Flagyl and Issues I am having

Hi Everyone:

I apologize for not being on the board. My husband does not like my being on the boards because he thinks it causes me to think I have other things...I'm sure you know what I mean...so I've been very good about it however, I had to get on to ask a question because I'm feeling very nervous about being on this med.

I started Flagyl 14 days ago along with Biaxin. I have been having LOTS of sensations in my left leg and foot.. Like creepy crawlies, vibration, etc. I looked up this med and one of the things it says is that it can cause permanent parthesias and if the patient reports any in their limbs, to report it immediately. Well, I have these, have had them all along (although, they haven't been NEAR as bad since I started taking this med). I am concerned that these might become permanent and not sure if I am just simply herxing or what is going on here.

Also, my stomach...ugh I am having a major disruption in my digestion from this....gas, bloating, constipation, you name it. Even a little heartburn. I just don't know what to do and didn't know where else to turn except to ask the opinion of others who have taken this. I am taking Florastor each morning and evening with the meds and then yesterday, took a VSL #3 around noon.

I don't know if it's related, but I'm also feeling very emotional...I feel like I need to cry all the time.

Any thoughts would be greatly appreciated.

Carrie......The parathesisias have been my major cpmplaint since before being diagnosed with Lyme. I am17 months into therapy and still have them. I am on mepron for babesia, and A bart for bartonella. The antibiotics I am on are minocycline and Amoxa clav. I get itchy and crawly every afternoon. My LLMD seems to think that it is bartonella. Have you been tested for that? I will be off the mepron next month if I have no more night sweats this month. This has been very scarey to me and I cry everyday.I am now having problems with my teeth also. Due at the dentist for 6 month cleaning in Feb. I am waiting til them to address the problem. I am sorry you are feeling this way. It sucks. Two years for me.Hope you get some relief soon. Lis 

By the way...I sure miss all of you!!!

Hi Carrie,

I had trouble with Flagyl in the beginning, as well. Had to stay near the bathroom and it was very difficult to eat. It did settle down with time. Detoxing was very important.

My doctor insisted that I take a lot of Vitamin B complex with the Flagyl-- it really helped with the crying jags!!

Hope things get better for you soon.

I have been using my far infrared sauna.  I will admit though, I've been having a hard time drinking the amount of water I normally drink because I feel so bloated all the time.

I am sooooo depressed.  I just feel like bursting into tears...it has to be the Flagyl making feel this way.  I am heading to San Francisco in about an hour to discuss this with my LLMD.

Also, I haven't told you all, but I had my appointment at UCSF MS center to review my latest MRI which showed no changes.  The neuro insisted that I DID NOT HAVE LYME!!!  He said they tested for it in my spinal fluid and in a regular blood test. (which I knew).  That got me pretty depressed, but I snapped out of pretty quickly when I thought about the fact that the doctors on the "lyme side" of the equation are just as adamant that I DO have lyme (which a positive Igenex test back it up).  The neuro had never even heard of Igenex which really surprised me...  He also said I do not have MS but wants me back in another year for another MRI.

Thanks everyone...I really appreciate your help.

Carrie

I am taking Flagyl and feel pretty good. I did have a major yeast battle for a couple of weeks so I stopped for a week but I am now back on it with no problems yet. I actually think it has made me less bloated and constipated. No herx either. ??