Lyme disease and feeling like Crap

Awwww, Justme! I wish I could come up there and give a big squishy hug!!! I'm so sorry that you were being harassed in that way! You're right, that's just plain wrong, and there are laws in place if they really did harass about the meds you have to take.

It is amazing how poorly people are treated in this country any more. I can easily remember a time when everyone was concerned about their neighbors well being. We all checked on each other and if someone was ill, everyone in the community came together to help in whatever ways they could.

So....... I just have to ask: are you detoxing well?

I completely understand what you are going through. I was extremely sick this spring and starting having anxiety and panic attacks for no reason and never had them before. Started stuttering and having ST memory loss.. very scary. A nurse at work was battling Lyme for 4 yrs and told me I had Lyme. I shrugged it off for about a month and then took her advice and went to see the naturopath doctor she recommended. All my labs were negative (about 5 blood draws) but Dr. C was positive I had Lyme. She put me on Minocycline and Rifampin 2x daily along with Anxiety Control supplements. After first week I was so sick and Herxing badly. I ended up in the ER and found nothing. I leveled out after 2 weeks of treatment but I see Dr. C every two weeks and have accupun****ure treatment but get extremely sick the following day from all the toxins exiting my body. Now I have been on antibiotics for 3 months and now she is changing up my meds to Doxy, Rufampin and adding Nystatin for yeast control. I am anticipating feeling terrible after this change up. I am at least functional but sometimes anxiety is still prevelant. I am about 75 percent better and hoping for more improvement. I sympathize for anyone with this horrible disease. It is an epidemic that is difficult to treat. Find a good doctor that is supportive, educate your family and friends. Fight it as much as you can. I fight everyday. It has taken over my life. My dog even has Lyme and is being treated. I check my kids everyday and take preventative measure. Hang in there all of you with this horrible disease.

I had really bad few days, and when I got on here to say thank you to everyone, guess what I forgot my user name and password. I had to laugh at myself, before the lyme I had a great memory. Now I go into my purse searching for stuff , and completely forget what I am doing.

I am detoxing, I feel that it helps me, I just have really bad herxing afterwords. I watched most of the you tube videos of the people with the muscle spasm or seizures like movement as that is what I have. Mine get really bad, and so far the doctor has been helping me with everything. We don't have a Lyme doctor here , and the one that is a couple hours away I can't afford right now, so I am trying to work with what I have.

I wanted to say thank you all on this website, I am learning so much from it , and from everyone. I guess what I really wanted to say , is sinse people I know found out I have Lyme they have been distancing them self from me. I felt very upset about it, until I realized they don't understand what Lyme is , and I don't have to feel bad because I have it . It's not my fault, I kept saying sorry, but now I am not saying that anymore. If my body jerks and people stare , like my husband said let them stare, it's very difficult living in this Lyme body , and I do not have to answer to anyone.

The hardest part for me with Lyme is understanding my limitations, I can't do it all. If I don't rest everyday , I pay dearly for it. So each day I have to take a little nap, just so I can make it to work, and class two nights a week. When the pain gets to bad, I hide out in the bathroom for a few minutes at work. I do what I can, until I can't do it anymore.

My doctor wants me on disability , and I told her Friday I am not ready for that yet. The Lyme has already destroyed everything in my life, at least if I can go into work for a few hours a day I feel like I have some control over my life. Now there are some weeks when I miss a few days, because I can't get out of bed, but I am doing the best I can.

I hope we all get better, and help other people that have to go through this. Now that I remembered my password I can back on to my favorite website.

just me from Illinois.

I know the most difficult thing was for me to realize that I couldn't do what I was doing before. I use to work 14 days straight , 12 hours days at times. I can barely make it 6 hours a day now. We have to rest our body's and not let the Lyme take over our mind. Its very difficult because some day's I think the lyme is winning , and I am losing.

I hope you get better, and yes that all of us with lyme get well , and get our life back.