IGENEX TEST

I can open the box and list the tests, seems they sent me the kit and allow me to pick the panel, at least it looks that way from the paper that's wrapped around the box.

To save money we just did the what Razzle suggested for my husband, the Western Blot IgM and IgG. It was $260, I think. If you include the IFA and PCR it's definitely more expensive.

Thanks everyone. My eyes popped out of my head when I saw that price list! I'll do the Western Blot and see if my insurance company will cover part of it, maybe. ;)

just out of curiosity. I have alot of unexplained symptoms and a few years ago I had some sort of bite on my leg I am not sure what it was from but I developed a bruise like rash and since then I have had a lot of weird symptoms. I had respiratory failure in 2010 but before that had bellspalsy and strep in my lungs. I have had two lyme antibody tests which showed negative but I also had a mycoplasma testing by igm and igg...igm was negative but igg was positive for mycoplasma...can mycoplasma cause symptoms same as lyme

I feel like I have to hurry up because I am not at all sure what is wrong with me. they did find a lesion on my brain that hasn't changed in a year and my ear on the left twitches plus alot of anxiety. My doctors won't order anymore lyme tests since the two they did were negative I think thats very closed minded of them...is there anyway that my neurologist could find it,I'm having a lumbar puncture because of the brain lesion and I'm not sure of what its being tested for but can I suggest a lyme test in the spinal fluid?

Lumbar punctures are very unreliable as far as Lyme testing, more so than blood tests, I believe.

A regular doctor isn't going to take the possibility of Lyme seriously; you could try asking them to send your bloodwork to igenex but that's probably about as far as they'll go. Mycoplasma is pretty common in people with tick-borne infections, and if you're having symptoms you should see an LLMD (Lyme literate) so you can get thorough care. Please let us know if you need help finding a doctor!

It's hard to tell whether the antibiotics you were on would've eradicated the infection - it depends no a lot of factors, such as how long you've been infected, what, if any, coinfections you have (besides the mycoplasma), what types of antibiotics, etc. May I suggest starting a new thread entitled, "Looking for an LLMD in Michigan," that way any of our other members with personal experience with doctors in your area can make suggestions (you'll want to make your email address available - don't worry only our members here will see it!) under your profile section.

For information on finding a Lyme Literate Medical Doctor(LLMD) in your area, please email our long time member, Dan's Mother at:
[email protected]

If you'd like more doctor suggestions, you can email stephanie at: [email protected] You can also go to: www.turnthecorner.org/bod.htm if you want to learn a little bit more about Lyme Disease.

You can also go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link: www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74

You will want to find an ILADS (International Lyme And Associated Diseases Society) doctor. The ILADS site is a great place to read to get you started on your Lyme journey.
www.ilads.org/lyme_disease/treatment_guidelines_clearing_ilads.html

in port huron about forty five minutes from detroit.and thanx border lime. I had a bunch of antibiotics for respiratory failure.anything from leavaquin,sulfonimides,an antifungal called vorconazole(i think thats it) to flagyl and vancomycin plus piperacillin alot anyways because when I was on the ventilator it caused bilateral pneumonia(maybe thats where the mycoplasma came in)and a candida and aspegillius lung infection all of which were cleared up. I am suffering so many affects I just would really like to find the cause of all this. I've been to see a vascular doctor,rheumatologist,neurologist,dermatologist...I'm getting mini diagnosis but not the whole picture so I am still trying to figure it out. I do know however that it started with a rash on my lower leg that was ring shaped. Many organisms can probably cause this so maybe I will never know. I have one again now but my pcp isn't taking it seriously so I will do what you guys have suggested and find a lyme doctor or a infectuous disease doctor.

Nana, I can't post doctors names on here and your email address is not available so I have no way of sending you any information.

Click on my name ( wiseguy) and you will see my email address. Send me an email and I will respond with some doctors in Michigan who specialize in Lyme.

Hi Nana68!
Mycoplasma infections can be quite dangerous if left untreated. This was taken from www.lymediseaseblog.com/mycoplasma-overlooked-lyme-co-infection/

"The most common specie, Mycoplasma pneumoniae, typically causes respiratory infections like pneumonia, bronchitis, pharyngitis, and asthma. But it’s a stealth pathogen that can also cause non-respiratory diseases affecting the nervous system, blood, joints, skin, heart, liver, and pancreas."

Those happen to be the same things Lyme and other co-infections can cause as well, so you would need to see a Lyme Literate Medical doctor to sort everything out properly so that you can get the right treatment.

Lyme bacteria are highly adept at hiding from the immune system - not only do they suppress it, but they can change what is known as the outer surface protein so that the body believes the infection is gone. It can also hide in other ways. High doses of specific abx are needed for extended periods of time to be effective with these infections.

Please do find a doctor who is truly qualified to treat these infections (an LLMD) so that you have the opportunity to heal.

As Borderlyme pointed out, it sounds like you are describing a typical Bull's eye rash - and Lyme is the only disease that produces this type of rash, because that is the skin form of this disease. This means if you've had the rash, you have Lyme.

You are so right about getting "Mini diagnoses"!! It seems that most of us go through the list of different types of doctors, getting those mini diagnoses until we seek out a Lyme Literate Medical doctor to help us sort these things all out!

I saw this posted somewhere else a while back. What the diagnosis would be for those doc's that just can't bring themselves to say Lyme Disease: Multiple Neuro Fibro Arthritic Myalgia Fatigue Syndrome .... or MNFAMFS for short! LOL!