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" that does not sound like you " friends keep saying this to me.. just wondering

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Posted 9/13/2012 9:15 PM (GMT 0)
Just wondering if other people have noticed I dont know personality changes, or mental changes since lyme went along.. I think this would be more people who have had this for years undiagnosed.  Maybe not.. I do notice changes in my thinking and of course the anxiety issues.. and not organized as before, paper work , files are a complete mess.. seems I am always searching for something..

Thank goodness all my bills are automatic paid from the bank.. got that set up after I forgot to pay a few things.. which really is not like me.. I was always on top of money issues. 

Oh I don't know.. MY favorite phrase these days.. by the way.  I just don't know>

I have had small seizures and have a white matter on my brain MRI.. so doc said maybe stroke, maybe MS,,, or is it from LYME?  is what I wonder.. are these little pesty bugs in my brain?  Is it permenent damage?  So many questions..

Posted 9/13/2012 9:29 PM (GMT 0)
HI Bars,
I can tell you from my experience, that we do heal from the brain issues as well as the other physical issues. I was to the point of not being able to communicate, couldn't handle money for any reason (couldn't count it!), and could hardly get the names of my immediate family members right! I couldn't follow written or oral instructions, or follow patterns. I was always using the wrong words for things and the list just goes on and on!

When I get really tired, all of those issues can creep back in a bit, until I get caught back up on my sleep, but for the most part I've recovered on those things. I think it's the cognitive issues that hit me the hardest. Hang in there!!! Continue to detox and eat as well as you can until you can get in to see that LLMD that you have an appt with!

Please remember that the doc's here in our area are completely clueless when it comes to these infections! That's why all they can do is guess at why you have those white spots on your brain! They won't even consider the possibility of Lyme disease.
Posted 9/13/2012 10:07 PM (GMT 0)
Hey Travler, good to hear from ya. Also nice to know this new me might not be the me I am now forever,, lol does that make sense.. good grief. Been thinking of calling you.. have a few questions on the guy over in columbia.. when might be a good time to call?

Hope all is well.. on your end of the mountain. :)
Posted 9/13/2012 10:29 PM (GMT 0)
Sending an email! smilewinkgrin
Posted 9/14/2012 1:27 PM (GMT 0)
I just met with a LLMD here in Wisconsin. (I'll post a thread on it this weekend, as his protocol might be helpful to others)

Just quickly, though - I have similar problems. You're probably talking about white matter lesions (as the white matter is part of your brain). I have white matter lesions also, as well as an abnormal EEG with probable future seizures.

So, the good news - with treatment, the LLMD feels that the lesions will decrease in number and possibly heal altogether. Also, the seizures for me, hopefully, will never happen. For you, hopefully they will decrease quickly and then stop.

So, I don't have time today, but tomorrow, I will post his protocol. He doesn't want me to go the antibiotic route, although he is open to that in the future if it proves necessary.

He has a whole brain detox thing which he believes will help me fairly quickly. Also, to fight the bacteria, he likes the new modified Buhner protocol.
Posted 9/14/2012 3:29 PM (GMT 0)
my mind is a mess. now that i realize it i do not yell at people anymore. last year i was so angry and thought everyone at home was purposely sabotaging my attempts to try to kep the house clean. like they were making a mess to piss me off.. not true. they were all busy and the kids 19 and 20 home from college have their lives and come and go.. it is normal. , work and friends i felt no one would help me with anything. i was in fight or flight mode.

now i am angry at all the Docs!
Posted 9/14/2012 9:54 PM (GMT 0)
Yes I def think that this infection can affect your personality  ! I have noticed this in myself , sometimes worse than others . Last fall when I had a flare of all my symptoms and worsening of weakness and neuro symptoms I was so scatterbrained . Its bc even the very simple things a healthy person takes for granted were so exhausting to handle for me . I think that alone sets the stage for alot of anxiety and unstableness. I know that I have never been a depressed person but I was so scared and tired of being in pain and feeling on the verge of God knows w hat that I kept talking about dying and that I actually felt like I should just die and get it over with . Friends and family couldn't feel the pain I was in but I was so uncomfortable in my own skin that living didn't feel worth it anymore , so I would just get frazzled and blurt out a bunch of negative things , and I know they thought I was losing my mind , but I just felt hopeless.

I also do notice that being someone that is typically a workaholic even through the pain ... it makes me not want to start or finish anything , when I am feeling bad , its hard for me to accomplish a nything ...even my own sentences ! haha :-)

I noticed I would be extremely forgetful and go blank alot , I'd just lose my whole train of thought and I'd say ummm , and "so anyways " so many times that some of my  more shallow friends would mock me or make sarcastic comments about me , sad part is that it wasn't like I was just being ditsy , I was really sick and my mind was not all there . I still have days or even weeks when I am a mess like that .

 

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