PAIN PAIN PAIN, Constant severe pain

I Have the pain also, I take naproxen twice a day, and eat as much gluten free food as possible. I think the only thing that helps me is the detox bath, because the pain is horrible. I wish I could help your daughter, I think about it everyday, how do we stop the burning sensation, nothing much seems to help.

Has any mentioned possibly something like cymbalta? it also helps with pain.

Also, is she getting enough magnesium? Alot of pain is caused by muscle spasms and most of us with lyme are very deficient in magnesium.

Also, try and avoid foods that are inflammatory. I notice right away if I eat dairy. I feel it in my joints.

I have a thing that goes in the microwave and then you moisten and put around your neck or shoulders. It REALLY feels good and may help with some of the back pain.

Try to drink as much lemon water as you can to help you detox.

I'll keep thinking too.

There is also a homeopathic gel or cream called Arnica. It is made in france and they use it more overseas. It has helped both my husband and I tremendously. We got it at Whole Foods.

I'm having the same problem. I've recently learned that prednisone can actually worsen the symptoms (even though my doc insists I should be taking it, I chose to stop). Please look into this, I'm not a doctor, but in my case (and many others), it worsened the symptoms, especially pain.

It is my understanding that steroids weaken the immune system and allow the bacteria to grow and cause more problems- pain, fatigue, etc. The opposite of what my doctor said it would do for me!

I'm sorry to harp on that, but based on what I've read steroids are a big no no for people with bacterial diseases such as Lyme.

How long has she been doing the detox baths? I hope she finds some relief soon. Can her doctor prescribe anything stronger to help her get through the herx?

I'm sorry I can't be more help. I was just diagnosed and haven't personally started treatment yet. I'm just offering insight based on what I've learned from this forum and my own research.

I hope she finds some much needed relief soon. Sending hugs and positve thoughts :)

Jan I am happytime and my daughter also has many of these symptoms. Traveler or tickled will prabably be your best people or any of the moderators to ask. They would suggest you read the whole post " New to Lyme " at the top of the posts. Then start a new post " new to lymes " or something like that. I am new myself and have gotten alot of great feedback and knowledgable people here to answer questions. Also if you go to your My Profile and enable your e-mail by clicking on envelope people can e-mail you if you want. Good luck and I hope you feel better soon.

Wow .
I can feel her pain.
I got bitten in Tennessee the day before my brother's wedding .I got sick with flu like symptoms with Bell's palsy and migrating arthritis so was tested for Lyme (ELISA) but it was negative .It went after a few weeks, except my brain seemed like was slowly rusting away.
Then 8 years later, I had what is described as lyme meningitis ( unimaginable pain which became a chronic migrating neuralgia pain often excruciating, that would travel all over my body. this went on for over six years .I nearly went crazy and often thought bad thoughts -you know what I mean. .....I am allergic to most Nsaids and NOTHNG would touch the pain ,except Dilaudid, and then it only took the extreme edge off it for a few hours then bammo.the pain would come back WORSE than before.
I finally realized that as hard as it was , I had to go off the painkillers and find something else .That was a prayer which God answered in an incredible way.

I started taking Arnica homeopathically, St Johns Wort , something else which I am sorry I don't remember, and lots of Turmeric. it started to get better and I could function well enough to go to work . But as the lyme bacteria is slow growing and and can go into hiding, it would recycle back every three and a half to four months it would get worse.I continued to take turmeric. I have taken all sorts of alternatine stuff.including Samento, wich did not really help me,
Drinking water (yes!)also helped when the pain would get me at night.
I found if I got out in the sunshine and fresh air I would have less pain at night as the night time was always the worst.sometimes the pain would literally throw me out of bed. I cut back on sugar as I'm told sugar is imflammatory.
I also have had some fever treatments which has helped alot.too. In the end it was prayer,another fever treatment and following the Buhner protocol in his book called HEALING LYME which finally beat it. thank God I have been free for a couple of years.
I wish I had done a diary of what I did and when but I did not.
I hope this helps some .Please forgive the rambling letter. I am legally blind and so typing this is a real challenge.
God bless you and your daughter.

I have pain like that , and alot of the other symptoms your daughter is having ringing ears , low blood pressure, dizziness , anxiety etc

I am still learning what helps . Gluten , , grain, dairy and frankenfood FREE really makes a huge difference ! And it take take a week or more to show signifcant reduction in the pain and stiffness . So give it a chance and make sure not getting any hidden sources of it . Also stay away from nightshade foods ( potatoes, tomatoes,eggplant , peppers ) In other words do an elimination diet and stay away from foods that could be causing inflammation or auto immune reactions . It really does help if you do it correctly . I still struggle with staying on the plan , but whenever I get a good stretch in and really eliminate the offending foods I notice such a big improvement!

Topically I really like Tiger Balm, and whenI am really hurting I will rub it across my forehead, my joints ( elbows, knees , neck , even feet , I think it helps .. it has homeopathics in it and i like the sensation it gives .

I do think the turmeric does help a bit , and so does cayenne if she can stand hot foods

Iknow potassium and magnesium help some people , its helped me at points . 

I hope she feels better , I know how bad it feels :-(