HealingWell
Search Close Search
☰

scared

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 10/11/2012 9:01 PM (GMT 0)
Every new symptom I encounter makes me think that there is something seriously wrong with me (other than lyme) and I think I am going to die. For example, I started experiencing a tickling sensation in my chest/lungs and throat accompanied by coughing. My lyme doc hasn't gotten back to me with my test results, so I don't know what my treatment plan is going to be. How do I hang in there without constantly thinking I am going to die? I go back and forth between being hopeful and hopeless.
Posted 10/11/2012 9:22 PM (GMT 0)
I am right there with you. I am waiting for my test results, not sure if I have Lymes,
but I am very sick with a lot of the symptoms. I am at the point where I am scared to be home alone with my 14 month old son. What a horrific feeling. It is devesting to me. I was such an independant and active person. It is a dark tunnel to be in, forums like this one help to know you are not alone. We have to believe there is light at the end of the tunnel and hang onto hope. It is such an emotional journey. Try deep breathing exercises or listening to soothing music. Even watching a funny movie can help take the edge off. Hang in there, I wish you the best :-)
Posted 10/11/2012 9:37 PM (GMT 0)
thank you warrior mom! I am trying to stay positive, but I tend to lean to the negative side of things. something I need to work on. your message is very helpful and I really appreciate it. I also have a young son (2 months), and I think the birth is what brought on the flood of symptoms I am having. I can relate to being afraid to be left alone at home. Good luck to you, and wishing you the best as well. I would love to know what happens with your test results.
Posted 10/11/2012 10:30 PM (GMT 0)
 

When my 15 yo daughter started with her symptoms we were on a first name basis with ER docs. Fainting caused head trama, rash all over body that caused severe burning, tingling, numb, pain, headaches and back pain that were so severe she couldnt move. Lyme symptoms are severe. Very severe sometimes, enough to warrant that trip just to find out all your bloodwork and tests are neg. How can an almost undetectable bacteria cause so much pain and disability? Why cant the Dr. help?

My daughters journey into this disease has been like taking a ride thru hell. But we are constantly meeting new wonderful, thoughtful people on this trip. I believe we have to keep an eye out for all the good and love that some people are willing to share. Like here on this forum. So many people are willing to share and that makes it known you are not alone. I will keep you and some of the others on this site that are hurting so badly in my thoughts and prayers.  

Posted 10/11/2012 10:55 PM (GMT 0)
it is extremely comforting to know there are such nice and thoughtful people out there. Thank you for your kind words happytimes! I hope that soon I will be able to comfort newcomers with my own success story.
Posted 10/12/2012 3:49 AM (GMT 0)
I know how hard it is to go through every day terrified of each new symptom - always thinking, "Okay, but THIS one is different!" - it's so stressful, and so scary! I just hope it offers a little consolation to know that after probably a full year of that, I've come out of it with a perspective that's more along the lines of, "Wow - I'm amazed at what my body is able to handle!" - I know it's hard, but try to have faith in your body - it's designed specifically to manage anything illness throws at it! You'll come out of this feeling stronger, for sure - now is just the tough part, the really, really tough part!
Posted 10/13/2012 5:51 AM (GMT 0)
I seem to be in the same boat.. postitive lyme test in july... after years of negative test..did my 30 day of doxy.. felt better,, then worse,, then better.. then started having tummy problems.. swallowing problems. rib pain.. which turned into a trip to ER.. xray said pheumonia.. on zpack,, still coughing.. but only at night ...went to LLMD last week,, he gave me all kinds of abx.. but afraid to take them with all this tummy upset, hurts to eat feels like getting stuck in my chest.. now what go to another GI doctor.. I am so sick of all this..

I am like you I question if I am just dying.. I want to know why all of a sudden I am sick with first one thing then another? Lyme syptoms went away for short period after doxy.. now they are slowing coming back,, tho I was still having vision problems and tremors.. very confused.. sick of doctors.. and have no clue what to do next.
Posted 10/13/2012 11:14 AM (GMT 0)
Hi bars,
I am so sorry that you're feeling so bad,it's no wonder if you've got pheumonia on top of everything else,just what you needed,right?

I believe that our bodies are so busy fighting off the Lyme infections that we all tend to catch other kinds of bugs that are floating about.our immune systems are easily compromised.

Lyme plays terrible tricks with our minds,depression and self doubt raise their ugly heads,lots of us question even having Lyme although we've tested positive,it's crazy.
It is such a complex disease that symptoms come and go rapidly,sometimes it's difficult keeping up with them.

I,too, have felt as if I was dying, especially when I was herxing on Doxy,detoxing has helped me enormously,together with my " green stuff".

