again.  I am happy, energetic, accomplishing so much. 

There was a time I really thought I'd never be well (or happy) again.  I suffered terribly, both mentally and physically.  When I tell you ever minute of every day was a battle to get through.

I still have quirks here and there, i.e. weak legs one day, minor joint pain the next, blurry eyes the next, but it seems that my body has a way of keeping things in check instead of getting worse.  I am still taking all the supplements, antidepressant, and I even lowered by neurontin. 

I hope this gives you all a bit of hope as I know I used to love hearing success stories. 

 

Posted 1/22/2012 1:59 AM (GMT 0)
Great news springsjean,

Hope you continue to feel better and better!
Posted 1/22/2012 2:03 AM (GMT 0)
Thanks achieving. I feel like I hit the lottery. I've been decluttering my house, shopping, sleeping, etc. Isn't it amazing what we take for granted?!
Posted 1/22/2012 2:03 AM (GMT 0)
EXCELLENT - woo-hoo!
Posted 1/22/2012 3:44 AM (GMT 0)
I'm so happy for you!!!!!!!!!!!!

Thanks for sharing your story - it really does help, a lot! I know it stinks to still have remnants of Lyme, but I'm sure you'll never take for granted all the healing that you've achieved. Congrats!!
Posted 1/22/2012 4:35 AM (GMT 0)
Hooray! That is very exciting. I'm sure it feels great to not be putting all those antibiotics into your system.
Posted 1/22/2012 11:41 AM (GMT 0)
Thats wonderful news!!
Posted 1/22/2012 1:28 PM (GMT 0)
Yes!!!!
Posted 1/22/2012 1:41 PM (GMT 0)
FANTASTIC !!!!!!      yeah      A good feeling, isn't it? !!   Hope you stay well forever and ever !!! 
Posted 1/22/2012 2:12 PM (GMT 0)
Thank you so much. You guys are the best!
Posted 1/22/2012 2:13 PM (GMT 0)
Thank you so much. You guys are the best!
Posted 1/22/2012 3:46 PM (GMT 0)
How wonderful!!! turnCongrats Springsjean!!! yeah I know you have had a lot of struggles during your treatment! It's so wonderful that you have finally reached this point!!!

I vote for no relapses or increase in any symptoms!!! smilewinkgrin

Congrats again!
Posted 1/22/2012 4:46 PM (GMT 0)
this is my first post. I'm hitting a real low so it is good to see there is hope. I was starting to wean off of meds and now just got back a positive CMV virus test, again. At least I know why all I want to do is sleep! I am so fustrated. How do I know my Dr. is treating me properly? I was confident when I started but after 2 years, I'm not so sure. My family totally disapproves of my being on antibiotics for so long, especially since I am not all better by now. I was 1 1/2 years of being improperlly diagnosed so I get that this is a life long sentence. I just don't know how much longer I can keep up the "happy face" and get through the day unless I know something I'm doing will help.
Posted 1/22/2012 5:06 PM (GMT 0)
Thanks for the Hope it is much needed....congratulations...and if i were there i would hug you...lol
Posted 1/23/2012 12:56 AM (GMT 0)
congratulations!! that is so exciting :) hope you continue feeling even better daily!
Posted 1/23/2012 2:53 PM (GMT 0)
@sleepy, I have to tell you I went through the same thing. I had numerous people tell me not to stay on antibiotics for so long but in my mind, I had to trust the dr. and listen to my body. I knew I couldn't continue to live the way I was. Yes lyme is a life sentence but so are many chronic illnesses. It doesn't mean you have to live miserably. Just consider it your challenge. Everyone has one whether it be weight, family issues, illness, depression, etc. I'm not downplaying the illness, just trying to let you know how I approached it and how I got through it. I hope we can be of help to you here.

Are you seeing an LLMD? What treatment are you on? When you wean off meds did you continue to naturals?
Posted 1/27/2012 12:40 AM (GMT 0)
Good to hear you are off the antibiotics and doing OK.  I just had a set back, off lyme antibiotics and back on babesia ones for another 9 to 12 weeks.  I am hopeful, just need to get over this little bump.  Linda
Posted 1/27/2012 2:07 AM (GMT 0)

springsjean said...
@sleepy, I have to tell you I went through the same thing. I had numerous people tell me not to stay on antibiotics for so long but in my mind, I had to trust the dr. and listen to my body. I knew I couldn't continue to live the way I was. Yes lyme is a life sentence but so are many chronic illnesses. It doesn't mean you have to live miserably. Just consider it your challenge. Everyone has one whether it be weight, family issues, illness, depression, etc. I'm not downplaying the illness, just trying to let you know how I approached it and how I got through it. I hope we can be of help to you here.

Are you seeing an LLMD? What treatment are you on? When you wean off meds did you continue to naturals?


springsjean,
I am soooooo happy for you ((HUGS)) after spending three years on ABX I know just how good it feel to be off ABX. It really is amazing how much you learn in our journey to regain our health isn't it? I'd also like to thank you for the time you spend advocating for other on this web site.

sleepyteacher,
Welcome to our forum, sorry you are not feeling well. It sounds like you have spent some time on ABX, have you been detoxing? Have you considered any herbs, and supplement alternative treatments?

Best wishes
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