Is this Normal ?????

Hi All ~   I began Lyme Treatment n Feb 14th 2012 with Zithro 250 mg 2x a day and Bactrium DS 250mg 2 x a day until the end of March during this time I contined on a upward blimb and was doing well ... At the end of March the LLMD switched my meds to Zithro 250 mg 2x a day and Plaquenil 200mg 3x a day ...  I then went back to work 3 days a week on April 4th ..by the end of April I was becoming more exhausted and noticed I was hurting all over again (which I take Curamin for pain and was down to 4 a day so I went back up tp 6 a day) Now I notice Parathesia coming back and am still very "exhausted" and I feel heart palps and or racing ....  Could this mean the meds arent working anymore and its time for a swtichn or is this normal to have these kids of set backs  ????????  My next LLMD apt is in 2 weeks ..  Thanks for any info/advice ................

Thanks Yazzer .. I feel like I live in the bathtub (doing the detox) and live on pills cuz I take so many counting all the supplements I take from the ND ... My Adrenal glands were affected ... I was diaganosed with Adrenal Insuffeciency due to low Cortisol about 8 months before we found out I had Lyme and who knows what my Thyroid is really doing .... Thanks I appreciate your Input and it makes me feel better just knowing it will get better at some point !!!!

OMG.. I couldnt even think about running..LOL I would keel over if I tried.. I cant breathe to well but thats getting better .... I understand what you said about feeling good and then over doing it .. Thats very easy to do !!!! It sure is a learning experience and I sure am glad I have you and all the others here on this Forum to help me along the way :) If you dont mind me asking how long did you have Lyme before you were diagnosed ????????

Oh my ... So sorry you had to suffer so long :( Interesting you said you had panic attacks .. My very first symptom of Lyme was a Panic attack 4 years ago ( I am 45 and had never had a panic attack in my life) so I went to the ER as I had also hyperventilated and didnt have a clue what was happening and thinking I was having a Stroke.. The ER did their work up and told me that it was Stress related and that all they could offer me was the Physc ward..LOL I declined and said I just want to go home ..LOL I then went to my MD and he said I was depressed and Anxious so he put me on Antidepressants and I believed him cuz my husband had passed away from Cancer so I thought all this was really "depression" .. low and behold 4 years later and I had short term memory issues , cognitive impairments , brain fog , pain in weird places , developed a Gluten Intolerance and the lise goes on and on .. I finally found a Doc in 2011 that dealt with Adrenal and Thyroid issues and he is the one who actually did a Igenex test and it was positive .. He then sent me to a LLMD in Wisconsin .... Sounds like you have had similar symptoms as me ... Its werid to cuz I always questioned the panic attacks and did not believe they were happening from stress or depression and they would just come out of the blue for no reason.... I even went to a Counselor last year to try and see if these panic attacks were brought on by a certain thing ..nothing added up tho .. UNTIL we learned I had Lyme , then it all made sense .. You have made some very good progress in 11 months for having Lyme that long .. Im so Happy for you :) Did you have to get a PICC line ?????

Purplegirl and Yazzer I see you both have adrenal issues, I do too. Very low thyroid T3 T4 and low cortisol...the hormone dr started me on cortisol two weeks ago to help with brain fog etc. However I think it is making the lyme more pronounced. I am weaning myself off it...and hope that a change in ABX will help balance me out and hope my adrenals will start producing more cortisol on their own, then perhaps my thyroid will get better. Such a balancing act this whole thing is! Just starting Doxy for the second time as I could not tolerate the first time...now going to take with food and see what happens.

Sorry you both also have these issues, but it is comforting to know we are not alone.

Take care

Flowergal .. I was put on HC (hydrocortisone) 25mg a day due to low coritisol .. this was before we new I had Lyme but when I went to the LLMD he said he didnt have a problem with me on that low of a dose tho in March he did have me stop taking it but I had taken it for 9 months .. I was having Adrenal crashes tho and couldnt get up for like a day everytime I would crash... You prolly are not taking any thyroid meds if your Adrenals are not strong enough to tolerate it which is another whole issue... I love this Forum as you are right we are not alone !!! I sometimes dont even think my family truely understands Lyme and what it does to us ..... Oh and there is a really good book that I bought called " Safe uses of Cortisol " by William Jeffries ...

The thyroid and Adrenal Doc I see toldme that until your Adrenals are strong and can hold their own you wont be able to tolerate thyroid meds which is probably why you crashed and burned..... Did you try Armour ????? Ashwaganda is very good for your Adrenal glands , I took that also ..The LLMD just put me on Drenatrophin PMG by Standard Process 3 of them 2x a day .. You could also try a product called Isocort but if you take the Hydrocortisone dont take the Isocort also ... Thanks for all your Info .. its very helpful ...

It sounds like your on the right path then :) The path just seems like it never ends for us but we have to keep on going until we reach the end some day !!!!!!