You have to try and stay positive,I know it's easy to say but you physcological welfare is just as important as your physical well being if you're going to kick this disease in the backside---and you will.

So many people here have got better and are living testimonies to what we can achieve if we really stick to our treatments and stay positive.

It is sometimes overwhelming and seems hopeless but we owe it to ourselves to keep on fighting for our health-we deserve it.
And I for one intend to win this battle.
Posted 10/13/2012 2:55 PM (GMT 0)
I can totally relate bars. Whats worse is that since I just had a baby, all the doctors (therapist, psych, gp) just chalk up my symptoms to postpartum depression. Even my llmd is telling me to do something with my antidepressants. I am starting to doubt myself.

Tickled, what is your "green stuff?" Looking for any way to feel somewhat "normal."
Posted 10/13/2012 3:03 PM (GMT 0)
Hi Maxam.

My green stuff is Green Vibrance,I was having stomach problems and had lost a lot of weight while I was on Doxy.

GV has solved all my digestive problems and given me so much energy, it's amazing.

If you want to find out more, look for the thread " what's the scoop on green stuff"

Greetings
Tickled
Posted 10/13/2012 6:44 PM (GMT 0)
Something else about taking high dose abx, you must eat to protect your stomach! I know that many doctors and even pharmacists will tell you that the abx needs to be taken on an empty stomach, but they don't have to live with the damage that will be done if you do!

What happens if you eat food before you take abx? It slows down the absorption time, and reduces the amount of abx action by a little itty bitty bit. That's all - no bombs going off, and no messing up your entire treatment!!

So those that have upset tummy's or tummies that aren't very appreciative of those abx, eat something!!! Please!
Posted 10/15/2012 12:58 AM (GMT 0)
Maxam, I've been on this journey for 5 months and the one thing I've figured out is this Lyme stuff really messes with your head. I feel like I went from being completely rational and in control to a blubbering, stressed, anxiety ridden mess within that time frame. Inititally when inwas diagnosed I didn't realize the scope of what properly treating Lyme really entails. The forum can sometimes be a scary place-- there are ALOT of very sick people on here. When you're not feeling well yourself it can make your anxiety worse because you worry that you will suffer in the same way everyone else is suffering. This disease is different for everyone and manifests itself differently for everyone. You will eventually get to a place where you are only in fight mode and the way to get there is thru knowledge. Read what you can, get a good treatment protocol in place AND FOLLOW it. For most of us it means drastic dietary changes, detoxing daily (!!), listening to your body when it needs rest. It's a process, a long one. But I know that I feel sooooo much more hopeful and in control than I did even a month ago because the people that follow their treatment plans (once they get one) and take care of themselves--get well. It can take a while. There have been people that were totally on the brink and gotten better!!! You can do it! Your body can heal itself if you give it the tools. Sometimes you'll be overcome with anxiety-- know that it's part of the process, try not to feed into it and start a new day.
Posted 10/15/2012 1:14 AM (GMT 0)
Warrior Mom and Maxam,

I was healthy until pregnancy w/ my second child. The last few months of pregnancy I felt very ill, but just thought it was 3rd trimester fatigue, etc. Then, 2 days after delivery I got REALLY sick. I was all over the place for a year trying to figure out what was wrong and I was getting sicker and sicker. I had many Drs. say that it was PPD and one that sent me to a pyschiatrist. By that time, I was wondering if I was just completely losing it, so I went. I had never had any depression or anxiety so I thought that maybe PPD could cause serious physical illness. The psych. wanted me to go on really heavy pysch. meds and I refused, kept searching for answers, and found out the it has been Lyme all along.

I can relate to being afraid to be home alone with my children, especially my newborn daughter. I was having such severe neuro. symptoms and I was worried that I would faint, have a seizure, or die while I was alone taking care of her. And I really did believe that I was dying; it sure as heck felt like it! I even made sure my 5 yr. old new how to dial 911 and a neighbors number just in case. I ended up having to hire sitters and have family come over to help take care of the kids while my husband was at work. I had someone here for most of the day. And like others mentioned on here, it was emotionally hard to rely on others when I was previously a very independent, capable woman and mom, but you do what you have to do to get through it. Now, I'm happy to say, that most days I can care for my kids on my own. I have a sitter come 2 mornings a week just to help out so I can rest, but I'm able to ride solo :-) the rest of the time. It does get better!!!! Hang in there!!!!

Don't let Drs. convince you that it's PPD. Depression and anxiety doesn't cause physical illness like Lyme does. Sure, you might have some difficulty sleeping or some GI issues or fatigue here and there with Depression, but it's REALLY MILD compared to Lyme symptoms. Totally different!
✚ New Topic ✚ Reply