No one can say for sure why the Lyme controversy is the way it is. The most...polite...explanation is just that there is a lot of misinformation circulating out there. Personally I think the whole thing is a large scale version of people sticking their fingers in their ears and saying, "la la la I can't hear you!"
Thankfully, those of us affected by Lyme and coinfections have the ILADS to count on (International Lyme and associated disease society) - who know how to diagnose and treat Lyme disease correctly.
There are a number of books out there explaining the whole issue of Lyme disease in detail - my favorite was Cure Unknown, although it's not exactly an uplifting read!
Have you been diagnosed with Lyme (I'm assuming so if you were being treated)? Sadly many people are diagnosed with fibromyalgia, as well as a host of other conditions, when they actually have Lyme disease. I was one of them - even after being diagnosed with Lyme! Quick and easy IDSA treatment didn't work, so they shrugged their shoulders, said, "eh, it must be something else," three years later I was diagnosed with fibromyalgia, 5 years later I was rediagnosed with Lyme and thankfully I'm finally starting to improve!
Are you planning to resume treatment? I'd given up at one point - I just stopped trying to treat "whatever this is" for a few years, until it got to a point where I couldn't ignore it any longer. Even if you're not sure if you want to give full on Lyme treatment another go, you might want to try some of our detoxing suggestions (posted in the "New to Lyme? start here!" thread) - detoxing is relatively easy and might just help alleviate some of your symptoms.