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Regarding rapid heart rate, dizziness, fainting, exercise intolerance, heat intolerance, etc.

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Posted 10/12/2012 3:12 AM (GMT 0)
Hello,

I do not have Lyme that I am aware of, but I do have Postural Orthostatic Tachycardia Syndrome (POTS). I have come across several people who have both Lyme and POTS, as they are quite common together. I just want to get the word out about POTS in case some of you feel you may have something other than or in addition to Lyme. I have seen many posts on this site about baffling symptoms and such, so just keep this post in mind. Also, feel free to contact me if you would like more specific information. Although I could go on and on, I'll spare you, as I realize it is possible no one cares. :P

Thank you, and best wishes to you all!

B
Posted 10/13/2012 11:21 AM (GMT 0)
Thanks for posting. The symptoms of POTS are very similar to the symptoms of Lyme and many do have them congruently. I have all of those symptoms. The problem is, that doctor's have a difficult time distinguishing what is causing it at any given time. It could be herxing, the meds, POTS, the infections etc.
Posted 10/13/2012 12:28 PM (GMT 0)
Yes, Summer3, unfortunately that is the case for many. Have you had POTS confirmed? I am on my way from Ohio to New York today to participate in POTS research. Perhaps I will have more advice when I return.
Posted 10/13/2012 6:48 PM (GMT 0)
Madamebrianne, many people with Lyme experience POTS, but as a secondary condition, so ours experience and resolution to this will be different than yours.

Please be aware that you are encouraging people that are already overloaded with their own treatments to add another treatment for something that will likely clear as they treat their tick-borne diseases.

Sharing of information is great, but it's not good when you don't understand the underlying conditions that have brought this on for those on this forum.

Thank you for understanding.
Posted 10/13/2012 8:12 PM (GMT 0)
I have Lyme and Bartonella (and past Babs) but also do have POTS....which landed me in the CCU for several days. I disagree with confusing people or adding in more treatments to complicate matters. I do many medications and then when I was in the hospital they added in two more to help the POTS. I don't like taking so many meds but am so thankful they figured out what was going on. I take Midodrine and Fludrocort and it has helped me be able to stand a little now and take a few steps at a time. I could not do this before the POTS medications were given due to my blood pressure and heart rate.

The bottom line is, everyone is different. We may all need different types of treatments but we should remain open to the possibilities and consider other options besides it always being Lyme and co-infections that are causing the symptoms. :-)

Posted 10/14/2012 8:54 PM (GMT 0)
Traveler,

With no disrespect, I am aware that all experiences and treatments are different. I did not suggest a specific treatment; I only tried to spread awareness in case people have POTS/both conditions. I did a report on Lyme, have watched documentaries, and have put much research into the illness, as it was first suspected that I had Lyme myself. Given this, of course I don't know everything, but I am very aware that causes and underlying conditions are endless.

Anyway, not everyone will appreciate my efforts, and that is fine. I will welcome messages, but will not be returning to this form. I can only hope it is understood my intentions are good and my actions will help at least one other person.

Kindly,
Brandi
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