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Posted 3/11/2012 3:45 AM (GMT 0)
i would think so, just guessing though ..just like a dr would :)

i didn't mean for my post to sound like you shoud be reading everything. but do think a fever is good, body is burning up fighting something..

I honestly have not had a fever or night sweat in over 5-6 years I am sure, ever since immune system crashed with the metals-bug combo,

i think i read thats a sign the wbc are in action..cannot say for sure though
dont overdo the reading, eyes need rest
Posted 3/11/2012 5:56 AM (GMT 0)
Yeah, Merc, I understand about fevers -- they are working to fight an infection.  So generally, when I get sick w/a fever I let it burn, esp if I am able to sleep/rest and stay hydrated. Always told my kids not to take meds for a fever, that the fever needs to burn and kill the infection, but that if they were unable to rest or sleep because of the fever, to go on and take something.  Still, sometimes a fever is an alarm -- that an infection has taken a turn for the worse.
Posted 3/11/2012 3:59 PM (GMT 0)

I'm so glad to hear this is all starting to get better! If any of the drops you're on are dilating, that could explain - at least some of - the blurriness and sensitivity to light.

I know this is tough - after 10+ years of running around like a chicken without a head trying to treat/live with my mystery illness, I was so relieved to finally get my diagnosis of Lyme, and some days I can hardly believe I'm still fighting. We're expected to have this strength and we don't know where to find it, but we always do. Especially with all that's been going on lately, my heart goes out to you (and to all of you, of course!). I think it's about time for a "you" day - relax, treat yourself, do whatever it is you love to do, try to regroup a little bit.

Posted 3/11/2012 6:56 PM (GMT 0)
As with any chronic condition, we will always feel worse in the evening hours - unless you are in an odd spot where you may actually feel better in the evenings. I've had this before for a bit! It was bizarre! Now I'm back to feeling kind of icky in the evenings after I've used up what ever amount of energy I had.

I'm really glad to hear that you are starting to see some small improvements!! Congrats!

I second Borderlyme's suggestion of a "you" day!! That will usually pick up a person's spirits!

I think you are probably in a lot of members hearts and prayers! I know you're in mine! Hang in there!!
Posted 3/15/2012 9:02 PM (GMT 0)
This is in hopes of helping someone, anyone. After some minor improvement, my eyes (sight) went all to heck. I had to leave work on Tues and get into the eye Dr. My vision was 100/100 -- that is bad, isn't it? Everything was a blurr.

Long story short: Saw a different Dr there who determined this must be a herpes infection because my corneas were a disaster (she said looked like someone w/ golf shoes had trampled all over them) and that Herpes hates steroids. The Drs had started steroids the week before and then increased the strength of them. She immediately removed the steroids and increased topical abx (because there is an abrasion on one cornea) and increased the anti-viral more than 2X.

I do not note improvement yet, but she said that she did and we will see her again tomorrow. I realize steroids are often necessary, but WATCH OUT! I honestly believe I would have gone blind! Whether permanently or not, I do not know.
Posted 3/15/2012 11:55 PM (GMT 0)
Oh, +Lyme, I am so sorry! I mean I'm glad you finally know what's causing it, and aren't taking the steroids anymore, but still - what a terrible thing to have to go through. Stay strong!
Posted 3/16/2012 2:34 AM (GMT 0)
You have been through so much with this. I'm glad you found a doctor that is more attentive and is hopefully helping you.

Best to you
Posted 3/24/2012 2:24 AM (GMT 0)
Hi. Thank you for all the great reads! I now feel that I haven't lost my mind YET to lyme if I can get the proper help. After I was diagnosed I was having a quiet Sunday morning chat with husband and friend when freind loked at me with a strange look and notice I had a bloody eye as he put it. A vessel broke I beleive. Call my Doctor, he said no big deal it was like a bruise and can randomly happen and should go away in few weeks it did. But couldn't help wonder if it had to with me having Lyme. Since I never had things like that happen before.
Posted 3/24/2012 10:43 PM (GMT 0)
First thing I thought of was CMV, but glad you're feeling better.
Posted 3/31/2012 7:20 PM (GMT 0)
Relentless, what can you tell me about CMV? My eyes are much better, but they are not yet all well. The original opthamologist put me back on steroid drops and took away the abx drops. I am still on high dose of anti-viral (I think it's a high dose -- two 200 mg tabs 4Xday. And will see the doctor again on Monday.

Couple of times my eyes have become blood shot again and scared me that it was going to start up again, as this is how the infection first started. Vision still gets blurry, but I believe it's because the corneas are not quite healed and I need to keep on w/ the tear drops.

So, basically, Relentless, I am so much better, but as this is now been well over a month I am scared to death of it happening again and my emergency medical funds are gone!

Will Acy. anti-viral help CMV? I see my LLMD on Friday, do you think I need to test for this? Would there be a certain treatment for it?

Honestly, my entire body is jacked up -- mind, body, spirit. And in all honesty, I take my meds, but do not take good care of myself. I don't know why I feel unable to -- it feels like part of this dissease, as if this is its 'purpose' -- to take us over til we lose all will. I don't know...

But do please tell me what you know about CMV -- I have read up a little on it, but never talked to anyone who has experienced it.
Posted 4/22/2012 11:26 AM (GMT 0)
Hi everybody!

+Lyme, i's nice to hear that your eyes are getting better day by day. I hope you will win the fight one day.

So here's my story: I have been struggling with my eyes almost 3 years now. The time since i got lyme. I have very dry eyes, with big bloodwessels showing. My eyes are extremely red in the mornings and when i bow my head or when i sneeze, I mean when there's some pressure to my head. Eyes are sensitive to light, but lately they are also aching. Im working with computer, so my eyes are feeling tired almost immideatly. And ofcourse i have the infamous floaters.

I've been two times to different eye dr's and to opthamologist, but they all assured my eyes are fine, just very dry. They had never heard that lyme can infect the eyes. I've had 2 oral AB courses and IV with Rochephin 10 days. But there's even no minor improvement in my eyes. Eye dr prescribed eye drops, but then my eyes are feeling better only 15 minutes, after that they feel even more horrible. I have also tried different drops with no effect.

Well, I ordered TheraTears nutrition with high dose of Omega 3, some chinese herbs containing Lycii (goji berry), started taking astaxanthin. Time to time i make ice compress. I've been taking this stuff one month now. But as you can guess theres still no improvment. Im going to take this course two months.

I made a new appointment with Lyme dr, and im going to wangle a new course of AB. I think that only when I heal my Lyme, I'm getting relief to my eyes. Hope will never die!
Posted 4/22/2012 11:45 AM (GMT 0)
Hi Lyme Eyes,

Welcome to the forum.\!

Have you considered seeing a Lyme literate doctor? A doctor who follows the ILADS guidelines would treat you until all your symptoms are resolved. You would not have to "wangle" your abx out of them!

You are quite right to want to heal your Lyme. Good for you!
Posted 4/24/2012 9:11 PM (GMT 0)
Here in Estonia, we dont have any doctors who follow ILADS guidelines :(
Posted 4/25/2012 4:08 PM (GMT 0)
 

Can someone who has had parasites in their eyes comment on how you got rid of them?  I got some in my eyes from rubbing them after handling fish, and have tried several things to no avail.  My doctors are perplexed.

 

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