i really need to hear something positive

Ok so i have bartonella, used to have lines all down my legs and doctor suspects i must have lyme, however test 2 years ago when fisrt so bart lines was indefinite i think the word is. Well i tried antibiotics for about 6 months and things werent getting better so i tried an approach by this other doctor.

He says that people with low aldosteorne(low cellular sodium) are prone to more infections. thats why the salt c works. So i started on florinef and got an extrme herx the first couple days. My knees were really sore which i never had before brain fog, chills..

but whats been worrying me is that recently i went up really fast on the florienf which was really stupid thought i could handle it. And i literally was having panic attacks like never before. Like i dont think i know wat a panic attack was before this. I thought i was gonna die from too much panic. woke up several times wanted to go to the er but kept telling myself its just lyme/bart. but is this really a bartonella, lyme herx symptom. iv been having racing adrenlaine cant sit still for the past couple days. im lowering verything now.

Also im geting severe flushing in the face which i mention because it can also be a side effect from florienf. i get that and chills all day switching off. Is that a herx symptoms?

and finally im getting leg swelling(fluid retention). it would be wierd to think why that would be a herx so of course my doctor thinks its from too much florinef even tho my sodium is still low or from to low potassium, florienf depletes it but my potassium is normal. but could leg swelling somehow be realted to lyme bart, and not the increase in sodium.

thanks

How much florinef are you taking? Florinef itself, should not really cause a herx because it isn't directly killing Lyme or co-infections. You don't want to overdo it with Florinef because it's a steroid. It should only be taken in physiological doses when you have Lyme.

Are you working with a LLMD? This seems like a highly unusual way to go about treating bartonella to me.

It's possible that the combination of salt and too much Florinef is causing your flushing, high BP and swollen ankles. Some of that happened to me and I was on the lowest possible dose.

Florinef, cortef and added sea salt can all be good as supplemental treatment (usually for low bp, adrenal fatigue etc.) but these things are generally not considered to be direct treatment for Lyme and co-infections.

Are you taking anything to specifically address Lyme or any co-infections you have? Herbs or abx? I tend to lean toward this being a side effect of the florinef/added salt as opposed to a herx unless you are taking something else that has the potential to kill off the bacteria.

I'm personally not a fan of the salt part of the salt/c protocol. I think it's risky and not adequately supported by science. However, we are all experimenting to some degree so I hope that you do find something that works for you.

I do agree with you about the liver. I also have liver enzyme issues transiently and unpredictably. I believe that the infections and herxes can both cause the elevated enzymes. It's important to monitor your liver frequently and make sure the enzymes don't get dangerously high. Many of the abx and some herbs have the potential to cause serious liver consequences especially for those with known liver issues.

Post Edited (Summer3) : 11/10/2012 2:20:30 AM (GMT-7)

hi summer,

My doctor is like an alternative doctor who workos on ifenctions thyroid hormones and adrenals and other stuff. and he believes since i never remeber being biten by a tick. that its likely the infections took over becuase of a weak immune system and especially dehdryated cells. and that filling them with sodium with either salt supping or florinef will kill alot of the infections. I was worried by bp might get high on florinef but its not becuase im on too much because my salt level is still low. I got severe joint pain the first couple weeks and palps.
also the bartonella lines down my leg are barely seeable anymore since the flor and salt.

I was worried by bp would get high on the florinef because it ws already a little with low sodium. but my sodium is still in the bottom of the range so i think i just have high bp and will take a beta blocker until either my bp normalizes or i can wean off the florinef and have my natural alodosterone kick in.