Something weird is happening...

I am starting to fell "well".... It's weird, even though I have gone through about a month-long herx of fairly disturbing neuro symptoms, I had been getting these brief periods where I feel absolutely WELL. Very fleeting but very notable. And the brief periods are getting longer and better. I titrated back on the abx and herbals for a couple of days to let my body catch up on the toxin dumpage and now have increased them again - the abx to full level and the herbals and GSE back to 2/3rds level that I was a week ago.

It's a strange sensation and I am really noticing improvements. The only aggravating feeling is that I am a little anxious that the bad stuff will return - but that's just my own emotional issue at this point...I am dealing with that through meditation and I just started back up on my long-lost yoga practice with my wife. Since I have had Lyme for at least 35+ years (since at least age 17), I don't know if I know exactly what 'well' feels like! LOL. I have felt great for long intervals over the last 35 years but not sure what that was based upon - maybe I can be even MORE WELL than those periods....very interesting. Anyway - here's my protocol as it stands now:

Ceftin 500 mg, 2x/day

Byron White A-L Complex, 2 drops, twice a day

Byron White A-BAB, ditto

Grapefruit Seed Extract, 2 drops, 2x/day

plus lots of vitamins and minerals

Protein & Greens (Paradise) drink 2x day

acupuncture 1x/week

chiropractic work 1x/week

exercise: running ~20 mi/week, walking 4-8 mi/week

sauna or bath 2x/week

coffee "thing" abt 2x/week

Always, remember that this thing can and will be beat - put your mind to it, add all the faculties available of your physical body, and go for it....be well, all.

 

Exactly! The good times get more frequent and last longer in time. It's exciting.

So happy for you. I remember when I too starting noticing "hey I'm not in pain anywhere" or "my jaw is not tight" or "I'm talking to someone without being anxious." It is just wonderful when you get to come back to life. I am still riding high and so enjoying it!!!

Wow yazzer I'm so glad to hear you're feeling "weird!" I like using the layers of an onion analogy - you really can't explain what it is that's feeling better - it's not this symptom or that, but just out of nowhere, a layer of illness has just peeled away! It's the greatest feeling in the world!

If it helps, I was in the same boat a while back - just so amazed at feeling better so unexpectedly, but really anxious that it would all fall apart. Things have gotten much worse again - although a lot of it is due to extraneous stuff - but I have to say it's not as devastating as I expected because having experienced feeling better, I know that I'm on the right path, you know? I feel exactly as bad as I did before, but that level of "progress" has stuck, and that's made all the difference!

Wow Yazzer, that's great news!  It feels good to feel good!  Having lyme was a real learning experience for me..  Before lyme I never heard of detoxing, coffee "things", LOL!, etc.   I didn't know about gluten, supplements, dry skin brushing, etc.  I ate fast food, junk foods, didn't exercise, and the list goes on.

Lyme gave me an education that I will never forget and still use to this day..

I'm 55 years young and now going through post-menopause, so if it's not one thing, it's another!  Mostly I have good days but once in a while I do get a bad day, hey, I'm only human!   If every day was good, how would I know it was good unless I experience a bad day?  Does that make sense?

Anyway, keep up the good work!

Denise

I believe it Deejavu! I am MUCH, MUCH younger than you (52 - LOL!) and, since I am a man, maybe I can experience womenopause, no? LOL. The coffee "things" - Jeesh! They took a while for me to try them - you have to know me to understand why - born and raised in the back roads of Maryland with all kinds of country-boy types of friend. I am 6-1" and 210 lbs and, that profile should make you understand why the coffee "things" were a tough hurdle to try. But, they do seem to work....ANYTHING to get those toxins out! I wonder if I took the "bag" to my local Starbucks and asked for a refill, what they'd say? Good grief!

I had actually already migrated towards a more healthy lifestyle back in 2002 when I lost 80 lbs and began running - I cut out red meats and then eventually cut out all meat except seafood. Having had the Lyme nigh on 35+ years, I think I was just naturally beginning to finally listen to my body and what it needed - I didn't do detoxing, per se, except the sweating out of toxins that inevitably occurred as I ran a total of 15,000 miles over the past 9 years! Plus, this good ol' boy went on a yoga retreat by himself back in 2006, this after a divorce from a 17-year first marriage. Now, I am remarried, know that most all my previous "issues" and episodes were LYME and so now have a better set of tools from which to deal with it. All my life, when I'd get those flares of "somthing", docs just said I had panic disorder with some co-morbid depression - who was I to argue? The flares DID always coincide with times of severe stress, so it made "sense" - at least it did then - now, I know what the real story is.

However, and I have stated this before here - Lyme has shaped me into who I am and I truly believe it has helped me achieve a lot of VERY GOOD things in my life. So, all this has happened for a very good reason and I won't know exactly what that is until I leave this mortal plane but, I can see the good as well as the bad with the menace of Lyme...that said, it is now time for it to LEAVE me alone and let me live the rest of my days without its influence!

Cheers!

Darn Yazzer,

I can't stop laughing!  Womenopause?  LOLOL!  And bringing "the bag" to Starbucks for a refill?  Haaaaaaaaa!!!  

Gotta have a sense of humor as humor makes a lot of sense right? 

I live in the mountains now and I love it..  Very calming as stress is a killer for any disease..  I remember what happened in my life when I became sick with lyme and it was no picnic!  I was going through an extremely stressful time..  On top of that my husband at that time (I ended up divorcing him) was sooooooo unsupportive of me..  Or he simply could not handle my being sick..  He was nasty to me, would yell at me and at that time all I could manage to do was go to work and by the time I got home I collapsed in bed...   He was furious that I didn't have dinner on the table.. And the list goes on..  But when he was sick with Crohn's I took off from work to bring him to all different doctors, babied him, etc.   But did he believe in lyme?  Nope!

When I left the state where I used to live and moved to the mountains (not that far from you), I just happened to meet a wonderful guy (did not expect that!)...  I believe everything happens for a reason even though we don't know what the reason is at the time it's happening..

Wow, do I go on or what?  LOL!!!

DeeNutsy!

That's what I am thinking, Jess - my immune system is strengthening too, lowering the pathogen load, and slowly returning my body to homeostasis...

Excellent news Yazzer. I too have been getting better as of late, still not running though which sucks....walking 30 minutes/day. It's funny, work has been VERY busy lately and I've gone through long stretches during the day when I don't even think about Lyme. Unfortunately I'll have a day here and there where I'll herx for the entire day, do my pooping thing (5-6x during the day), and feel like crap in the evening. But I'm encouraged by the fact that as long as I get enough sleep that night, I'll likely feel better the next day.