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Leg pain returning; meaning?

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Posted 2/15/2012 9:41 PM (GMT 0)
Hi all,

My drs plan, after 6+ mo of abx, is to take me off if I'm feeling well. I'm in the last 6 wks of this plan and the leg aches--the first and longest lasting symptom Ive had has returned after quite a hiatus. The change this month is an addition of plaquinel.

Do you think this is herx from the added med? If I'm herxing, does that mean I have enough bacteria left that I should stay on them a bit longer? My fear is that I will stop treatment too soon. I am tolerating treatment well.
Posted 2/15/2012 10:19 PM (GMT 0)
Strangely enough my leg pain or heaviness was one of my first symptoms and also one of my last. My LLMD said that it was not the first time she heard this . Mine has since left again with feeling well. Just another bizarro lyme item. I would definitely remain on all antibiotics until 2 months after last symptom.
Posted 2/15/2012 10:40 PM (GMT 0)
Thanks for the input, Springsjean. I had 2 months of Biaxin and the rest Doxycyline. Should I do my last couple months on Doxy or switch after all this time?
Posted 2/15/2012 10:58 PM (GMT 0)
i have gone through 3-4 weeks of serious leg pain-burning from really butt down to calves mostly, but also feet...started after i did 4-5 magnesium IV's..

I started having leg burning particularly around emfs just after amlagams were removed in 2007..i thought it was metal related until the last month when i clued into lyme-bart
Posted 2/16/2012 1:09 AM (GMT 0)
I don't know...but don't stop treatment until you have got rid of the leg pain! Leg pain was my biggest remaining symptoms when I quit treatment (too early). I did end up waiting 6 months, but by the time I started treatment again the leg pain had got REALLY bad. It is now my worst symptom, even thought it wasn't nearly this bad when I first got sick.

Lyme can move around a lot. You should keep treating for 2 months after ALL your symptoms are gone. So I would definitely not stop treatment yet!

As for what to take, I would definitely try switching it up. Only doing Biaxin and doxyycline might not be enough. Are you on high doses? Have you done a cyst-buster? (Flagyl typically).

Is your doctor an ILADs doctor? Multiple antibiotics are more effective than single antibiotics. You need intra-cellular, intercellular, ones that cross the blood-brain-barrier, and ones that get cysts.
Posted 2/16/2012 2:51 AM (GMT 0)
I think you're better safe than sorry - I've heard that treating up to 2 months after all symptoms disappear is pretty standard procedure. It's possible that the leg pain is the result of leftover toxins, or it could be active infection - you really can't know for sure.
Posted 2/16/2012 12:51 PM (GMT 0)
Hi worried,

I have not followed your posts so I don't know if you are on a detox program..

Toxins can be causing your leg pain, I had severe leg pain too, so bad that I couldn't walk.  With treatment and detoxing, my legs have returned to normal and stayed that way.

Hope you feel better!
Denise

Posted 2/16/2012 7:52 PM (GMT 0)
Most knowledgeable LLMD's will treat until 2 to 3 months after all symptoms have resolved. That seems to give the patient the best shoot at not having a relapse.
Posted 2/17/2012 5:17 PM (GMT 0)
Thanks all. I will see how the next 6 weeks go. But if I feel well for the last months, I will ask for at least another month of abx.

Its soooo nerve wracking.

I've also thought about asking her to test DH. I'd hate to get of the meds only to get reinfected if he somehow caught it from me. (He has no symptoms, though).
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