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Posted 2/2/2012 12:34 AM (GMT 0)
Hi every one,

                   i was sick for 2 months and janurary 6th i was diagnosed with lyme .

My dr. prescribe me 3 weeks of doxy 100 mg twice a day.

at end of 3 weeks he says i am all good now . I dont need any more medication.

I feel better but not 100% . I feel heat in right leg muscle. Is there any test to confirm

that i dont have lyme any more. or what. please help me . because i dont want infection

to stay in my body and reappear after time.

please advise..

Thank you

 

Posted 2/2/2012 12:48 AM (GMT 0)
Hi bkumar,
Unfortunately none of us here can tell you if you have been cured of Lyme disease, or any other co-infections. If you are seeing a PCP who only treats using the IDSA guidelines chances are this doctor may not treat you any longer no matter if you have continued symptoms or not. Like most of us suffering with Lyme disease this is the case. May I suggest you see a LLMD that treats using the ILADS guidelines.

Best wishes
Posted 2/2/2012 1:34 AM (GMT 0)
Yep. If you still have symptoms you still need treatment. Don't waste time- go see an LLMD.
Posted 2/2/2012 2:45 AM (GMT 0)
As far as I know, there is no test to confirm that you are cured of Lyme. Many doctor's believe that once Lyme has become chronic, it cannot be completely eradicated from the body, but rather put into remission.

If you caught the Lyme very early and took an antibiotic right away, it may be possible to prevent it from becoming chronic. However, you stated that you were sick for 2 months which would suggest that the infection had more than enough time to progress to a more serious state.

100 mg of Doxy generally doesn't work to eradicate all three forms of Bb (lyme bacteria). There is also the possibility of co-infections such as bartonella, babesia, erlichia/anaplasma all of which could have been transmitted by a single tick bite.

I would suggest consulting with a LLMD like others have mentioned. He/she can go over your symptoms and help determine whether or not you need additional treatment.

Posted 2/2/2012 2:57 AM (GMT 0)
If you're not seeing a LLMD, your doctor is probably treating you by IDSA guidelines, which, basically...are wrong. Most of us here are being treated by ILADS guidelines, and I believe standard protocol is to treat for 2 months after symptoms go away completely. It's a great sign that you've gotten better, but you really need to make sure you get fully treated for this thing.

It also often requires a combination of different types of antibiotics to fully eradicate the infection - which is something a "regular" doctor isn't going to be aware of. Most doctors just aren't trained correctly in how to treat Lyme disease, and they're taught to believe that it's a much simpler illness than it is.

Your best bet, like some others mentioned, is finding an LLMD. Please let us know if you need help finding one.

Best of luck!
Posted 2/3/2012 12:40 AM (GMT 0)
thanks for your reply ,
I think i am not cured , my eyes are red. and some times i feel sick.
PLEASE FIND ME A LLMD ON LONG ISLAND.
PLEASE ANY ONE GIVE ME NAME OR # FOR LLMD ON LONG ISLAND NY

I SEARCHED SO MUCH ON NET , BUT CANT FIND ONE .
THERE IS A INFECTIOUS DISEASE SPECIALIST IN PLAINVIEW NY ,

PLEASE FIND ME LLMD ............
Posted 2/3/2012 12:45 AM (GMT 0)
For information on finding a Lyme Literate Medical Doctor(LLMD) in your area, please email our long time member, Dan's Mother at:
[email protected]
If you'd like more doctor suggestions, you can email stephanie at: [email protected] You can also go to: www.turnthecorner.org/bod.htm if you want to learn a little bit more about Lyme Disease.

You can also go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link: www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74

You will want to find an ILADS (International Lyme And Associated Diseases Society) doctor. The ILADS site is a great place to read to get you started on your Lyme journey.
www.ilads.org/lyme_diseasehttps://www.healingwell.com//treatment_guidelines_clearing_ilads.html

Hope you find an LLMD soon!
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