Hi! I posted on here earlier in January with my story and what has been going on. Basically what has happened was that in August my preliminary test for lymes came back positive, but then the western blot was negative. At that point I continued to take the abx doxy because it was helping. However it did start making me sick so I stopped with about
a week left of it. I had a follow up with a family practice md in september who told me I didn't have lymes disease. I was feeling better at that time so I was sent on my way. Well about
a month later I started feeling sick again with other symptoms. I went to my md that I had growing up and he stated even though the western blog was negative I had lymes disease so I was started on amoxocyllyin which also made me sick, he switched me to biaxin, again made me sick. At this time he did not prescribe anymore abx and wanted to start me on IV rocephin but being 4 hours away he could not do that. So he instructed me to return to the md I saw in september. This MD referred me to an infectious disease md. She again told me I did not have lymes disease, did autoimmune blood testing and referred me to a rheumatoligist and also told me to come back and see her in two weeks. Well last friday I had both appointments. The rheumatologist started testing me for sjorgens syndrome but my clinic did not know how to do part of that testing so I have to go back to him, sign some paperwork, and they will check my insurance. If my insurance does not cover this test I will have to pay $800 to get it done. I haven't gone back in yet to do this. I also saw the ID MD that day and she basically told me she has no idea and asked what I would like her to do. I had no answer for that. So she did a chest xray for me and told me if I still don't feel well in a month to come back to her. I probably will not go back to her.
So I have no idea where to go next. I have tried looking for a llmd in minnesota. I went to the lyme disease association website and did the md referral. One name they gave me was for a pediatrician, the other was an acupuncturist, and the last one was for a family practitioner which I thought was great. I called them made an appointment then decided I should search this clinic and get info before I go. Well this dr is a "natural healing" dr. They do not bill insurances and I would have to pay up front for the visit. I called back and it's usually about $255 for the first visit plus extra for any labs that may need to be done. So I cancelled that appointment. I have tried posting on other forums to find a llmd in this state and have emailed the person that was provided for me from this site to find one but have not recieved an email back yet. At this point....any help is appreciated!!!!