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Posted 11/6/2012 9:45 PM (GMT 0)

-Just went to gastro dr.  Appt was made sometme back and while sitting there, felt like ti waste to be there

I have been having diarehhea for months, everyday, and it is interfering wiht my daily life

so I guess I was kind of desperate for some clear cut answers, and inside

I am thinking

it has to be all related to the lymes, somehow

he just asked my family history and all, degrees on his wall, but did not seem very helpful to me.

I am so tired of being a medical mystery.  Tired of endless blood work.

from now, I am going to work harder on trusting my instincts,

The dr, said the blood work may not show anything anyways,

I dont know what else to do about this situation,    I will also ask my llmd dr. next month when I see him

I told the gr dr, that well, I feel like crap.  He did say How can you be so overweight and have diarreha everyday

that is what I wanted to know,

I am suprised I am still alive, I throw up also all the time, almost everyday.

i dont know what I am living off of, it is weird.

Dr said I Have swollen lymph nodes, but no infection

I am so tired of this journey and want to get on wiht my life..

I am so tired.... good early nite friends.  thanks for your help.

 

Posted 11/6/2012 10:02 PM (GMT 0)
I understand this all to well myself. I throw up way too much also. The naseau is awful in the mornings and I start moving around and here it comes. Always need a toilet nearby.

I went to an Infectious Disease Dr today and was not impressed. 8 vials of blood and a chest xray.

Chronic Fatigue Snydrome, I hate that diagnosis. Just like my Fibromyalgia diagnosis. He is the 2nd Dr that believes I have severe issues with my adrenal glands, I am taking a homepathic remedy for that and have started to notice a slight increase in energy levels. But when the Lyme question was brought it, he said no that is not it - you don't have the 5 bands to be CDC positive. Your tests are all negative. I don't get it! Of all Drs to understand chronic Lyme, you would think they would be it.

I too am tired of being a medical mystery, and not having any of the Drs or specialists think outside of the box. I cannot wait to finally have my appt. next week with the LLMD. It can be very terrifying to be so sick, with all of these crazy symptoms, that affects every system in your body.

We just have to keep fighting, pushing forward and believing that we will regain our health.

Posted 11/7/2012 2:48 AM (GMT 0)
Warriormom- are you on abx? I wake up nauseous every morning a d then throw up. I think it's GERD from the Lyme. Sometimes a Prilosec before I go to bed helps.
Posted 11/7/2012 3:39 AM (GMT 0)
No I am not on abx's. Waiting to get into the LLMD. Is that what it is?? I can go to bed with an appetite, no naseau and then I can wake up in the middle of the night and feel it, and once morning is here....A-W-F-U-L. Once in a while I get a day off.

I had tried Zantac before, I'll try the Prilosec. Thanks!! Hope you get a day off tomorrow morning.

Are you treating Lyme with abx's?

Posted 11/7/2012 1:00 PM (GMT 0)
HI ok, not a doctor. Been to so many understand your pain and feeling like a wierdo head case they can't help. I went to internal med doc, he did western blot said I had chronic lyme and rocky mountain fever at some point in my life.. but I did not have active bands.. hmm but I feel actively sick..? How can that be.. i ask. I have seizures and optic neuroisis (SP?) which is why I finally went to him..
other doctors told me I had fibro, MS ( maybe) Lupus ( maybe) chronic fatigue . IF you look at a symtom list for Lyme disease I have had them all at some point and time.. some stay forever some come and go. So I ask is the lyme is causeing my seizures he said yes, He gave me 30 days of doxycycline the common drug to cure lyme.. which I thought strange if I really did not have it.

I know a whole lot more about Lyme and coinfections now.. have done research ,, seen a LLMD, he gave me all kinds of abx, more doxy, which is very hard on my tummy ,,,puke and have gerd at night on it,, no matter how long I sit up to let it not sit in my esphagus, which I might have burned the first 30 days of taking.. cause I did not know any better.. also I take a rx enzymes, ceruroxime abx when i can no longer tolerate the doxy,, to prevent yeast infection in gut Nystatin oral tabs. acidophilus, probiotics,

I should not be drinking coffee,, but I still do in the morning.. gave up ice tea.

YOu could have lyme,, you might have allergy to milk, wheat, who knows what else..

YOu may never know, you might spend all your savings like I have to figure this all out.. that in and of itself is enough to make a person crazy..

I have no idea what is wrong with our medical people it cost to much and ya never really get well.. sick of being sick myself. !
Posted 11/7/2012 10:22 PM (GMT 0)
Lyme and related coinfections are known to cause all sorts of gastrointestinal troubles.

Yes, it is possible to have chronic gut problems and be overweight. The two may be going hand in hand.

The first thing to try is dietary modification:

Increase fiber intake. May help normalize bowel transit time.

Decrease sugar/simple carbohydrate intake.

Increase water intake.

Increase veggies, nuts/seeds, whole grains (preferably gluten-free grains).

Decrease large amounts of red meats, focus more on white meats and fish (not shellfish).

Try to eat organic or non-GMO whenever possible.

Try to eat meats raised grass-fed/native diet rather than factory-farmed.

Try to avoid farmed fish - wild-caught fish are healthier.

Take probiotics daily. This alone may solve the problem for many with diarrhea/constipation issues.

Learn more about Lyme/coinfections - read the "new to Lyme" thread at the top of this forum.

Read more about Lyme and the gut here:

thehumansideoflyme.net/viewarticle.php?aid=62
Posted 11/8/2012 11:06 PM (GMT 0)
I have been using Caprylic Acid good for Intestinal Health and Magnesium Malate.. works great for intestinal issues.
Posted 11/9/2012 2:09 AM (GMT 0)
Lyme can cause gastro issues, nausea, and vomiting. One of my first and worst symptoms of Lyme was nausea, vomiting, diarrhea, cramping. It was so bad that I originally thought that I had some type of stomach flu that started this all, but looking back, I had other Lyme symptoms before that. My PCP at the time even admitted me in to the hospital for a complete GI work-up and I saw two GI specialists and had tons of GI testing, all of which came back normal. And when I'm in a bad flare-up or herxing now, that's when the GI symptoms are the worst. Zofran and Promethazine help when it's too bad. Promethazine makes me really tired so I take it before bed. Try Ginger chews also. The good news is that the GI issues do improve as the lyme is treated.
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